@ronald-duclos
Forum Replies Created
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- September 22, 2015 at 12:45 am
monitor the diarrhea, I got it right away and they stopped the yervoy because I was over 7 episodes a day. Keep it under control with anti-diarrhea meds. At the same time you don't want to take too much of that because you can have some tearing issues in the colon. My doctor is giving it a second chance because one tumor disappeared and I am only taking 1 immodum per day right now. but I am already having issues again. so I am trying to keep that by maintaining an easy diet. It is hard to find what to eat. definately have bananas, potatoes and avocados on your list to help keep potasium levels up. waatch other electrolytes and stuff. Hope that helps.
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- September 22, 2015 at 12:45 am
monitor the diarrhea, I got it right away and they stopped the yervoy because I was over 7 episodes a day. Keep it under control with anti-diarrhea meds. At the same time you don't want to take too much of that because you can have some tearing issues in the colon. My doctor is giving it a second chance because one tumor disappeared and I am only taking 1 immodum per day right now. but I am already having issues again. so I am trying to keep that by maintaining an easy diet. It is hard to find what to eat. definately have bananas, potatoes and avocados on your list to help keep potasium levels up. waatch other electrolytes and stuff. Hope that helps.
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- September 22, 2015 at 12:45 am
monitor the diarrhea, I got it right away and they stopped the yervoy because I was over 7 episodes a day. Keep it under control with anti-diarrhea meds. At the same time you don't want to take too much of that because you can have some tearing issues in the colon. My doctor is giving it a second chance because one tumor disappeared and I am only taking 1 immodum per day right now. but I am already having issues again. so I am trying to keep that by maintaining an easy diet. It is hard to find what to eat. definately have bananas, potatoes and avocados on your list to help keep potasium levels up. waatch other electrolytes and stuff. Hope that helps.
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- September 22, 2015 at 12:30 am
Helo, I was on a Clinical Trial for Yervoy and bevacizumab. I developed diarrhea immediately and they booted me off of the trial. Make sure that you do not have more than 7 episodes of diarrhea per day because that was their secret number that they never told me. the treatment was actually working because 1 met disappeared. definatly figure out your diet. I am still figuring mine out but I also have IBS that I never wanted to admit I have. So it is important to find out if you have any types of food that could complicate digestive problems. stay away from pepper, garlic,onions, and the obvious- spicy foods. I even tried simple salads with no dressings and that didn't work for me. So i am forced to take immodium but I can only take 1 per day or my system gets stopped up and can burst. So just keep an eye on those things. You will know if you get Yervoy. Diarrhea is the most common and most dangerous side affect. Keep it under control and let you doctor know if you have abdominal pain. I hope this helps you and God bless you through your trial.
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- September 22, 2015 at 12:30 am
Helo, I was on a Clinical Trial for Yervoy and bevacizumab. I developed diarrhea immediately and they booted me off of the trial. Make sure that you do not have more than 7 episodes of diarrhea per day because that was their secret number that they never told me. the treatment was actually working because 1 met disappeared. definatly figure out your diet. I am still figuring mine out but I also have IBS that I never wanted to admit I have. So it is important to find out if you have any types of food that could complicate digestive problems. stay away from pepper, garlic,onions, and the obvious- spicy foods. I even tried simple salads with no dressings and that didn't work for me. So i am forced to take immodium but I can only take 1 per day or my system gets stopped up and can burst. So just keep an eye on those things. You will know if you get Yervoy. Diarrhea is the most common and most dangerous side affect. Keep it under control and let you doctor know if you have abdominal pain. I hope this helps you and God bless you through your trial.
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- September 22, 2015 at 12:30 am
Helo, I was on a Clinical Trial for Yervoy and bevacizumab. I developed diarrhea immediately and they booted me off of the trial. Make sure that you do not have more than 7 episodes of diarrhea per day because that was their secret number that they never told me. the treatment was actually working because 1 met disappeared. definatly figure out your diet. I am still figuring mine out but I also have IBS that I never wanted to admit I have. So it is important to find out if you have any types of food that could complicate digestive problems. stay away from pepper, garlic,onions, and the obvious- spicy foods. I even tried simple salads with no dressings and that didn't work for me. So i am forced to take immodium but I can only take 1 per day or my system gets stopped up and can burst. So just keep an eye on those things. You will know if you get Yervoy. Diarrhea is the most common and most dangerous side affect. Keep it under control and let you doctor know if you have abdominal pain. I hope this helps you and God bless you through your trial.
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- September 20, 2016 at 9:52 pm
Thank you for this report. As a science oriented person i prefer these type of study based reports because they show facts and statistically sound results and dont skew the data by just one persons opinion.
However, I do indead want to advise as many people as possible away from the old treatments of biochemo and IL2 because the statistical data from many years of use doesn't support continuing its use. I found out too late that fact and now I am on the last available treatment for me. yervoy, Keytruda, and PD1 are the best treatments and you should start them if you are stage 3 or more. Maybe even stage 2 not sure of that but I do know that the other treatments don't work. even if there is a response it is always shown to return and since it is very difficult to detect you can get to stage 4 very quickly. this comment is based on the head of oncology at UCLA and his comments to me. I should have listened to him.
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- September 20, 2016 at 9:52 pm
Thank you for this report. As a science oriented person i prefer these type of study based reports because they show facts and statistically sound results and dont skew the data by just one persons opinion.
