O_O

Hi, yes, 27, found in scalp and a lymph node in my neck about a year ago (stage III). 

Had three surgeries this year and it came back each time. It looks like it might've come back again, but it's not certain yet.

Did adjuvant Ipilimumab trial after second surgery, it came back on the next scan, did a third surgery, and had my first maintenance dose of Ipi last month, hoping this time it'll kick in.

Surgeries went well, no complications other than mild (barely noticable) nerve damage affecting my lower lip. The spot where they removed my scalp is rather gruesome, and Dr. said hair transplant probably wouldn't take because they went quite deep. So I wear my hair long these days (looks like someone took a bite off my head or something). 

Ipi side effects have been minor. Some fatigue, but went away within a month or two of the last infusion.

Good luck, and keep an eye open for new symptoms. The earlier you catch it the better.

Hi, yes, 27, found in scalp and a lymph node in my neck about a year ago (stage III). 

Had three surgeries this year and it came back each time. It looks like it might've come back again, but it's not certain yet.

Did adjuvant Ipilimumab trial after second surgery, it came back on the next scan, did a third surgery, and had my first maintenance dose of Ipi last month, hoping this time it'll kick in.

Surgeries went well, no complications other than mild (barely noticable) nerve damage affecting my lower lip. The spot where they removed my scalp is rather gruesome, and Dr. said hair transplant probably wouldn't take because they went quite deep. So I wear my hair long these days (looks like someone took a bite off my head or something). 

Ipi side effects have been minor. Some fatigue, but went away within a month or two of the last infusion.

Good luck, and keep an eye open for new symptoms. The earlier you catch it the better.

Hi, yes, 27, found in scalp and a lymph node in my neck about a year ago (stage III). 

Had three surgeries this year and it came back each time. It looks like it might've come back again, but it's not certain yet.

Did adjuvant Ipilimumab trial after second surgery, it came back on the next scan, did a third surgery, and had my first maintenance dose of Ipi last month, hoping this time it'll kick in.

Surgeries went well, no complications other than mild (barely noticable) nerve damage affecting my lower lip. The spot where they removed my scalp is rather gruesome, and Dr. said hair transplant probably wouldn't take because they went quite deep. So I wear my hair long these days (looks like someone took a bite off my head or something). 

Ipi side effects have been minor. Some fatigue, but went away within a month or two of the last infusion.

Good luck, and keep an eye open for new symptoms. The earlier you catch it the better.

Yervoy's a walk in the park compared to any cancer treatment out there. And if you respond you have a chance of killing this thing for good. Go for it!

Yervoy's a walk in the park compared to any cancer treatment out there. And if you respond you have a chance of killing this thing for good. Go for it!

Yervoy's a walk in the park compared to any cancer treatment out there. And if you respond you have a chance of killing this thing for good. Go for it!

Google "abscopal effect". Sometimes blasting tumors causes your immune system to go "hey, what's all this stuff floating around?" and it will start attacking the cancer.

It's rare, but there's been a few studies that have shown that IPI potentiates this even further. This is probably what your docs are aiming for.

Google "abscopal effect". Sometimes blasting tumors causes your immune system to go "hey, what's all this stuff floating around?" and it will start attacking the cancer.

It's rare, but there's been a few studies that have shown that IPI potentiates this even further. This is probably what your docs are aiming for.

Google "abscopal effect". Sometimes blasting tumors causes your immune system to go "hey, what's all this stuff floating around?" and it will start attacking the cancer.

It's rare, but there's been a few studies that have shown that IPI potentiates this even further. This is probably what your docs are aiming for.

Do you keep taking PD-1, or is it a long-lasting effect?

Do you keep taking PD-1, or is it a long-lasting effect?

Do you keep taking PD-1, or is it a long-lasting effect?

Hi mom!

Hi mom!

Hi mom!