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Mk517

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      Mk517
      Participant
        It is great to hear that others have made it through the 4 cycles multiple times! It’s been 2 years since my last round, so good point that they will be better at managing my side effects.
        Mk517
        Participant
          Celeste, thank you so much for this info!
          Mk517
          Participant
            Wow 16 doses! My adrenals are already shot from my previous immunotherapy and steroid use, and my thyroid is borderline and being watched closely. As I’ve been told, once your endocrines are gone, you can’t make them worse! So that’s a plus.

            Did you have any of the other side effects?

            And did the trial make you NED?

             

             

            Mk517
            Participant
              Thank you so much for replying. I am not a big poster on this board but I have followed a lot when I needed to since my diagnosis and your insight is always appreciated. And as an RN myself, I always appreciate the help combing through the “real” literature!
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