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Marta1971

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      Marta1971
      Participant
        Hi Mandy, I had a mole in my scalp during more than one year and my doctor ( not derm) wasnt worried until it grew a lot and had to go to a second opinion.

        Unfortunately was a primary intradermal melanoma,  a very big one but fortunately everything is ok for the moment.

        So no matter what they say, just go and have a biopsy though maybe it is just a cyst.

        Good luck and I hope everyrhing will be fine.

        BR

        Marta

         

         

        Marta1971
        Participant
          Hi Jackie, thank you very much for the info…it is much more than anybody ever tell me…to be honest, everything that I know it is because I,ve read, investigate and look in every place I could…I have an almost Melanoma Degree!
          In Spain we have Inmunotherapy and in very rarely occassions, Interferon…but my oncologist only suggested a 3 months follow ups.
          Next step, another PET in april.
          I have a question regarding the origin of it, do you think it is because ultraviolets rays and sun exposure? What your husband’ doc told him about it? In my case in the scalp with brown hair, makes me think about any mutation (of course blame it on the sun) but they did not tell me anything about making the DNA analisis for BRAF or any others.
          Sorry but for me it is very weird and it is also hard to wait…what will happen…I am a bit hypochondriac.
          Lots of love from Spain and thanks again for al the info….this is priceless.
          Good night.
          Marta
          Marta1971
          Participant
            Good morning Chris,
            Thank you for your words.
            It is being difficult to handle since there is little literature and research in this matter.
            I,ve read that in 2011 there was a man with the same in this forum so that,s why I cheer up to participate in it because there are few in Spain and cannot find anybody to share their impressions with this atypical melanoma.
            I am strong, eager, second chance to live life but I am too curious and I have little information.
            I hope I can find someone who can help me or give advices.
            A hug to everyone everywhere.
            Have a good day.
            Marta1971
            Participant
              Thank you very much for your quick reply, fortunately there are no malignant cells in any part, neither in centinel nodes nor in my body.
              I dont know the difference between PET scan and computerized axial tomography scan CT. Do you know it,? I’d appreciate it.
              Thanks and BR
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