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Redstar.20

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      Redstar.20
      Participant
        Thank you for sharing a part of you journey. That helps me in many ways.
        Thank you
        Redstar.20
        Participant
          Thank you! This journey is hard and stressful and scarry. It is helpful to hear from others who have gone through this war as they have a different perspective than the medical team. It is encouraging to read and listen to those that understand what one goes through in this war. I thank you for being thorough, and discussing the complex issues. I appreciate your input very much. So again, Thank you!
          Redstar.20
          Participant
            After my side effects continued to spiral down hill, my oncologist and I decided to treat with corticosteroids. Going to have tests done with an endocrinologist for adrenal gland insufficiency, as my current side effects on infusion #2 are very very similar to those symptoms.
            I also realize not everything I experience is Opdivo related, however I am very aware of my body and very aware of new onsets, triggers etc. I had the infusion and within 4 hours I was reacting. We are definitely postponing any future infusions until we have a clearer picture of my lab work and further testing. Further checks to see if autoimmune disease might also be a contributing factor. Unfortunately I seem to find myself on the rare end of the medical spectrum on many levels.
            I have learned a lot from your posts and reading other posts as well. Thank you
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