Radhe

Thanks for the info – and Janner, great link – thanks for sharing that. It is helpful to hear from others who are dealing with this sucessfully on an ongoing basis.

Indeed, I have had mole photos taken not long after the first diagnosis and have digital images as well.  They are helpful, however, even with these photos my moles change quickly and frequently, so I have had a high number of biopsies. I feel very confident that I have a good healthcare team in place and have done a lot of research and networking to find good docs. Survival rates in people with multiple primaries are higher, as I understand it, due to increases in dilligance of follow up care – and you can't get much more neurotic than I am, so I feel good on that front too.

Anyone have issues with fatigue on an ongoing basis, even with early stage thin melanomas? After WLE's I am wiped out, even with small sites, and feel a little like a wuss sometimes when I'm in bed for 3 days after 20 stitches.  Even just generally, I have been a lot more tired in the past few years. It is one of those random symptoms that my docs just sort of shrug at.

Thanks for the info – and Janner, great link – thanks for sharing that. It is helpful to hear from others who are dealing with this sucessfully on an ongoing basis.

Indeed, I have had mole photos taken not long after the first diagnosis and have digital images as well.  They are helpful, however, even with these photos my moles change quickly and frequently, so I have had a high number of biopsies. I feel very confident that I have a good healthcare team in place and have done a lot of research and networking to find good docs. Survival rates in people with multiple primaries are higher, as I understand it, due to increases in dilligance of follow up care – and you can't get much more neurotic than I am, so I feel good on that front too.

Anyone have issues with fatigue on an ongoing basis, even with early stage thin melanomas? After WLE's I am wiped out, even with small sites, and feel a little like a wuss sometimes when I'm in bed for 3 days after 20 stitches.  Even just generally, I have been a lot more tired in the past few years. It is one of those random symptoms that my docs just sort of shrug at.

Michael –

Glad you are doing well.  And yes, I am also in the camp of the more I know the better I feel, but knowledge is double-edged to be sure. And I appreciate your caution about boards like this. Indeed I have vacillated between finding them at times more helpful and at times less helpful.

Just a few things: I have body photography/ mole mapping. The issue is that my moles tend to change and grow rapidly so a high number of biopsies are still in order. Also, my first primary was a .43/clark III, my 2nd primary was in situ, and I've had more moderate to severe nevi taken off than I can count with 6 needing WLE's. (Severe)

I appreciate the discussion about the impact of mental health and stress on well being and energy levels. I am (ironically) a clinical health psychologist, so I know a little bit about all that, or at least enough to have had a doctorate conferred. (That is also double-edged as I am sensitive to how much subjectivity there is in medicine). I have also been to the depression rodeo, so to speak, and this is not that.   I have a strong mindfulness meditation practice and a good amount of understanding about my feeling and emotional tones. There is, of course, a bidirectional relationship, but this seems like something all on its own separate from mood, and was just curious if any others had experienced something similar.

Michael –

Glad you are doing well.  And yes, I am also in the camp of the more I know the better I feel, but knowledge is double-edged to be sure. And I appreciate your caution about boards like this. Indeed I have vacillated between finding them at times more helpful and at times less helpful.

Just a few things: I have body photography/ mole mapping. The issue is that my moles tend to change and grow rapidly so a high number of biopsies are still in order. Also, my first primary was a .43/clark III, my 2nd primary was in situ, and I've had more moderate to severe nevi taken off than I can count with 6 needing WLE's. (Severe)

I appreciate the discussion about the impact of mental health and stress on well being and energy levels. I am (ironically) a clinical health psychologist, so I know a little bit about all that, or at least enough to have had a doctorate conferred. (That is also double-edged as I am sensitive to how much subjectivity there is in medicine). I have also been to the depression rodeo, so to speak, and this is not that.   I have a strong mindfulness meditation practice and a good amount of understanding about my feeling and emotional tones. There is, of course, a bidirectional relationship, but this seems like something all on its own separate from mood, and was just curious if any others had experienced something similar.