The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

shonnat

Forum Replies Created

Viewing 2 reply threads
  • Replies
      shonnat
      Participant

      Hi Karen,

       

      My husband was diagnosed with 3 brain mets and now 8 months later with 10 spots. He had WBR and srs on the one that caused his problems 8 months ago. Now they refuse to give him any more srs treatment without a proper explanation except that he has had too much radiation already. But that doesn't make sense as they were looking to give him more. They only treat up to 3 at a time yet I see on this board so many that have had more treated. I am looking for a second opinion. We are in Canada and maybe their protocol is different. I want at least a more definitve explanation before I give up.

      Do you mind telling me how many of yours were treated at the same time and what size were they.

      Thanks

      Anna

      shonnat
      Participant

      Hi Karen,

       

      My husband was diagnosed with 3 brain mets and now 8 months later with 10 spots. He had WBR and srs on the one that caused his problems 8 months ago. Now they refuse to give him any more srs treatment without a proper explanation except that he has had too much radiation already. But that doesn't make sense as they were looking to give him more. They only treat up to 3 at a time yet I see on this board so many that have had more treated. I am looking for a second opinion. We are in Canada and maybe their protocol is different. I want at least a more definitve explanation before I give up.

      Do you mind telling me how many of yours were treated at the same time and what size were they.

      Thanks

      Anna

      shonnat
      Participant

      Hi Karen,

       

      My husband was diagnosed with 3 brain mets and now 8 months later with 10 spots. He had WBR and srs on the one that caused his problems 8 months ago. Now they refuse to give him any more srs treatment without a proper explanation except that he has had too much radiation already. But that doesn't make sense as they were looking to give him more. They only treat up to 3 at a time yet I see on this board so many that have had more treated. I am looking for a second opinion. We are in Canada and maybe their protocol is different. I want at least a more definitve explanation before I give up.

      Do you mind telling me how many of yours were treated at the same time and what size were they.

      Thanks

      Anna

      shonnat
      Participant

       That's very kind of you.

      I am fortunate to have lots of love in my life.

      Anna

      shonnat
      Participant

       That's very kind of you.

      I am fortunate to have lots of love in my life.

      Anna

      shonnat
      Participant

       That's very kind of you.

      I am fortunate to have lots of love in my life.

      Anna

      shonnat
      Participant

      Thanks for the info. Unfortunately my husband died yesterday from a rapid growth of his brain mets,

      He was inpirational in his approach to living with cancer.  How I hate this disease.  

      Good luck to you!

       

      Anna

      shonnat
      Participant

      Thanks for the info. Unfortunately my husband died yesterday from a rapid growth of his brain mets,

      He was inpirational in his approach to living with cancer.  How I hate this disease.  

      Good luck to you!

       

      Anna

      shonnat
      Participant

      Thanks for the info. Unfortunately my husband died yesterday from a rapid growth of his brain mets,

      He was inpirational in his approach to living with cancer.  How I hate this disease.  

      Good luck to you!

       

      Anna

      shonnat
      Participant

      Did your mothers brain mets respond to yervoy or where they treated with something else?

      How many did she have?

       

      shonnat
      Participant

      Did your mothers brain mets respond to yervoy or where they treated with something else?

      How many did she have?

       

      shonnat
      Participant

      Did your mothers brain mets respond to yervoy or where they treated with something else?

      How many did she have?

       

      shonnat
      Participant

      Thank you all for taking the time to reply.

      We have some decisons to make regarding the next step.

      I hate cancer.

      I hate Melanoma.

      Love the humasn spirit on this board

      Anna

      shonnat
      Participant

      Thank you all for taking the time to reply.

      We have some decisons to make regarding the next step.

      I hate cancer.

      I hate Melanoma.

      Love the humasn spirit on this board

      Anna

      shonnat
      Participant

      Thank you all for taking the time to reply.

      We have some decisons to make regarding the next step.

      I hate cancer.

      I hate Melanoma.

      Love the humasn spirit on this board

      Anna

Viewing 2 reply threads
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.