The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

MB

Forum Replies Created

Viewing 0 reply threads
  • Replies
      MB
      Participant
      *correction: she had her first infusion 2 weeks ago (feels like forever ago) and is due for the second cycle next week. Also, there are new tumors that have popped up (swollen nodules) since starting ipi/nivo. I was thinking maybe they were already there but can now be felt/seen due to the swelling. Thanks!
      MB
      Participant
      Thank you, Celeste! Wow, very concerning that our local oncologist did not know this. Scary, honestly. Thank God for melanoma specialists!-MB
      MB
      Participant
      Thanks, Judi, I’m working on getting a consultation with a melanoma specialist. I’m glad to hear you are NED!
      MB
      Participant
      Thank you, Ash! I’m so glad to hear your partner is doing so well- it’s very comforting to know that there is hope with ipo/Nivo. I am eager for her to get started on it. Interestingly, she also had a large tumor removed from her cerebellum in May, which was successful. It’s been a roller coaster for sure! Ups and downs. Right now I am just praying she stays stable until the treatment begins. Watching her like a hawk, monitoring everything. This forum and website has been so helpful and I am grateful for the support.
      MB
      Participant
      Thank you so much, Celeste. I really appreciate your help and support. She isn’t scheduled to start immunotherapy until next Friday (9/29).. I hope that’s not too long of a wait. I think that was the soonest they could get her in. I will keep you updated.
      Thanks,
      -MB
Viewing 0 reply threads
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics