SMacBosch
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SMacBosch

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      • November 24, 2016 at 2:12 am
      SMacBosch
      Participant

      An update: I was emailing back and forth with the oncologist today (he gave me his personal email address 🙂 ) and it appears I misheard him. He will be using Keytruda, not Yervoy.

      Although, how I misheard, I'm not sure since I was familiar with both names prior to our discussion. But, we had just been told our '6 months to a year window' was closing down to 2 months just moments before so quite possible something in my brain misfired. 

      • November 24, 2016 at 2:12 am
      SMacBosch
      Participant

      An update: I was emailing back and forth with the oncologist today (he gave me his personal email address 🙂 ) and it appears I misheard him. He will be using Keytruda, not Yervoy.

      Although, how I misheard, I'm not sure since I was familiar with both names prior to our discussion. But, we had just been told our '6 months to a year window' was closing down to 2 months just moments before so quite possible something in my brain misfired. 

        • November 28, 2016 at 2:16 pm
        SMacBosch
        Participant

        The first infusion of Keytruda was Friday afternoon (Nov 25). All went well with (so far) minimal side effects (mild diarrhea). My husband is still in the hospital and is being closely monitored, though.

        • November 28, 2016 at 2:16 pm
        SMacBosch
        Participant

        The first infusion of Keytruda was Friday afternoon (Nov 25). All went well with (so far) minimal side effects (mild diarrhea). My husband is still in the hospital and is being closely monitored, though.

        • November 28, 2016 at 2:16 pm
        SMacBosch
        Participant

        The first infusion of Keytruda was Friday afternoon (Nov 25). All went well with (so far) minimal side effects (mild diarrhea). My husband is still in the hospital and is being closely monitored, though.

      • November 24, 2016 at 2:12 am
      SMacBosch
      Participant

      An update: I was emailing back and forth with the oncologist today (he gave me his personal email address 🙂 ) and it appears I misheard him. He will be using Keytruda, not Yervoy.

      Although, how I misheard, I'm not sure since I was familiar with both names prior to our discussion. But, we had just been told our '6 months to a year window' was closing down to 2 months just moments before so quite possible something in my brain misfired. 

      • November 24, 2016 at 2:08 am
      SMacBosch
      Participant

      Thanks so much, Tim! I will be sure to pass along those names to the medical oncologist! He seems like the type who would be open to input from sources with some experience.

      Sandra

       

      • November 24, 2016 at 2:08 am
      SMacBosch
      Participant

      Thanks so much, Tim! I will be sure to pass along those names to the medical oncologist! He seems like the type who would be open to input from sources with some experience.

      Sandra

       

      • November 24, 2016 at 2:08 am
      SMacBosch
      Participant

      Thanks so much, Tim! I will be sure to pass along those names to the medical oncologist! He seems like the type who would be open to input from sources with some experience.

      Sandra

       

      • November 22, 2016 at 11:35 pm
      SMacBosch
      Participant

      I have heard good things about Keytruda and Opdivo. Thanks for the reminder. I will be sure to mention those options to the oncologist.

      The oncologist is in touch with my husband's lupus specialist and they have discussed options, There really aren't enough applicable stats, unfortunately. We just know it is very dangerous, which is why it was left as a last ditch effort. I have asked that they do monitor him very closely for any adverse reactions during and following immunotherapy.

      • November 22, 2016 at 11:35 pm
      SMacBosch
      Participant

      I have heard good things about Keytruda and Opdivo. Thanks for the reminder. I will be sure to mention those options to the oncologist.

      The oncologist is in touch with my husband's lupus specialist and they have discussed options, There really aren't enough applicable stats, unfortunately. We just know it is very dangerous, which is why it was left as a last ditch effort. I have asked that they do monitor him very closely for any adverse reactions during and following immunotherapy.

      • November 22, 2016 at 11:35 pm
      SMacBosch
      Participant

      I have heard good things about Keytruda and Opdivo. Thanks for the reminder. I will be sure to mention those options to the oncologist.

      The oncologist is in touch with my husband's lupus specialist and they have discussed options, There really aren't enough applicable stats, unfortunately. We just know it is very dangerous, which is why it was left as a last ditch effort. I have asked that they do monitor him very closely for any adverse reactions during and following immunotherapy.

      • November 22, 2016 at 11:28 pm
      SMacBosch
      Participant

      Unfortunately, he was BRAF negative at the primary site and in the mets. They tested both as it has changed in other cases.

      Thanks for the links to further info. I will check those out.

      Sandra

      • November 22, 2016 at 11:28 pm
      SMacBosch
      Participant

      Unfortunately, he was BRAF negative at the primary site and in the mets. They tested both as it has changed in other cases.

      Thanks for the links to further info. I will check those out.

      Sandra

      • November 22, 2016 at 11:28 pm
      SMacBosch
      Participant

      Unfortunately, he was BRAF negative at the primary site and in the mets. They tested both as it has changed in other cases.

      Thanks for the links to further info. I will check those out.

      Sandra

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