@speedster
Forum Replies Created
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- July 1, 2017 at 4:50 pm
I had the same proceedure you're considering back in January of 2015 and I was blessed to have no problems at all with Lymphedema.
From this study: http://www.cancernetwork.com/cancer-complications/lymphedema-separating-fact-fiction
"The authors’ analysis of these studies demonstrated the overall incidence of lymphedema to be 16.3% after melanoma."
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- July 1, 2017 at 4:43 pm
Your doctor will have the best information, yet for me, I started at 1A and my dermatologist declared "victory", which was a mistake given the disease had already spread to the adjacent, sentinal lymph node. IF ONLY he had recommended I see an oncologst to take the next step, sentinal lymph node detection, I would not have advanced to Stage IIIc within 6 months. That led to an advance to Stage IV nine months later after I failed a clinical trail desigened to stem the advance.
I say all that given melanoma can be very agressive and taking a course fo a conservative and aggresive reposnse, not waiing and seeing, would be my recommendation from a very hard experience. Thank God having advanced so far, the third imunotherapy worked for me and I'm one year NED (No Evidence of Disease). Whew! 🙂
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- June 20, 2015 at 11:24 pm
Bubbles has it right. The initial, basic workup outside of the trial should have included the BRAF testing. Ask his original oncologist aoubt the findings and a copy of the report. As for the PD-1 testing, that was done within the trial as was part of the screening for the trail as it's becoming important for targeted therapy. That's not shared as it's within the blinded information of the trial.
At the end of the trial, you'd think they would share the information, yet I don't think they do. I'm not even sure we will know what drug they were giving us. I do know for sure if I fall off the trial for tocicity, they do not share what drug I was getting. That seems odd to be a it's important for future treaments.
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- June 20, 2015 at 11:24 pm
Bubbles has it right. The initial, basic workup outside of the trial should have included the BRAF testing. Ask his original oncologist aoubt the findings and a copy of the report. As for the PD-1 testing, that was done within the trial as was part of the screening for the trail as it's becoming important for targeted therapy. That's not shared as it's within the blinded information of the trial.
At the end of the trial, you'd think they would share the information, yet I don't think they do. I'm not even sure we will know what drug they were giving us. I do know for sure if I fall off the trial for tocicity, they do not share what drug I was getting. That seems odd to be a it's important for future treaments.
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- June 20, 2015 at 11:24 pm
Bubbles has it right. The initial, basic workup outside of the trial should have included the BRAF testing. Ask his original oncologist aoubt the findings and a copy of the report. As for the PD-1 testing, that was done within the trial as was part of the screening for the trail as it's becoming important for targeted therapy. That's not shared as it's within the blinded information of the trial.
At the end of the trial, you'd think they would share the information, yet I don't think they do. I'm not even sure we will know what drug they were giving us. I do know for sure if I fall off the trial for tocicity, they do not share what drug I was getting. That seems odd to be a it's important for future treaments.
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- May 14, 2015 at 5:30 pm
I'd look to get in the Ipi vs. Nivo tria that's happening now as Ipi alone is effective and Nivo (another PD-1 blocker) has the potential to be more effective and less toxic like Pembro. In a recent study, Pembo beat Ipi so well they ended the study and moved those on Ipi to Pembro. Doesn't mean Ipi is not good, it's just that Pembor was much better. Nivo is expected to be the same.
Steve
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- May 14, 2015 at 5:30 pm
I'd look to get in the Ipi vs. Nivo tria that's happening now as Ipi alone is effective and Nivo (another PD-1 blocker) has the potential to be more effective and less toxic like Pembro. In a recent study, Pembo beat Ipi so well they ended the study and moved those on Ipi to Pembro. Doesn't mean Ipi is not good, it's just that Pembor was much better. Nivo is expected to be the same.
Steve
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- July 1, 2017 at 4:35 pm
Hey, I've been away for a long time since I failed this trail having advanced to Stage IV. I was on the Ipi leg and once I advanced to Stage IV, I went on Nivo and it about did me in. Thankfully, MD Anderson patched me back together and in short order, Pembro took out the turmors that had spread all through my cheast and lungs, neck and into my liver. I just passed my one year NED anniversary. How did all of you do? I pray 100% well as I didn't, yet boy God's grace in the end, a diving catched with Pembro saved me.
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- June 2, 2015 at 12:31 am
As my liver has recovered and the seroids are being tapered down, I'll be treated again next Monday June 8, then June 15 and June 22. I pray my system tolderates what I beleive will be my last high dose of Ipilumumab if I"m on that leg of the trail, yet that's not certain.
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- June 2, 2015 at 12:31 am
As my liver has recovered and the seroids are being tapered down, I'll be treated again next Monday June 8, then June 15 and June 22. I pray my system tolderates what I beleive will be my last high dose of Ipilumumab if I"m on that leg of the trail, yet that's not certain.
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- June 2, 2015 at 12:31 am
As my liver has recovered and the seroids are being tapered down, I'll be treated again next Monday June 8, then June 15 and June 22. I pray my system tolderates what I beleive will be my last high dose of Ipilumumab if I"m on that leg of the trail, yet that's not certain.
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- May 25, 2015 at 3:33 am
As of today's blood test, my liver is almost back to normal after 10 days of Predisone steroids. We discovered today my pancreas is stressed, yet within a Grade I toxicity event, so I can be treated this Tuesady, May 26. It will be interesting to see how I tolerate my third treatment assuming I'm on the ipi leg of the trial. Hopefully my liver, pancreas and skin tolerate it well.
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- May 25, 2015 at 3:33 am
As of today's blood test, my liver is almost back to normal after 10 days of Predisone steroids. We discovered today my pancreas is stressed, yet within a Grade I toxicity event, so I can be treated this Tuesady, May 26. It will be interesting to see how I tolerate my third treatment assuming I'm on the ipi leg of the trial. Hopefully my liver, pancreas and skin tolerate it well.
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- May 25, 2015 at 3:33 am
As of today's blood test, my liver is almost back to normal after 10 days of Predisone steroids. We discovered today my pancreas is stressed, yet within a Grade I toxicity event, so I can be treated this Tuesady, May 26. It will be interesting to see how I tolerate my third treatment assuming I'm on the ipi leg of the trial. Hopefully my liver, pancreas and skin tolerate it well.