However, I do indead want to advise as many people as possible away from the old treatments of biochemo and IL2 because the statistical data from many years of use doesn't support continuing its use. I found out too late that fact and now I am on the last available treatment for me. yervoy, Keytruda, and PD1 are the best treatments and you should start them if you are stage 3 or more. Maybe even stage 2 not sure of that but I do know that the other treatments don't work. even if there is a response it is always shown to return and since it is very difficult to detect you can get to stage 4 very quickly. this comment is based on the head of oncology at UCLA and his comments to me. I should have listened to him.
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- September 20, 2016 at 9:52 pm
Thank you for this report. As a science oriented person i prefer these type of study based reports because they show facts and statistically sound results and dont skew the data by just one persons opinion.
However, I do indead want to advise as many people as possible away from the old treatments of biochemo and IL2 because the statistical data from many years of use doesn't support continuing its use. I found out too late that fact and now I am on the last available treatment for me. yervoy, Keytruda, and PD1 are the best treatments and you should start them if you are stage 3 or more. Maybe even stage 2 not sure of that but I do know that the other treatments don't work. even if there is a response it is always shown to return and since it is very difficult to detect you can get to stage 4 very quickly. this comment is based on the head of oncology at UCLA and his comments to me. I should have listened to him.
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- September 20, 2016 at 9:27 pm
Thank you so much for the post. I haven't been able to do much for past two years because we found out that I was misdiagnosed initially. after the biochemo they found a large tumor in my kidney that was there all along. I have been following the Kaiser protocol and taking every drug they give. a long story short I should have listened to the doctor at UCLA and started with yervoy. i would have avoided the brain METS i have now. yervoy worked for the body but not my brain and so we have tried BRAF inhibitors which also worked for a little while but now I am on Keytruda. hope to be able to get this under control but the odds are not in my favor. You are right about the staff at Riverside. Very nice, helpful, and very on top of what you need. I have studied the C. Diff and I am so sorry that she has this. please keep abreast of this because once you get that bacteria it doesn't go away. if your normal flora in the intestinal tract is reduced, this bateria will take over and it is very bad.
Take care of yourselves and put your treatments priorities on Yervoy, keytruda and PD-1.
Ron
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- September 20, 2016 at 9:27 pm
Thank you so much for the post. I haven't been able to do much for past two years because we found out that I was misdiagnosed initially. after the biochemo they found a large tumor in my kidney that was there all along. I have been following the Kaiser protocol and taking every drug they give. a long story short I should have listened to the doctor at UCLA and started with yervoy. i would have avoided the brain METS i have now. yervoy worked for the body but not my brain and so we have tried BRAF inhibitors which also worked for a little while but now I am on Keytruda. hope to be able to get this under control but the odds are not in my favor. You are right about the staff at Riverside. Very nice, helpful, and very on top of what you need. I have studied the C. Diff and I am so sorry that she has this. please keep abreast of this because once you get that bacteria it doesn't go away. if your normal flora in the intestinal tract is reduced, this bateria will take over and it is very bad.
Take care of yourselves and put your treatments priorities on Yervoy, keytruda and PD-1.
Ron
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- September 20, 2016 at 9:27 pm
Thank you so much for the post. I haven't been able to do much for past two years because we found out that I was misdiagnosed initially. after the biochemo they found a large tumor in my kidney that was there all along. I have been following the Kaiser protocol and taking every drug they give. a long story short I should have listened to the doctor at UCLA and started with yervoy. i would have avoided the brain METS i have now. yervoy worked for the body but not my brain and so we have tried BRAF inhibitors which also worked for a little while but now I am on Keytruda. hope to be able to get this under control but the odds are not in my favor. You are right about the staff at Riverside. Very nice, helpful, and very on top of what you need. I have studied the C. Diff and I am so sorry that she has this. please keep abreast of this because once you get that bacteria it doesn't go away. if your normal flora in the intestinal tract is reduced, this bateria will take over and it is very bad.
Take care of yourselves and put your treatments priorities on Yervoy, keytruda and PD-1.
Ron
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- September 28, 2014 at 2:51 am
thank you so much for your help. I have done the research on the different treatments. there is still a need to test the new drugs more as ajuvant treatment and with other drugs because the stand alone doesn't seem to give much more help than the older drugs. At this time there is no trial to compare the new drugs to the biochemo and so there isn't really any direct data that points to either direction being better. certainly the side affects will be difficult but I am not afraid of them. Once again, thanks for all the answers here, I deffinately got the info that I needed.
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- September 28, 2014 at 2:51 am
thank you so much for your help. I have done the research on the different treatments. there is still a need to test the new drugs more as ajuvant treatment and with other drugs because the stand alone doesn't seem to give much more help than the older drugs. At this time there is no trial to compare the new drugs to the biochemo and so there isn't really any direct data that points to either direction being better. certainly the side affects will be difficult but I am not afraid of them. Once again, thanks for all the answers here, I deffinately got the info that I needed.
-
- September 28, 2014 at 2:51 am
thank you so much for your help. I have done the research on the different treatments. there is still a need to test the new drugs more as ajuvant treatment and with other drugs because the stand alone doesn't seem to give much more help than the older drugs. At this time there is no trial to compare the new drugs to the biochemo and so there isn't really any direct data that points to either direction being better. certainly the side affects will be difficult but I am not afraid of them. Once again, thanks for all the answers here, I deffinately got the info that I needed.
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