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profgal43
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profgal43

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      • January 17, 2014 at 1:56 pm
      profgal43
      Participant

        Love your attitude!  You will conquer this.  Thanks for sharing your story.  Karen

        • January 17, 2014 at 1:56 pm
        profgal43
        Participant

          Love your attitude!  You will conquer this.  Thanks for sharing your story.  Karen

          • January 17, 2014 at 1:56 pm
          profgal43
          Participant

            Love your attitude!  You will conquer this.  Thanks for sharing your story.  Karen

            • January 23, 2014 at 12:36 am
            profgal43
            Participant

              Hi Leigh, I can definitely identify with your feelings of uncertainty. I am also early stage and seeking answers for future prevention. My situation is complicated and puzzling. I have had four Stage One Melanomas all below the knee on the front of my right  leg. I had two wide excised today. The docs say they are not " reoccurrences' but they don't  know why that area keeps growing melanomas and prob will in the future. Given the multiple occurrences. The doc is going to try a topical medication Imiquimod with me, it's experimental but if it works it'll be awesome.

              Anyway, if you could use someone for support and to share info, I would be happy to send my email address.  Take care!! Karen

               

               

              • January 23, 2014 at 12:36 am
              profgal43
              Participant

                Hi Leigh, I can definitely identify with your feelings of uncertainty. I am also early stage and seeking answers for future prevention. My situation is complicated and puzzling. I have had four Stage One Melanomas all below the knee on the front of my right  leg. I had two wide excised today. The docs say they are not " reoccurrences' but they don't  know why that area keeps growing melanomas and prob will in the future. Given the multiple occurrences. The doc is going to try a topical medication Imiquimod with me, it's experimental but if it works it'll be awesome.

                Anyway, if you could use someone for support and to share info, I would be happy to send my email address.  Take care!! Karen

                 

                 

                • January 23, 2014 at 12:36 am
                profgal43
                Participant

                  Hi Leigh, I can definitely identify with your feelings of uncertainty. I am also early stage and seeking answers for future prevention. My situation is complicated and puzzling. I have had four Stage One Melanomas all below the knee on the front of my right  leg. I had two wide excised today. The docs say they are not " reoccurrences' but they don't  know why that area keeps growing melanomas and prob will in the future. Given the multiple occurrences. The doc is going to try a topical medication Imiquimod with me, it's experimental but if it works it'll be awesome.

                  Anyway, if you could use someone for support and to share info, I would be happy to send my email address.  Take care!! Karen

                   

                   

                  • January 23, 2014 at 12:23 am
                  profgal43
                  Participant

                    I had two wide excisions today and about 12 more punch biopsies.  If anyone wants support and has some to share, I would be happy to share information and keep in touch.  I don't know anyone with melanoma and mine will be back. Let me know. Thanks!

                    • January 23, 2014 at 12:23 am
                    profgal43
                    Participant

                      I had two wide excisions today and about 12 more punch biopsies.  If anyone wants support and has some to share, I would be happy to share information and keep in touch.  I don't know anyone with melanoma and mine will be back. Let me know. Thanks!

                      • January 23, 2014 at 12:23 am
                      profgal43
                      Participant

                        I had two wide excisions today and about 12 more punch biopsies.  If anyone wants support and has some to share, I would be happy to share information and keep in touch.  I don't know anyone with melanoma and mine will be back. Let me know. Thanks!

                        • January 17, 2014 at 3:29 pm
                        profgal43
                        Participant

                          Thank you, Janner, for your response.  This is one of those situations where I would definitely prefer not to be unique!! I really want to understand why this is happening, and what the long term implications might be, but there are no answers.  I agree the trial with imiquimod is worth a shot. My doctor has explained that it is experimental but he is optimistic that it could work in my case.  It's very surprising to me, both in my case and in the stories I have read from others here how much we still don't know about melanoma.  As my doc explained, there isn't a lot of money to be made in melanoma research so trials are small and few and far between. 

                          My melanoma would be considered superficial spreading melanoma I believe.  

                          Thank you again for your response! 

                          Be well!  Karen

                          • January 17, 2014 at 3:29 pm
                          profgal43
                          Participant

                            Thank you, Janner, for your response.  This is one of those situations where I would definitely prefer not to be unique!! I really want to understand why this is happening, and what the long term implications might be, but there are no answers.  I agree the trial with imiquimod is worth a shot. My doctor has explained that it is experimental but he is optimistic that it could work in my case.  It's very surprising to me, both in my case and in the stories I have read from others here how much we still don't know about melanoma.  As my doc explained, there isn't a lot of money to be made in melanoma research so trials are small and few and far between. 

                            My melanoma would be considered superficial spreading melanoma I believe.  

                            Thank you again for your response! 

                            Be well!  Karen

                            • January 17, 2014 at 3:29 pm
                            profgal43
                            Participant

                              Thank you, Janner, for your response.  This is one of those situations where I would definitely prefer not to be unique!! I really want to understand why this is happening, and what the long term implications might be, but there are no answers.  I agree the trial with imiquimod is worth a shot. My doctor has explained that it is experimental but he is optimistic that it could work in my case.  It's very surprising to me, both in my case and in the stories I have read from others here how much we still don't know about melanoma.  As my doc explained, there isn't a lot of money to be made in melanoma research so trials are small and few and far between. 

                              My melanoma would be considered superficial spreading melanoma I believe.  

                              Thank you again for your response! 

                              Be well!  Karen

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