Rod

i too suffered hypophysitis from Ipi and have been on Hydrocortisone, Levothyroxine, testosterone for 3 years and have been told by my endo that most likely it is permanent and will require lifelong hormone replacement.

My symptoms and treatment is very similar to Paul's.

I was only  diagnosed and treated after going into adrenal crisis.

I urge you to be cautious after damage is done to the pituitary it more than likely permanent.

My symptoms and treatment is very similar to Paul's.

I was only  diagnosed and treated after going into adrenal crisis.

I urge you to be cautious after damage is done to the pituitary it more than likely permanent.

My symptoms and treatment is very similar to Paul's.

I was only  diagnosed and treated after going into adrenal crisis.

I urge you to be cautious after damage is done to the pituitary it more than likely permanent.

Yes, 2 years out from last ippi treatment. 

I have pituitary failure with pretty much same symptoms you described. 

Yes, 2 years out from last ippi treatment. 

I have pituitary failure with pretty much same symptoms you described. 

Yes, 2 years out from last ippi treatment. 

I have pituitary failure with pretty much same symptoms you described. 

I was a participant in the adjuvant drug trial for ipi vs interferon. I had a left neck disection before starting the ipi.

I was only given 2 infusions of 10 mg ipi before the adrenal crisis and knocked out of the trial.

March 2015 was my 2 year anniversary with NED.

I was a participant in the adjuvant drug trial for ipi vs interferon. I had a left neck disection before starting the ipi.

I was only given 2 infusions of 10 mg ipi before the adrenal crisis and knocked out of the trial.

March 2015 was my 2 year anniversary with NED.

I was a participant in the adjuvant drug trial for ipi vs interferon. I had a left neck disection before starting the ipi.

I was only given 2 infusions of 10 mg ipi before the adrenal crisis and knocked out of the trial.

March 2015 was my 2 year anniversary with NED.

I take 20mg of Hydrocortisone a day. 15mg in morning and 5mg at 5PM.

100 mcg Levothyroxine in the AM for my thyroid.

Also I am on Testoserone therapy.

I was went into adrenal crisis in the Oncology office when getting blood drawn for my 3rd Ipi treatment so I know about drug therapy a must.

My Endocrinologist has told me damage is permanent.

If it helps I had a physical job for over 30 years that I can longer do.

I take 20mg of Hydrocortisone a day. 15mg in morning and 5mg at 5PM.

100 mcg Levothyroxine in the AM for my thyroid.

Also I am on Testoserone therapy.

I was went into adrenal crisis in the Oncology office when getting blood drawn for my 3rd Ipi treatment so I know about drug therapy a must.

My Endocrinologist has told me damage is permanent.

If it helps I had a physical job for over 30 years that I can longer do.

I take 20mg of Hydrocortisone a day. 15mg in morning and 5mg at 5PM.

100 mcg Levothyroxine in the AM for my thyroid.

Also I am on Testoserone therapy.

I was went into adrenal crisis in the Oncology office when getting blood drawn for my 3rd Ipi treatment so I know about drug therapy a must.

My Endocrinologist has told me damage is permanent.

If it helps I had a physical job for over 30 years that I can longer do.

Stage 3C

Diagnosed for second time  10/13

Resected lymph nodes, 2 out of 46 positive

2 infusions of ipi, taken off trial due to side effects 10 mg dose

Started in 12/14 working out and watching my diet

NED since 12/13

Stay strong

Rod

Stage 3C

Diagnosed for second time  10/13

Resected lymph nodes, 2 out of 46 positive

2 infusions of ipi, taken off trial due to side effects 10 mg dose

Started in 12/14 working out and watching my diet

NED since 12/13

Stay strong

Rod