SamAugusta

I am sorry that I haven't updated everyone.

Margaret had 3 high dose radiation treatments given vaginally, ending on October 20.  She has been very uncomfortable, but is healing.  They will do reconstruction in about a year.

They are doing a double radical mastectomy next week for the breast cancer.  It was caught when they did the PET scan and is very small. 

They will be going another PET in about 8 weeks, and one every 4 months thereafter.  It seems that all we are to do is wait and hope.

Genetic testing came back negative.

I am sorry that I haven't updated everyone.

Margaret had 3 high dose radiation treatments given vaginally, ending on October 20.  She has been very uncomfortable, but is healing.  They will do reconstruction in about a year.

They are doing a double radical mastectomy next week for the breast cancer.  It was caught when they did the PET scan and is very small. 

They will be going another PET in about 8 weeks, and one every 4 months thereafter.  It seems that all we are to do is wait and hope.

Genetic testing came back negative.

I am sorry that I haven't updated everyone.

Margaret had 3 high dose radiation treatments given vaginally, ending on October 20.  She has been very uncomfortable, but is healing.  They will do reconstruction in about a year.

They are doing a double radical mastectomy next week for the breast cancer.  It was caught when they did the PET scan and is very small. 

They will be going another PET in about 8 weeks, and one every 4 months thereafter.  It seems that all we are to do is wait and hope.

Genetic testing came back negative.

I am sorry that I haven't updated everyone.

Margaret had 3 high dose radiation treatments given vaginally, ending on October 20.  She has been very uncomfortable, but is healing.  They will do reconstruction in about a year.

They are doing a double radical mastectomy next week for the breast cancer.  It was caught when they did the PET scan and is very small. 

They will be going another PET in about 8 weeks, and one every 4 months thereafter.  It seems that all we are to do is wait and hope.

Genetic testing came back negative.

My wife was operated on 4 weeks ago for vaginal mucosal melanoma.  The path report indicated that the tumor was 5.5X5X3.5 cm, with clean margins.  They are recommending high dose radiation for 6 weeks.  I have very little info and would appreciate any direction and information you can give.

Becky,

Is your son having problems with dry mouth?  I had squamous tonsil cancer 5 years ago.  They irradiated away my salivary glands and most of my taste buds.  I have a lot of info on dry mouth and dental care if you want it.

Sam

Becky,

Is your son having problems with dry mouth?  I had squamous tonsil cancer 5 years ago.  They irradiated away my salivary glands and most of my taste buds.  I have a lot of info on dry mouth and dental care if you want it.

Sam

Thanks to all of you.  We are seeing the oncologist tomorrow and are fully armed with questions.  I'll let you know what he says. 

Thanks to all of you.  We are seeing the oncologist tomorrow and are fully armed with questions.  I'll let you know what he says. 

Thanks to all of you.  We are seeing the oncologist tomorrow and are fully armed with questions.  I'll let you know what he says. 

Thanks to all of you.  We are seeing the oncologist tomorrow and are fully armed with questions.  I'll let you know what he says. 

I spoke with someone at mayo in Jacksonville yesterday.  I went with my wife today to her doctors.  They want to do 4 high dosage radiation treatments over 4 weeks.  That's all.   Her Gyn oncologist has a classmate that was the head gyn oncologist at Anderson, and he concurred.  That seems pretty simplistic. The radiation oncologist was very straightforward.  This is to help destroy any cells that they might have missed, but won't help if there is systemic problem. 

I had stage 4 tonsil cancer 5 years ago, and I learned that the doctors know surprisingly little about how cancers respond in individuals.  By that, I mean that everyone responds differently, and they don't seem to be able to anticipate the various outcomes that patients have.  I had lots of complications, lost 65 pounds, and was subsitantially weaker for about 18 months. It's all by the protocol.  And, as you point out, there isn't a protocol for this. 

It sounds like you have become your own advocate, and I applaud you for that.  I appreciate your sharing your experience with me.  My wife meets with the General Oncologist next week.  He is a very close friend, and I would like to share your experience with him to see if he thinks it makes sense for us to look at the drugs you mentioned.

Keep fighting.  One of these days we will be attacking tumors at the cellular level.  You, and the others on this board, are doing important research to move things forward.  i'll let you know how things progress.

Sam

I spoke with someone at mayo in Jacksonville yesterday.  I went with my wife today to her doctors.  They want to do 4 high dosage radiation treatments over 4 weeks.  That's all.   Her Gyn oncologist has a classmate that was the head gyn oncologist at Anderson, and he concurred.  That seems pretty simplistic. The radiation oncologist was very straightforward.  This is to help destroy any cells that they might have missed, but won't help if there is systemic problem. 

I had stage 4 tonsil cancer 5 years ago, and I learned that the doctors know surprisingly little about how cancers respond in individuals.  By that, I mean that everyone responds differently, and they don't seem to be able to anticipate the various outcomes that patients have.  I had lots of complications, lost 65 pounds, and was subsitantially weaker for about 18 months. It's all by the protocol.  And, as you point out, there isn't a protocol for this. 

It sounds like you have become your own advocate, and I applaud you for that.  I appreciate your sharing your experience with me.  My wife meets with the General Oncologist next week.  He is a very close friend, and I would like to share your experience with him to see if he thinks it makes sense for us to look at the drugs you mentioned.

Keep fighting.  One of these days we will be attacking tumors at the cellular level.  You, and the others on this board, are doing important research to move things forward.  i'll let you know how things progress.

Sam