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mroulston

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      mroulston
      Participant

        I had to wait about two and a half weeks to get the results of my biopsy.

        mroulston
        Participant

          I was diagnosed with stage I melanoma earlier this year, and I dealt with an absolutely terrifying and overwhelming amount of anxiety leading up to my biopsy. The worst part of it was the waiting, which for me was more than four months. That's not a typo — more than four months of waiting just for the biopsy.

          I went to a walk-in clinic in mid January with a mole that I was certain was melanoma. It met every one of the ABCDE's, it was absolutely an ugly duckling, it didn't look anything like any pictures of basal or squamous cell carcinomas that I found online, and it looked exactly like some of the pictures of melanoma that I found online. The walk-in clinic booked an appointment for me with a dermatologist for the middle of May, four months later. That four months was the longest and most excruciating four months of my life.

          Even when I finally saw the dermatologist in May, he told me he didn't think the spot was anything to worry about, but he would remove it anyway just to be sure, and wanted to book an appointment for me two months later. I was horrified. I couldn't bare to wait two more moths. I ended up pleading with him and he managed to fit me in two weeks later to remove the mole, but even that two week wait was awful.

          So anyway, I can definitely relate to you when you say that the anxiety of waiting for the biopsy is overwhelming. I found that the uncertainty was what made the waiting almost unbearable, and the only thing that will take away the uncertainty is having the biopsy done and getting the results back. Until that happens, it's almost impossible not to run through all kinds of possibilites in your head.

          One thing I did start to do though is read about Buddism and meditation, and that helped a bit, and continues to help me out when I feel crippling anxiety coming on. Buddism teaches a lot about living in the moment, and not letting yourself become overwhelmed by what may, or may not, happen in the future. I'm sure there are other methods of studying that concept that aren't related to Buddism, but Buddism has helped me.

          So whenever I start to freak about about what may or may not happen in the future, I try to recognize that my thinking is heading in a direction where no good can come, and I try to relax, take some deep breaths, and remind myself that my thoughts are the only thing that I really have true control over, and running through countless horrible scenarios that haven't even happened, and may never happen, is not at all healthy.

          mroulston
          Participant

            Thank you very much Cheri. Your response was extremely helpful, particulary what you wrote about referred pain and damanged nerves. I hope that's all I'm dealing with. My oncologist scheduled me for a CT scan in a couple of weeks, so hopefully that will rule out any bad scenarios, in which case I think I'll be comfortable moving forward and just tolerating the hip pain without constantly worrying about what's causing it.

            mroulston
            Participant

              The staging of the cancer would dictate what the next step is. Regardless of the stage, you would have to have a wide local excision to remove wider margins around the lesion to be absolutely sure that they removed all of the cancerous cells (they may or may not have removed it all during the initial excision). For early stage melanoma, the wide local excision is usually the final step. If the lesion is thicker, or has high ulcertation or mitotic rates (factors that could make it more likely to spread), then the next step would be a lymph node biopsy to try to determine whether the cancer has spread.

              mroulston
              Participant

                Oh, believe me, I completely understand. Waiting for my biopsy results was the worst experience of my life. I spent just about every waking second worrying about it because I was certain it was melanoma, I was just waiting to find out how bad it was. It turned out to be stage 1 melanoma, so it wasn't as bad as I had been worrying about (for two and a half weeks I had convinced myself it would be stage 4).

                Nothing I say to you will make you stop worrying, but I figured it wouldn't hurt if I at least pointed out that all the worrying and anxiety you're going through right now is perfectly normal. You'll get through it. Stay positive!

                mroulston
                Participant

                  Thanks very much for your response and suggestions. They helped a lot. I wasn't familar with Seneca, but I did some research on him and found a quote that really resonated with me: "We suffer more often in imagination than in reality." I also purchased a book by Seneca called "Letters From A Stoic".

                  mroulston
                  Participant

                    Since my melanoma diagnosis about five months ago, I've purchased and read eleven books on Buddhism. I just took a quick look at all of them and tried to remember which one was most helpful with regards to meditation (I read so many books so quickly that I forgot which ones were the best and most helpful), and I believe the best book that I read on that subject is "Zen Mind, Beginner's Mind" by Shunryu Suzuki.

                    Also, in case it's helpful, I will tell you about another book recommendation that my walk-in clinic doctor told me about. The doctor was the most compassionate doctor I've ever dealt with, and he spent quite a bit of time calming me down the day that I first learned of the cancer diagnosis. One of his strongest recommenations for me was that I read a book called "Mind Over Mood" by Dennis Greenberger and Christine Padesky. I bought the book based on the doctor's recommendation, and it was also very helpful in trying to get my anxiety under control.

                    mroulston
                    Participant

                      Thanks for your reply. I can really relate to what you said about not a day going by that you don't think about your diagnosis, and sadly I agree with you when you say that you don't think the fear will ever go away. I'm not expecting to ever rid myself of the fear, but I am hopeful that perhaps over time, as another person metioned in this thread, the fear will go down somewhat and not be so constantly overwhelimg.

                      mroulston
                      Participant

                        Yes, I think that's my biggest problem. I am constantly on the internet researching this disease, and it seems like the only thing that comes from all the time I spend online reading about melanoma is increased anxiety. I think at some point I need to understand that the best thing I can do right now is just stay off the internet regarding melanoma, and try to get on with my life. Thanks very much for taking the time to reply.

                        mroulston
                        Participant

                          Thanks for your reply. I agree that catching melanoma at stage I is a definite blessing. Before the biopsy, I was fearing the absolute worst, and finding out it was stage I was a huge relief. Also, like you mentioned, do I take comfort in knowing that treatment options for worse stages of cancer are always improving, so anything ever goes go bad for me, it won't be an automatic death sentence. I am hopeful that over time, my anxiety will lessen.

                          mroulston
                          Participant

                            Thanks very much for posting such a helpful reply. I really appreciate it. Based on your advice, I just called the cancer clinic and asked to book the ultrasound. I wish I could get a second opinion like you suggested, but where I live (Canada) it's hard enough just to get to see the first oncologist, I honestly can't imagine any scenario where I would be able to see a second one. But I will look into that, and again, I really appreciate your suggestions. They helped a lot.

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