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Miranda
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Miranda

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      • November 10, 2012 at 2:11 am
      Miranda
      Participant

        Hey everyone,

        My husband was just very recently diagnosed with Stage IV Melanoma. Any information at all will be helpful. He is a fighter, thank God! But both of us are terrified beyond words. The doctors are very knowledgeable but we would love to hear from the actual day by day fighters that are on here.

         

        Love and Hope and FIGHT to everyone here!!

        • November 10, 2012 at 2:11 am
        Miranda
        Participant

          Hey everyone,

          My husband was just very recently diagnosed with Stage IV Melanoma. Any information at all will be helpful. He is a fighter, thank God! But both of us are terrified beyond words. The doctors are very knowledgeable but we would love to hear from the actual day by day fighters that are on here.

           

          Love and Hope and FIGHT to everyone here!!

          • November 10, 2012 at 2:11 am
          Miranda
          Participant

            Hey everyone,

            My husband was just very recently diagnosed with Stage IV Melanoma. Any information at all will be helpful. He is a fighter, thank God! But both of us are terrified beyond words. The doctors are very knowledgeable but we would love to hear from the actual day by day fighters that are on here.

             

            Love and Hope and FIGHT to everyone here!!

            • November 11, 2012 at 1:58 am
            Miranda
            Participant

              I will have to look at all of the papers again. I'm not sure of all of the terminology yet. What I know as of now is that they are sending a biopsy sample out to be tested if the Mastastasic (spelling?) Melanoma is a mutation since he's only 42. If it is, they want to put him on a pill treatment called Zelboraf to shrink the spots he has. In addition to that, they want to use immunotherapy. They want  to use as little radiation as possible and they don't want to use chemo at all. Has anyone been on/currently on Zelboraf? Is it effective? The docs told us that it's effective almost immediately but it usually stops working in about 6 months. Any suggestions?

              • November 11, 2012 at 1:58 am
              Miranda
              Participant

                I will have to look at all of the papers again. I'm not sure of all of the terminology yet. What I know as of now is that they are sending a biopsy sample out to be tested if the Mastastasic (spelling?) Melanoma is a mutation since he's only 42. If it is, they want to put him on a pill treatment called Zelboraf to shrink the spots he has. In addition to that, they want to use immunotherapy. They want  to use as little radiation as possible and they don't want to use chemo at all. Has anyone been on/currently on Zelboraf? Is it effective? The docs told us that it's effective almost immediately but it usually stops working in about 6 months. Any suggestions?

                • November 11, 2012 at 1:58 am
                Miranda
                Participant

                  I will have to look at all of the papers again. I'm not sure of all of the terminology yet. What I know as of now is that they are sending a biopsy sample out to be tested if the Mastastasic (spelling?) Melanoma is a mutation since he's only 42. If it is, they want to put him on a pill treatment called Zelboraf to shrink the spots he has. In addition to that, they want to use immunotherapy. They want  to use as little radiation as possible and they don't want to use chemo at all. Has anyone been on/currently on Zelboraf? Is it effective? The docs told us that it's effective almost immediately but it usually stops working in about 6 months. Any suggestions?

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