squirrell68

Thank you Valerie, I think your advice makes sense, you can get hung up on what you read and then you end up worrying if it doesn’t match. I also think we need to encourage John to rest, he pushes himself hard and then gets down because he is so exhausted. All the best Tracey

Thank you Valerie, I think your advice makes sense, you can get hung up on what you read and then you end up worrying if it doesn’t match. I also think we need to encourage John to rest, he pushes himself hard and then gets down because he is so exhausted. All the best Tracey

Thank you Valerie, I think your advice makes sense, you can get hung up on what you read and then you end up worrying if it doesn’t match. I also think we need to encourage John to rest, he pushes himself hard and then gets down because he is so exhausted. All the best Tracey

Thank you everyone for your messages, it’s so good hearing the positive stories and this is such a good forum to make contact with other people who have been fighting melanoma. I will keep everyone posted after the next scan in December. Wishing everyone the best with their fight too.

Thank you everyone for your messages, it’s so good hearing the positive stories and this is such a good forum to make contact with other people who have been fighting melanoma. I will keep everyone posted after the next scan in December. Wishing everyone the best with their fight too.

Thank you everyone for your messages, it’s so good hearing the positive stories and this is such a good forum to make contact with other people who have been fighting melanoma. I will keep everyone posted after the next scan in December. Wishing everyone the best with their fight too.

Thank you Valerie, IL2 is something we will discuss, John’s Oncologists at the Sheba are fantastic. In the UK we were told there was no hope, they offered him support at home but limited treatment options, he wanted to fight it with an agressive treatment, he is a very fit man, has five children, the youngest is only 12. The approach at Sheba was so different, they are fighting it with us!
John has found the Bio chemo not too bad, the Sheba use the same combination as MD Anderson, but do not use the Inteferon, their reason was because they found the responses were the same without but the side effects were less severe, just their experience. So glad to hear Phil is doing well and is stable, it certainly sounds like this is down to keeping up to date of your next treatment options.
I will keep you posted.
Tracey

Thank you Valerie, IL2 is something we will discuss, John’s Oncologists at the Sheba are fantastic. In the UK we were told there was no hope, they offered him support at home but limited treatment options, he wanted to fight it with an agressive treatment, he is a very fit man, has five children, the youngest is only 12. The approach at Sheba was so different, they are fighting it with us!
John has found the Bio chemo not too bad, the Sheba use the same combination as MD Anderson, but do not use the Inteferon, their reason was because they found the responses were the same without but the side effects were less severe, just their experience. So glad to hear Phil is doing well and is stable, it certainly sounds like this is down to keeping up to date of your next treatment options.
I will keep you posted.
Tracey

Thank you Valerie, IL2 is something we will discuss, John’s Oncologists at the Sheba are fantastic. In the UK we were told there was no hope, they offered him support at home but limited treatment options, he wanted to fight it with an agressive treatment, he is a very fit man, has five children, the youngest is only 12. The approach at Sheba was so different, they are fighting it with us!
John has found the Bio chemo not too bad, the Sheba use the same combination as MD Anderson, but do not use the Inteferon, their reason was because they found the responses were the same without but the side effects were less severe, just their experience. So glad to hear Phil is doing well and is stable, it certainly sounds like this is down to keeping up to date of your next treatment options.
I will keep you posted.
Tracey

Thank you Valerie, your advice is brilliant and thank you for responding. I was a bit surprised to read from the previous post that bio chemo is not used much in the US as I know John’s Oncologist in the Sheba works closely with major cancer centres there, which is why she felt that it was a good first line treatment.
We are thinking about plan B now and TIL is still an option, our reasons for pulling out of this was the failed growth of the TILs and the disease progression. We also have the issue of where to take the tumour, we are told liver tumours are not good for TIL.
Do you know if high dose IL2 is offered after biochemo if patients have a partial response?
Tracey

Thank you Valerie, your advice is brilliant and thank you for responding. I was a bit surprised to read from the previous post that bio chemo is not used much in the US as I know John’s Oncologist in the Sheba works closely with major cancer centres there, which is why she felt that it was a good first line treatment.
We are thinking about plan B now and TIL is still an option, our reasons for pulling out of this was the failed growth of the TILs and the disease progression. We also have the issue of where to take the tumour, we are told liver tumours are not good for TIL.
Do you know if high dose IL2 is offered after biochemo if patients have a partial response?
Tracey

Thank you Valerie, your advice is brilliant and thank you for responding. I was a bit surprised to read from the previous post that bio chemo is not used much in the US as I know John’s Oncologist in the Sheba works closely with major cancer centres there, which is why she felt that it was a good first line treatment.
We are thinking about plan B now and TIL is still an option, our reasons for pulling out of this was the failed growth of the TILs and the disease progression. We also have the issue of where to take the tumour, we are told liver tumours are not good for TIL.
Do you know if high dose IL2 is offered after biochemo if patients have a partial response?
Tracey