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MariaBailey
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MariaBailey

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      • March 25, 2015 at 4:55 pm
      MariaBailey
      Participant

        I am hoping the Yervoy works. I am going to her appointment on Tuesday to get a better understanding of this. It may be in her bones not on. I am working with my dads account of the doctors appointments. How long have you had this diagnosis?

        Doesnt the PD1's work with the diagnosis of the protien KIT, NRAS, or BRAF? She doesnt have this. They tested her for it.

        So even with out the Braf she could do it? I am going to discuss this with her doc.

        They found one on her 5th vertibra and started her on the bone strengthiners. 

        Thank you so much this helped alot!!!!

         

        • March 25, 2015 at 4:55 pm
        MariaBailey
        Participant

          I am hoping the Yervoy works. I am going to her appointment on Tuesday to get a better understanding of this. It may be in her bones not on. I am working with my dads account of the doctors appointments. How long have you had this diagnosis?

          Doesnt the PD1's work with the diagnosis of the protien KIT, NRAS, or BRAF? She doesnt have this. They tested her for it.

          So even with out the Braf she could do it? I am going to discuss this with her doc.

          They found one on her 5th vertibra and started her on the bone strengthiners. 

          Thank you so much this helped alot!!!!

           

          • March 25, 2015 at 4:55 pm
          MariaBailey
          Participant

            I am hoping the Yervoy works. I am going to her appointment on Tuesday to get a better understanding of this. It may be in her bones not on. I am working with my dads account of the doctors appointments. How long have you had this diagnosis?

            Doesnt the PD1's work with the diagnosis of the protien KIT, NRAS, or BRAF? She doesnt have this. They tested her for it.

            So even with out the Braf she could do it? I am going to discuss this with her doc.

            They found one on her 5th vertibra and started her on the bone strengthiners. 

            Thank you so much this helped alot!!!!

             

            • March 25, 2015 at 4:50 pm
            MariaBailey
            Participant

              I am not sure! She has had a slew of scans done. PET being the important one. They found spots in other places too. Her oncologist has delt with this type of melanoma a couple of times. I cant seem to find any melanoma specialist in Rochester NY.

              • March 25, 2015 at 4:50 pm
              MariaBailey
              Participant

                I am not sure! She has had a slew of scans done. PET being the important one. They found spots in other places too. Her oncologist has delt with this type of melanoma a couple of times. I cant seem to find any melanoma specialist in Rochester NY.

                • March 25, 2015 at 4:50 pm
                MariaBailey
                Participant

                  I am not sure! She has had a slew of scans done. PET being the important one. They found spots in other places too. Her oncologist has delt with this type of melanoma a couple of times. I cant seem to find any melanoma specialist in Rochester NY.

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