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Pcarpent

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      Pcarpent
      Participant

        Julie, I hope the combo is working. My husband has been on it since last July and seems to be working. I am trying to find someone on this combo to ask a few questions. My husband seems to get more nauseated and fatigued the closer he gets to the end of his Cotellic dose, closer to the 21st day. Do you or anyone else notice this? Thanks so much for your thoughts. Pamela

        Pcarpent
        Participant

          Dr. Christensen, UCD treats my husband.  

          Pcarpent
          Participant

            I am scared for my husand, he is currently going through ipi/odivo which he had 4 infusions of and now he is down to 1 drug every two weeks.  Blood work returning to normal so we think it is working.  Having trouble with his eyes, one showed some melanoma, which the previous PET scan did pick up, so nothing new after starting treatment.  He is scheduled to see an ocular oncologist on Monday.  He is now having blurring vision in his good eye and is worried.  I don't know if it's just because he is so fixated on losing his vision and causing some of the worry or if it is because of the treatment.  He also has blood in his urine, with no other side effects, no pain, fever, blood pressure and pulse good.  We have an appointment with a urologist, but not until 10/13, there earliest rush appointment, if you can believe it.

             

            Wondering if I should push with a second opionion at Stanford or just let things play out.  Life doen't prepare you for any of this.  Emotional roller coaster  and I hate roller coasters.  Anyone out there is positive stories and suggestions, I would love to hear from you.

             

            Pamela Carpenter

            Pcarpent
            Participant

              I am scared for my husand, he is currently going through ipi/odivo which he had 4 infusions of and now he is down to 1 drug every two weeks.  Blood work returning to normal so we think it is working.  Having trouble with his eyes, one showed some melanoma, which the previous PET scan did pick up, so nothing new after starting treatment.  He is scheduled to see an ocular oncologist on Monday.  He is now having blurring vision in his good eye and is worried.  I don't know if it's just because he is so fixated on losing his vision and causing some of the worry or if it is because of the treatment.  He also has blood in his urine, with no other side effects, no pain, fever, blood pressure and pulse good.  We have an appointment with a urologist, but not until 10/13, there earliest rush appointment, if you can believe it.

               

              Wondering if I should push with a second opionion at Stanford or just let things play out.  Life doen't prepare you for any of this.  Emotional roller coaster  and I hate roller coasters.  Anyone out there is positive stories and suggestions, I would love to hear from you.

               

              Pamela Carpenter

              Pcarpent
              Participant

                I am scared for my husand, he is currently going through ipi/odivo which he had 4 infusions of and now he is down to 1 drug every two weeks.  Blood work returning to normal so we think it is working.  Having trouble with his eyes, one showed some melanoma, which the previous PET scan did pick up, so nothing new after starting treatment.  He is scheduled to see an ocular oncologist on Monday.  He is now having blurring vision in his good eye and is worried.  I don't know if it's just because he is so fixated on losing his vision and causing some of the worry or if it is because of the treatment.  He also has blood in his urine, with no other side effects, no pain, fever, blood pressure and pulse good.  We have an appointment with a urologist, but not until 10/13, there earliest rush appointment, if you can believe it.

                 

                Wondering if I should push with a second opionion at Stanford or just let things play out.  Life doen't prepare you for any of this.  Emotional roller coaster  and I hate roller coasters.  Anyone out there is positive stories and suggestions, I would love to hear from you.

                 

                Pamela Carpenter

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