Forum Replies Created
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- February 15, 2013 at 6:50 am
Seconding the suggestion of Angeles Clinic. Not sure how they handle Medi-Cal but they are a heavily trial based program so that might be a good option. I have appreciated Dr. Hamid's approach and optimism in discussing many options for tackling treatment.
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- February 15, 2013 at 6:50 am
Seconding the suggestion of Angeles Clinic. Not sure how they handle Medi-Cal but they are a heavily trial based program so that might be a good option. I have appreciated Dr. Hamid's approach and optimism in discussing many options for tackling treatment.
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- February 15, 2013 at 6:50 am
Seconding the suggestion of Angeles Clinic. Not sure how they handle Medi-Cal but they are a heavily trial based program so that might be a good option. I have appreciated Dr. Hamid's approach and optimism in discussing many options for tackling treatment.
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- December 17, 2012 at 10:55 pm
Yes, I am on anti PD1 trial now, post Ipi. It is the Merck 3475 trial and I know there are opening. I just spoke with the physician in person this last week to clarify what he had open on a trial front and the answer was multiple anti-PD1 spots for those that have had Ipi. Please contact me directly if you wish and I will fill you in. [email protected]
Wishing you the best-
Kari
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- December 17, 2012 at 10:55 pm
Yes, I am on anti PD1 trial now, post Ipi. It is the Merck 3475 trial and I know there are opening. I just spoke with the physician in person this last week to clarify what he had open on a trial front and the answer was multiple anti-PD1 spots for those that have had Ipi. Please contact me directly if you wish and I will fill you in. [email protected]
Wishing you the best-
Kari
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- December 17, 2012 at 10:55 pm
Yes, I am on anti PD1 trial now, post Ipi. It is the Merck 3475 trial and I know there are opening. I just spoke with the physician in person this last week to clarify what he had open on a trial front and the answer was multiple anti-PD1 spots for those that have had Ipi. Please contact me directly if you wish and I will fill you in. [email protected]
Wishing you the best-
Kari
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- November 29, 2012 at 6:16 pm
Hi Kevin-
I didn't read other replies so others may have shared more useful info but here is my two cents. I am cruising on 10 years at Stage IV with 5+ of them with active disease (had a few year little NED vacation in there). I think with the exception of vaccines and NIH TIL protocol, I have had them all and been treated/visited just as many institutions. I am currently on PD1 trial in California at the Angeles Clinic and have had a great experience. That said, I would throw that name into your research line up. They have one site that is almost entirely trial patients so access seems to be quite high to a variety of options and patient care is great.
UCLA and Penn would be the other places I would consider especially as you make your decision on what to do next. Dr. Lynne Schucter at Penn is amazing and is a very critical and creative thinker as is Toni Ribas at UCLA. You may not end up in treatment with them based on what trials they have open but having a well versed opinion on what your options are can be invaluable. Then you need to find access to what you need and that is where Angeles Clinic might fit in. I am learning the further I go in this that it takes multiple minds to get the right treatment in place.
Happy to share more with you off line, just let me know.
Be well!
Napa K
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- November 29, 2012 at 6:16 pm
Hi Kevin-
I didn't read other replies so others may have shared more useful info but here is my two cents. I am cruising on 10 years at Stage IV with 5+ of them with active disease (had a few year little NED vacation in there). I think with the exception of vaccines and NIH TIL protocol, I have had them all and been treated/visited just as many institutions. I am currently on PD1 trial in California at the Angeles Clinic and have had a great experience. That said, I would throw that name into your research line up. They have one site that is almost entirely trial patients so access seems to be quite high to a variety of options and patient care is great.
UCLA and Penn would be the other places I would consider especially as you make your decision on what to do next. Dr. Lynne Schucter at Penn is amazing and is a very critical and creative thinker as is Toni Ribas at UCLA. You may not end up in treatment with them based on what trials they have open but having a well versed opinion on what your options are can be invaluable. Then you need to find access to what you need and that is where Angeles Clinic might fit in. I am learning the further I go in this that it takes multiple minds to get the right treatment in place.
Happy to share more with you off line, just let me know.
Be well!
Napa K
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- November 29, 2012 at 6:16 pm
Hi Kevin-
I didn't read other replies so others may have shared more useful info but here is my two cents. I am cruising on 10 years at Stage IV with 5+ of them with active disease (had a few year little NED vacation in there). I think with the exception of vaccines and NIH TIL protocol, I have had them all and been treated/visited just as many institutions. I am currently on PD1 trial in California at the Angeles Clinic and have had a great experience. That said, I would throw that name into your research line up. They have one site that is almost entirely trial patients so access seems to be quite high to a variety of options and patient care is great.
UCLA and Penn would be the other places I would consider especially as you make your decision on what to do next. Dr. Lynne Schucter at Penn is amazing and is a very critical and creative thinker as is Toni Ribas at UCLA. You may not end up in treatment with them based on what trials they have open but having a well versed opinion on what your options are can be invaluable. Then you need to find access to what you need and that is where Angeles Clinic might fit in. I am learning the further I go in this that it takes multiple minds to get the right treatment in place.
Happy to share more with you off line, just let me know.
Be well!
Napa K
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- October 9, 2012 at 3:13 pm
Hi Sharon-
I don't know where you are in terms of travel but try calling Angeles Clinic in Santa Monica to see the status of their anti-PD1 trials. I am currently on trial there and have had a great experience. If you would like to contact me directly off the board, please do so. [email protected]. Best of luck in this scary time.
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- October 9, 2012 at 3:13 pm
Hi Sharon-
I don't know where you are in terms of travel but try calling Angeles Clinic in Santa Monica to see the status of their anti-PD1 trials. I am currently on trial there and have had a great experience. If you would like to contact me directly off the board, please do so. [email protected]. Best of luck in this scary time.
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- October 9, 2012 at 3:13 pm
Hi Sharon-
I don't know where you are in terms of travel but try calling Angeles Clinic in Santa Monica to see the status of their anti-PD1 trials. I am currently on trial there and have had a great experience. If you would like to contact me directly off the board, please do so. [email protected]. Best of luck in this scary time.
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