MRF-Logo2019-Horizontal-RGB
Phyllisd
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Phyllisd

Forum Replies Created

Viewing 0 reply threads
  • Replies
      • August 11, 2020 at 6:22 pm
      Phyllisd
      Participant
        thank you all for your responses… they sound encouraging…. Im sorry about the anonymous, I will have to change it to dina . It helps to hear from others, We thought that maybe the tumors came because of the immunotherapy.. He is doing better than me I have to say.. positive attitude helps too.. I will get there…
        • August 17, 2020 at 4:25 pm
        Phyllisd
        Participant
          Rocco, I hope and pray that Dana Farber can help … what effects has anyone had during treatments???? my husband seems is tired and said he is lazy! i dont want to force him to get some excerise but Id like to get him out….
          • August 14, 2020 at 10:16 pm
          Phyllisd
          Participant
            We are in the same boat! I feel for you both.. Husband has stage 3c as well , diagnosed in May during this nasty pandemic. has had just two treatments of nivolumab but today added ipilmunab as he found more melanoma on orginal site.. I also need to go back to work in a school where i work with 3 and 4 year old preschoolers… I am worried about bringing something home to him, but i need to work for my insurance….I’m looking for answers as well… wish this whole pandemic was over!!!! this is added stress we do not need!
            • August 14, 2020 at 12:15 am
            Phyllisd
            Participant
              Jackie, Thank you for your support.. I got the prescription for lexapro but i didnt take it! I got scared after reading all the side effects and reviews of what people were saying… sounds scarier than the aniexty!!! I am doing mediation music yoga poses, talking to my family and friends,, and taking melatonin at night.. idk .. I may start taking 5mg. still not sure… why and I more axnious thn my husband, who actually has the cancer! this group has been great and Im glad i found it… thanks you for your help and hugs ! hugs to you as well
              • August 12, 2020 at 5:12 pm
              Phyllisd
              Participant
                thats great news! Medicines have come a long way for sure
                • August 12, 2020 at 5:09 pm
                Phyllisd
                Participant
                  hi Jackie, I agree the caretaker role is difficult.. I just got a prescription for an anxiety medicine as i feel overwhelmed and worry constantly.. good to talk to others… How is your husband doing now? and how are you doing?
                  • August 12, 2020 at 5:05 pm
                  Phyllisd
                  Participant
                    we are going to go to Dana Farber Cancer center in Boston next week. I pray they have answers for us… I like your advice.. that is good news that your tumors shrank and hope for the others to do the same..
                Viewing 0 reply threads