@sandra_story
Forum Replies Created
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- October 14, 2016 at 2:25 am
I just wanted to say that we are in a very similar situation with my mom. We are also in Ottawa and her weight was rapidly decreasing due to the fact there was a mass pushing on her gi tract. She had her peg (stomach tube) put in about a week ago and it has helped to stabilize her wieght. Our time frame from biopsy results to the first oncologist apt to all the test they had to do after to the second meeting with him has been about a month. As of today we still haven't started treatment and I can feel your frustration with the wating. That is the hardest part and seams to be part of the system here. The only advice that has helped us is when my mom was in for test at the general I would stop by the cancer centre and ask to speak to the nurse to let her know we would take any cancelation our oncogist Dr Shedev may have. I wiouod call almost every second day to check on test progress and check for cancelations. This helped after our first meeting with the oncologist. In the span of a week we had MRI, bone scan, Ct scan, A pick ( IV line ) endoscopic probe ( This confirmed that there was a mass pushing on her gi tract causing all the digestion problems ) and finally the stomach peg or feeding tube put in. So point in hand some things are slow and some can really happen fast. Just be as proactive as you can . It can be very frustrating at times but I feel most everyone is trying there best.
My thought ps will also be with your dad and hope he can get results in soon that can start him on a plan soon.
Chris
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- October 14, 2016 at 2:25 am
I just wanted to say that we are in a very similar situation with my mom. We are also in Ottawa and her weight was rapidly decreasing due to the fact there was a mass pushing on her gi tract. She had her peg (stomach tube) put in about a week ago and it has helped to stabilize her wieght. Our time frame from biopsy results to the first oncologist apt to all the test they had to do after to the second meeting with him has been about a month. As of today we still haven't started treatment and I can feel your frustration with the wating. That is the hardest part and seams to be part of the system here. The only advice that has helped us is when my mom was in for test at the general I would stop by the cancer centre and ask to speak to the nurse to let her know we would take any cancelation our oncogist Dr Shedev may have. I wiouod call almost every second day to check on test progress and check for cancelations. This helped after our first meeting with the oncologist. In the span of a week we had MRI, bone scan, Ct scan, A pick ( IV line ) endoscopic probe ( This confirmed that there was a mass pushing on her gi tract causing all the digestion problems ) and finally the stomach peg or feeding tube put in. So point in hand some things are slow and some can really happen fast. Just be as proactive as you can . It can be very frustrating at times but I feel most everyone is trying there best.
My thought ps will also be with your dad and hope he can get results in soon that can start him on a plan soon.
Chris
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- October 14, 2016 at 2:25 am
I just wanted to say that we are in a very similar situation with my mom. We are also in Ottawa and her weight was rapidly decreasing due to the fact there was a mass pushing on her gi tract. She had her peg (stomach tube) put in about a week ago and it has helped to stabilize her wieght. Our time frame from biopsy results to the first oncologist apt to all the test they had to do after to the second meeting with him has been about a month. As of today we still haven't started treatment and I can feel your frustration with the wating. That is the hardest part and seams to be part of the system here. The only advice that has helped us is when my mom was in for test at the general I would stop by the cancer centre and ask to speak to the nurse to let her know we would take any cancelation our oncogist Dr Shedev may have. I wiouod call almost every second day to check on test progress and check for cancelations. This helped after our first meeting with the oncologist. In the span of a week we had MRI, bone scan, Ct scan, A pick ( IV line ) endoscopic probe ( This confirmed that there was a mass pushing on her gi tract causing all the digestion problems ) and finally the stomach peg or feeding tube put in. So point in hand some things are slow and some can really happen fast. Just be as proactive as you can . It can be very frustrating at times but I feel most everyone is trying there best.
My thought ps will also be with your dad and hope he can get results in soon that can start him on a plan soon.
Chris
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- October 19, 2016 at 1:02 am
Thank you for the info
I contacted the drug company and was not supprized by there answer which is they can only recommend the way in which the drug profile states. They do not want any unnesacary liability.
