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Pennie Jo

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      Pennie Jo
      Participant

        My sister is now In her 3rd week of the combo. She has experienced the spike in fevers now controlled w steroids. Her other side effects are nausea / vomiting, constipation (best to use Miralax daily!!)  cronique fatigue, occasional head aches, blurred vision and now dizziness. She was previously taking Zelboraf – to which she responded very well the first few weeks. Unfortunately it ran its course after 4 1/2 months. She is at a very critical stage IV – her oncologist said her level of progression is one of the worst they have experienced in his office. The combo does not seem to be working for her. She is continuing to see more rapid growing of knots and other challenges. She has nodules on her spine (several), ribs and her temple as well as multiple throughout her torso area. We are trying the combo for another 2 weeks to see if she responds. This group has been one of the best things I have encountered over the last 6 months! However, the one thing I have discovered on this journey is – every single case is very different and each person responds to the same treatment differently. Gods graces to you as you continue to fight!!! 

        Pennie 

        Pennie Jo
        Participant

          My sister is now In her 3rd week of the combo. She has experienced the spike in fevers now controlled w steroids. Her other side effects are nausea / vomiting, constipation (best to use Miralax daily!!)  cronique fatigue, occasional head aches, blurred vision and now dizziness. She was previously taking Zelboraf – to which she responded very well the first few weeks. Unfortunately it ran its course after 4 1/2 months. She is at a very critical stage IV – her oncologist said her level of progression is one of the worst they have experienced in his office. The combo does not seem to be working for her. She is continuing to see more rapid growing of knots and other challenges. She has nodules on her spine (several), ribs and her temple as well as multiple throughout her torso area. We are trying the combo for another 2 weeks to see if she responds. This group has been one of the best things I have encountered over the last 6 months! However, the one thing I have discovered on this journey is – every single case is very different and each person responds to the same treatment differently. Gods graces to you as you continue to fight!!! 

          Pennie 

          Pennie Jo
          Participant

            My sister is now In her 3rd week of the combo. She has experienced the spike in fevers now controlled w steroids. Her other side effects are nausea / vomiting, constipation (best to use Miralax daily!!)  cronique fatigue, occasional head aches, blurred vision and now dizziness. She was previously taking Zelboraf – to which she responded very well the first few weeks. Unfortunately it ran its course after 4 1/2 months. She is at a very critical stage IV – her oncologist said her level of progression is one of the worst they have experienced in his office. The combo does not seem to be working for her. She is continuing to see more rapid growing of knots and other challenges. She has nodules on her spine (several), ribs and her temple as well as multiple throughout her torso area. We are trying the combo for another 2 weeks to see if she responds. This group has been one of the best things I have encountered over the last 6 months! However, the one thing I have discovered on this journey is – every single case is very different and each person responds to the same treatment differently. Gods graces to you as you continue to fight!!! 

            Pennie 

            Pennie Jo
            Participant

              For my sisters communication – we have used carepages.com. It is a wonderful outlet that you can make private and chose who joins the page. As you stated it us much easier to send info to several at once so you are not repeating everything or you don't have to worry about telling one person something you didn't tell the other! One thing I found VERY important and beneficial was educating everyone exactly what Metastatic Melanoma is …. Not just another skin cancer. And that symptoms and treatments are none like any other cancer!!! Once I explained in details, so many of her friends and family members where so much more understanding! Best wishes to you and yours with this journey! God Bless 

              Pennie Jo
              Participant

                For my sisters communication – we have used carepages.com. It is a wonderful outlet that you can make private and chose who joins the page. As you stated it us much easier to send info to several at once so you are not repeating everything or you don't have to worry about telling one person something you didn't tell the other! One thing I found VERY important and beneficial was educating everyone exactly what Metastatic Melanoma is …. Not just another skin cancer. And that symptoms and treatments are none like any other cancer!!! Once I explained in details, so many of her friends and family members where so much more understanding! Best wishes to you and yours with this journey! God Bless 

                Pennie Jo
                Participant

                  For my sisters communication – we have used carepages.com. It is a wonderful outlet that you can make private and chose who joins the page. As you stated it us much easier to send info to several at once so you are not repeating everything or you don't have to worry about telling one person something you didn't tell the other! One thing I found VERY important and beneficial was educating everyone exactly what Metastatic Melanoma is …. Not just another skin cancer. And that symptoms and treatments are none like any other cancer!!! Once I explained in details, so many of her friends and family members where so much more understanding! Best wishes to you and yours with this journey! God Bless 

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