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meldad

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      meldad
      Participant

        Hi Nahmi,

        I was at the walk today. I never really posted much but I came on this site everyday and remember reading your entries. 

        My dad passed away 5 weeks ago at the age of 56. We miss him terribly and I actually found today really hard without him. 

        I wish I had of read this post before the walk, were you there? I would have loved to put a face to your name. 

        Hope things are going well for you and your family.

        catherine 

        meldad
        Participant

          Hi Nahmi,

          I was at the walk today. I never really posted much but I came on this site everyday and remember reading your entries. 

          My dad passed away 5 weeks ago at the age of 56. We miss him terribly and I actually found today really hard without him. 

          I wish I had of read this post before the walk, were you there? I would have loved to put a face to your name. 

          Hope things are going well for you and your family.

          catherine 

          meldad
          Participant

            Hi Nahmi,

            I was at the walk today. I never really posted much but I came on this site everyday and remember reading your entries. 

            My dad passed away 5 weeks ago at the age of 56. We miss him terribly and I actually found today really hard without him. 

            I wish I had of read this post before the walk, were you there? I would have loved to put a face to your name. 

            Hope things are going well for you and your family.

            catherine 

            meldad
            Participant

              Also just realised today's the 15th! Scan day for you! I know how nerve racking it is so I'll definitely be thinking of you. Hopefully it's working just was well as Zel did for you! 

              meldad
              Participant

                Also just realised today's the 15th! Scan day for you! I know how nerve racking it is so I'll definitely be thinking of you. Hopefully it's working just was well as Zel did for you! 

                meldad
                Participant

                  Also just realised today's the 15th! Scan day for you! I know how nerve racking it is so I'll definitely be thinking of you. Hopefully it's working just was well as Zel did for you! 

                  meldad
                  Participant

                    Hi Al,

                    I always read your posts, so thank you for replying! 

                    Tafinlar was put on the PBS list here in Australia in Decemeber. My mum asked one of the oncologists and he's response was he thinks my dads condition is too far gone for it to help at all. He said my dad was stage 5? I wasn't aware there was a stage 5 and as far as I know my dad hasn't even developed brain mets. 

                    I just feel like they're giving up! 

                    meldad
                    Participant

                      Hi Al,

                      I always read your posts, so thank you for replying! 

                      Tafinlar was put on the PBS list here in Australia in Decemeber. My mum asked one of the oncologists and he's response was he thinks my dads condition is too far gone for it to help at all. He said my dad was stage 5? I wasn't aware there was a stage 5 and as far as I know my dad hasn't even developed brain mets. 

                      I just feel like they're giving up! 

                      meldad
                      Participant

                        Hi Al,

                        I always read your posts, so thank you for replying! 

                        Tafinlar was put on the PBS list here in Australia in Decemeber. My mum asked one of the oncologists and he's response was he thinks my dads condition is too far gone for it to help at all. He said my dad was stage 5? I wasn't aware there was a stage 5 and as far as I know my dad hasn't even developed brain mets. 

                        I just feel like they're giving up! 

                        meldad
                        Participant

                          How long after you finished ipi did you see a response? My dad finished ipi end of November and the first scans showed 80% had shrunk but 20% was still growing. 

                          Hes latest scans show growth again! I just don't understand the first set of scans, how they could have changed so much. The Doctors are basically saying there's nothing left to try! 

                          meldad
                          Participant

                            How long after you finished ipi did you see a response? My dad finished ipi end of November and the first scans showed 80% had shrunk but 20% was still growing. 

                            Hes latest scans show growth again! I just don't understand the first set of scans, how they could have changed so much. The Doctors are basically saying there's nothing left to try! 

                            meldad
                            Participant

                              How long after you finished ipi did you see a response? My dad finished ipi end of November and the first scans showed 80% had shrunk but 20% was still growing. 

                              Hes latest scans show growth again! I just don't understand the first set of scans, how they could have changed so much. The Doctors are basically saying there's nothing left to try! 

                              meldad
                              Participant

                                How long after you finished ipi did you see a response? My dad finished ipi end of November and the first scans showed 80% had shrunk but 20% was still growing. 

                                Hes latest scans show growth again! I just don't understand the first set of scans, how they could have changed so much. The Doctors are basically saying there's nothing left to try! 

                                meldad
                                Participant

                                  How long after you finished ipi did you see a response? My dad finished ipi end of November and the first scans showed 80% had shrunk but 20% was still growing. 

                                  Hes latest scans show growth again! I just don't understand the first set of scans, how they could have changed so much. The Doctors are basically saying there's nothing left to try! 

                                  meldad
                                  Participant

                                    How long after you finished ipi did you see a response? My dad finished ipi end of November and the first scans showed 80% had shrunk but 20% was still growing. 

                                    Hes latest scans show growth again! I just don't understand the first set of scans, how they could have changed so much. The Doctors are basically saying there's nothing left to try! 

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