So we are still stuck
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- October 19, 2016 at 1:02 am
Thank you for the info
I contacted the drug company and was not supprized by there answer which is they can only recommend the way in which the drug profile states. They do not want any unnesacary liability.
So we are still stuck
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- October 19, 2016 at 1:02 am
Thank you for the info
I contacted the drug company and was not supprized by there answer which is they can only recommend the way in which the drug profile states. They do not want any unnesacary liability.
So we are still stuck
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- October 14, 2016 at 12:48 am
Hi Annie
Your post took so many of my thoughts and feelings and you wrote them exactly. This is a very scary place to be but trying to be proactive seams to help and you are absoluty right about the wating for treatment. That is what I find my mom is having the hardest time with too.
thank you for the great post and information. I'm very happy to here your mom has been doing so well and seams to be a very strong fighter. I'm so sorry that you have to go through this again with your dad and i will be thinking of him as well.
Thankn you to everyone who has replied and provided us with so much information, love, positivity, and support.
Chris
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- October 14, 2016 at 12:48 am
Hi Annie
Your post took so many of my thoughts and feelings and you wrote them exactly. This is a very scary place to be but trying to be proactive seams to help and you are absoluty right about the wating for treatment. That is what I find my mom is having the hardest time with too.
thank you for the great post and information. I'm very happy to here your mom has been doing so well and seams to be a very strong fighter. I'm so sorry that you have to go through this again with your dad and i will be thinking of him as well.
Thankn you to everyone who has replied and provided us with so much information, love, positivity, and support.
Chris
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- October 14, 2016 at 12:48 am
Hi Annie
Your post took so many of my thoughts and feelings and you wrote them exactly. This is a very scary place to be but trying to be proactive seams to help and you are absoluty right about the wating for treatment. That is what I find my mom is having the hardest time with too.
thank you for the great post and information. I'm very happy to here your mom has been doing so well and seams to be a very strong fighter. I'm so sorry that you have to go through this again with your dad and i will be thinking of him as well.
Thankn you to everyone who has replied and provided us with so much information, love, positivity, and support.
Chris
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- October 14, 2016 at 12:41 am
Hi Celeste.
Your information was very valuable informative and helpful. There is so much to take in when your new to this and I appreciate all the help and info form everyone. I will be looking forward to reading your blog and again thank you for taking the time to provide this information. It truly does help to be as informed as possible
Chris
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- October 14, 2016 at 12:41 am
Hi Celeste.
Your information was very valuable informative and helpful. There is so much to take in when your new to this and I appreciate all the help and info form everyone. I will be looking forward to reading your blog and again thank you for taking the time to provide this information. It truly does help to be as informed as possible
Chris
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- October 14, 2016 at 12:41 am
Hi Celeste.
Your information was very valuable informative and helpful. There is so much to take in when your new to this and I appreciate all the help and info form everyone. I will be looking forward to reading your blog and again thank you for taking the time to provide this information. It truly does help to be as informed as possible
Chris
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- October 14, 2016 at 12:37 am
Hi Ed,
Our oncologist at the general is dr Shedev, he has the most wonderful way of talking with us at our apt. Very positive and inspiring with the new treatments available, Although I always feel like they are rushed to move on to the next patient. Thank you for the information and will try and keep everyone updated.
Chris
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- October 14, 2016 at 12:37 am
Hi Ed,
Our oncologist at the general is dr Shedev, he has the most wonderful way of talking with us at our apt. Very positive and inspiring with the new treatments available, Although I always feel like they are rushed to move on to the next patient. Thank you for the information and will try and keep everyone updated.
Chris
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- October 14, 2016 at 12:37 am
Hi Ed,
Our oncologist at the general is dr Shedev, he has the most wonderful way of talking with us at our apt. Very positive and inspiring with the new treatments available, Although I always feel like they are rushed to move on to the next patient. Thank you for the information and will try and keep everyone updated.
Chris
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