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Sgarceneaux
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Sgarceneaux

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      • January 11, 2018 at 12:33 am
      Sgarceneaux
      Participant

        Sorry for the non response on this in so long but seeing this post now. The test results came back from UCSF as intranodal extension of an atypical Spitz tumor. Which was great news. Since the removal of first the mole on her scalp, 2nd the removal of the lymph node and then 3rd and most recently the removal of another lymph node on the same side we seem to be in a revolving door of a lump is located on the neck, we see the ENT, they remove and send to UCSF for testing and we get the same results. The Spitz tumor continues to spread very slowly. As of now we are trying to figure out what the future holds and if another lymph node is inflamed if we also get that one removed or do we leave them in. The pediatric oncologist really is unsure how to proceed as there is not a ton of info on these things. Just curious as to how things are going on your side?

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