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My dermatologist wants to inject one of my sub-q's with IL-2. But he is consulting with my onc before any decision is made.  Not quite your scenario, but similar.

Cristy, Stage IV

My dermatologist wants to inject one of my sub-q's with IL-2. But he is consulting with my onc before any decision is made.  Not quite your scenario, but similar.

Cristy, Stage IV

My dermatologist wants to inject one of my sub-q's with IL-2. But he is consulting with my onc before any decision is made.  Not quite your scenario, but similar.

Cristy, Stage IV

Hi, David,

Welcome and sorry that you are back on the board. I, too, had surgical resection on a brain met, have lungs full of tumors, and a liver met. I opted for Yervoy because the tumors did not appear to be aggressive in a 3-month period of time, and was told by my onc that the immune-improved T-cells would cross the blood brain barrier. But I have to say, there are as many opinions as oncologists, so it is a bit confusing and frustrating. So I chose a plan A and Plan B. When Plan A stops working and I move to Plan B, I will choose a Plan C. That way, I am not overwhelmed and making myself crazy from indecision. I just think that no one can be very sure about the treatments because everyone responds differently. I think the best approach is to buy as much time as possible because huge changes in treatment are just on the horizon.

Here is a link to a past thread about  Zelboraf and brain mets…

http://www.melanoma.org/community/mpip-melanoma-patients-information-page/zelboraf-brain-tumors-anyone

I am glad that you have an oncologist in Singapore. Hopefully you can get your desired treatment without having to come back stateside!

Cristy, Stage IV

Hi, David,

Welcome and sorry that you are back on the board. I, too, had surgical resection on a brain met, have lungs full of tumors, and a liver met. I opted for Yervoy because the tumors did not appear to be aggressive in a 3-month period of time, and was told by my onc that the immune-improved T-cells would cross the blood brain barrier. But I have to say, there are as many opinions as oncologists, so it is a bit confusing and frustrating. So I chose a plan A and Plan B. When Plan A stops working and I move to Plan B, I will choose a Plan C. That way, I am not overwhelmed and making myself crazy from indecision. I just think that no one can be very sure about the treatments because everyone responds differently. I think the best approach is to buy as much time as possible because huge changes in treatment are just on the horizon.

Here is a link to a past thread about  Zelboraf and brain mets…

http://www.melanoma.org/community/mpip-melanoma-patients-information-page/zelboraf-brain-tumors-anyone

I am glad that you have an oncologist in Singapore. Hopefully you can get your desired treatment without having to come back stateside!

Cristy, Stage IV

Hi, David,

Welcome and sorry that you are back on the board. I, too, had surgical resection on a brain met, have lungs full of tumors, and a liver met. I opted for Yervoy because the tumors did not appear to be aggressive in a 3-month period of time, and was told by my onc that the immune-improved T-cells would cross the blood brain barrier. But I have to say, there are as many opinions as oncologists, so it is a bit confusing and frustrating. So I chose a plan A and Plan B. When Plan A stops working and I move to Plan B, I will choose a Plan C. That way, I am not overwhelmed and making myself crazy from indecision. I just think that no one can be very sure about the treatments because everyone responds differently. I think the best approach is to buy as much time as possible because huge changes in treatment are just on the horizon.

Here is a link to a past thread about  Zelboraf and brain mets…

http://www.melanoma.org/community/mpip-melanoma-patients-information-page/zelboraf-brain-tumors-anyone

I am glad that you have an oncologist in Singapore. Hopefully you can get your desired treatment without having to come back stateside!

Cristy, Stage IV

Hi, Chau,

I hope others with more experience will chime in, but I am thinking that 3-4 weeks after the last infusion is way too early to make a determination. I have my last infusion next Monday and I have new tumors and inflamed old tumors, and my onc is not concerend a bit. He said he would nor even expect progress for three months after the last infusion. I am glad for that!

Cristy, Stage IV

Hi, Chau,

I hope others with more experience will chime in, but I am thinking that 3-4 weeks after the last infusion is way too early to make a determination. I have my last infusion next Monday and I have new tumors and inflamed old tumors, and my onc is not concerend a bit. He said he would nor even expect progress for three months after the last infusion. I am glad for that!

Cristy, Stage IV

Hi, Chau,

I hope others with more experience will chime in, but I am thinking that 3-4 weeks after the last infusion is way too early to make a determination. I have my last infusion next Monday and I have new tumors and inflamed old tumors, and my onc is not concerend a bit. He said he would nor even expect progress for three months after the last infusion. I am glad for that!

Cristy, Stage IV

Thanks for posting, Gene. This information is not surprising to me at all, and contrary to what  Anonymous says, I don't think the baby should be thrown out with the bath water. What struck me in the article was the info on UVA. If UVA passes through glass, then we are sitting ducks in our automobiles!!

Cristy, Stage IV

Thanks for posting, Gene. This information is not surprising to me at all, and contrary to what  Anonymous says, I don't think the baby should be thrown out with the bath water. What struck me in the article was the info on UVA. If UVA passes through glass, then we are sitting ducks in our automobiles!!

Cristy, Stage IV

Thanks for posting, Gene. This information is not surprising to me at all, and contrary to what  Anonymous says, I don't think the baby should be thrown out with the bath water. What struck me in the article was the info on UVA. If UVA passes through glass, then we are sitting ducks in our automobiles!!

Cristy, Stage IV

Thank you, Chau, will do.  Here's hoping the best for your dad, and you. In my opinion, the waits between treatments and scans are the worst for me. I am a "fix it" kind of person, but I have had to become more patient!

Take care,

Cristy

Thank you, Chau, will do.  Here's hoping the best for your dad, and you. In my opinion, the waits between treatments and scans are the worst for me. I am a "fix it" kind of person, but I have had to become more patient!

Take care,

Cristy

Thank you, Chau, will do.  Here's hoping the best for your dad, and you. In my opinion, the waits between treatments and scans are the worst for me. I am a "fix it" kind of person, but I have had to become more patient!

Take care,

Cristy