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Skunkwheez

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      Skunkwheez
      Participant

      Thank you! 

      Skunkwheez
      Participant

      Thank you! 

      Skunkwheez
      Participant

      Thank you! 

      Skunkwheez
      Participant

      Will they tell my Dad anything tommorow at his PET scan? I know someone who has stomach cancer and they came out to his wife right away to tell her. I just don't want my Mom to be alone if that's possible. 

      Skunkwheez
      Participant

      Will they tell my Dad anything tommorow at his PET scan? I know someone who has stomach cancer and they came out to his wife right away to tell her. I just don't want my Mom to be alone if that's possible. 

      Skunkwheez
      Participant

      Will they tell my Dad anything tommorow at his PET scan? I know someone who has stomach cancer and they came out to his wife right away to tell her. I just don't want my Mom to be alone if that's possible. 

      Skunkwheez
      Participant

      Thank you so much for the reply! This gives me encouragement as I thought with such a thick melanoma, my Dad's lymph nodes would show cancer and pet scan would light up for sure. I have actually read your husbands profile already since I have seen you respond to others on here. My Dad had WLE and SNB with skin graft from his arm also.  I believe the Dr. said that if Dad's PET is clear, then watch and wait. If anything shows up, he suggested Ipi/Nivo combo.

      Skunkwheez
      Participant

      Thank you so much for the reply! This gives me encouragement as I thought with such a thick melanoma, my Dad's lymph nodes would show cancer and pet scan would light up for sure. I have actually read your husbands profile already since I have seen you respond to others on here. My Dad had WLE and SNB with skin graft from his arm also.  I believe the Dr. said that if Dad's PET is clear, then watch and wait. If anything shows up, he suggested Ipi/Nivo combo.

      Skunkwheez
      Participant

      Thank you so much for the reply! This gives me encouragement as I thought with such a thick melanoma, my Dad's lymph nodes would show cancer and pet scan would light up for sure. I have actually read your husbands profile already since I have seen you respond to others on here. My Dad had WLE and SNB with skin graft from his arm also.  I believe the Dr. said that if Dad's PET is clear, then watch and wait. If anything shows up, he suggested Ipi/Nivo combo.

      Skunkwheez
      Participant

      My Dad's is also amelonotic! Thanks for your reply….it is encouraging to see so many go NED for years. I know this is something we will have to continually fight. He had bladder cancer 8 years ago, and melanoma on back five years ago (stage 1) so this is his third incidence. Thanks for the heads up on all your treatments….good to know what's out there and has success. 

      Skunkwheez
      Participant

      My Dad's is also amelonotic! Thanks for your reply….it is encouraging to see so many go NED for years. I know this is something we will have to continually fight. He had bladder cancer 8 years ago, and melanoma on back five years ago (stage 1) so this is his third incidence. Thanks for the heads up on all your treatments….good to know what's out there and has success. 

      Skunkwheez
      Participant

      My Dad's is also amelonotic! Thanks for your reply….it is encouraging to see so many go NED for years. I know this is something we will have to continually fight. He had bladder cancer 8 years ago, and melanoma on back five years ago (stage 1) so this is his third incidence. Thanks for the heads up on all your treatments….good to know what's out there and has success. 

      Skunkwheez
      Participant

      Thank you for the reply! Wow, you went one year and PET went from clear to 7 tumors. I was really happy when they said that my Dad's lymph nodes were clear (they took out 4 all the way down his neck) but then they said that instead of 1.3 mm it was 4.6 mm! I've done enough research to know that this was a major setback. Fingers crossed tommorow as he will have his first PET scan. My Dad is also going to do Ipi/Nivo combo if needed. I also got him on a whole foods diet (no meat, dairy, sugar) and he's taking apricot kernals daily. Have you heard of doing this to improve odds of recurrance?

      Skunkwheez
      Participant

      Thank you for the reply! Wow, you went one year and PET went from clear to 7 tumors. I was really happy when they said that my Dad's lymph nodes were clear (they took out 4 all the way down his neck) but then they said that instead of 1.3 mm it was 4.6 mm! I've done enough research to know that this was a major setback. Fingers crossed tommorow as he will have his first PET scan. My Dad is also going to do Ipi/Nivo combo if needed. I also got him on a whole foods diet (no meat, dairy, sugar) and he's taking apricot kernals daily. Have you heard of doing this to improve odds of recurrance?

      Skunkwheez
      Participant

      Thank you for the reply! Wow, you went one year and PET went from clear to 7 tumors. I was really happy when they said that my Dad's lymph nodes were clear (they took out 4 all the way down his neck) but then they said that instead of 1.3 mm it was 4.6 mm! I've done enough research to know that this was a major setback. Fingers crossed tommorow as he will have his first PET scan. My Dad is also going to do Ipi/Nivo combo if needed. I also got him on a whole foods diet (no meat, dairy, sugar) and he's taking apricot kernals daily. Have you heard of doing this to improve odds of recurrance?

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