SarahBug
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SarahBug

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      • May 6, 2020 at 9:26 pm
      SarahBug
      Participant
      I know this is a little late on the reply but I wanted to address your last question: If you had a prior amelanotic should you expect that for future melanomas, if you were to have more? I recently had surgery for an amelanotic melanoma (lentigo maligna melanoma subtype) and the surgeon told me that the chances of having another one were almost nonexistent. That said, I will certainly be vigilant for future occurrences–since I am the one who discovered the first one. Hope you are doing well!
      • April 24, 2020 at 11:00 am
      SarahBug
      Participant
      An update: Original path report confirmed by 2nd opinion by tumor board of major hospital. Had successful Mohs surgery — which is indicated for amelanotic lentigo maligna melanoma. I look forward to getting on with life and don’t expect a recurrence of this tumor. Thank you to this board, and its “search” function, for access to good information to become a good self-advocate as I navigated from the diagnosis phase through treatment. Not many folks experience amelanotic lentigo maligna melanoma, and even though it presents differently its prognosis, when caught early, is the same as any other type. I wish all of you well.
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