Redstar.20
REGISTER
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Redstar.20

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      • April 25, 2020 at 3:48 pm
      Redstar.20
      Participant
      Thank you for sharing a part of you journey. That helps me in many ways.
      Thank you
      • April 25, 2020 at 3:47 pm
      Redstar.20
      Participant
      Thank you! This journey is hard and stressful and scarry. It is helpful to hear from others who have gone through this war as they have a different perspective than the medical team. It is encouraging to read and listen to those that understand what one goes through in this war. I thank you for being thorough, and discussing the complex issues. I appreciate your input very much. So again, Thank you!
      • April 23, 2020 at 3:18 am
      Redstar.20
      Participant
      After my side effects continued to spiral down hill, my oncologist and I decided to treat with corticosteroids. Going to have tests done with an endocrinologist for adrenal gland insufficiency, as my current side effects on infusion #2 are very very similar to those symptoms.
      I also realize not everything I experience is Opdivo related, however I am very aware of my body and very aware of new onsets, triggers etc. I had the infusion and within 4 hours I was reacting. We are definitely postponing any future infusions until we have a clearer picture of my lab work and further testing. Further checks to see if autoimmune disease might also be a contributing factor. Unfortunately I seem to find myself on the rare end of the medical spectrum on many levels.
      I have learned a lot from your posts and reading other posts as well. Thank you
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