Forum Replies Created
- Replies
-
-
- September 8, 2014 at 7:40 pm
I am participating in a clinical trial III of PD1, Nivolumab. First treatment was in 8/2013. I had scans done and received news the day before Thanksgiving of 2013 that most tumors were gone or had shrunk. As subsequent scans have revealed the same, no active growth. The MD's say I'm in complete remission.
I discovered an enlarged lymph node in my neck. I worked in an Operating Room at the time and was quite familiar with the procedures I would later undergo. Creepy being on the other side of the knife. Went through 3 major operations, 4 bronch procedures one of which resulted in pneumothorax, radiation, IL2; Ippi and now PD1. Side effects? Well, hard to say if they are related to PD1. I've had spontaneous fractures of the ribs (resulting in a blood clot to the lung) and some discoloration to skin but nothing, NOTHING to be concerned with or even complain as a side effect. My hair has thinned but that could be due to stress and drugs received in Anesthesia.
I am GRATEFUL to CPMC, BMS and all the health professionals that have taken care of me. It's been a journey of 2 1/2 years. I would encourage any patient to incorporate in their treatment the care of the mind and spirit. Just went to a free conference in Campbell, CA through "Healing Journeys.com" and the speakers, music, meeting with other cancer patients and survivors….CHANGE MY LIFE. "Cancer as a turning point".
I met another stage 4 survivor, 23 years out from her initial diagnosis. Talking with her at lunch gave me such hope.
-
- September 8, 2014 at 7:40 pm
I am participating in a clinical trial III of PD1, Nivolumab. First treatment was in 8/2013. I had scans done and received news the day before Thanksgiving of 2013 that most tumors were gone or had shrunk. As subsequent scans have revealed the same, no active growth. The MD's say I'm in complete remission.
I discovered an enlarged lymph node in my neck. I worked in an Operating Room at the time and was quite familiar with the procedures I would later undergo. Creepy being on the other side of the knife. Went through 3 major operations, 4 bronch procedures one of which resulted in pneumothorax, radiation, IL2; Ippi and now PD1. Side effects? Well, hard to say if they are related to PD1. I've had spontaneous fractures of the ribs (resulting in a blood clot to the lung) and some discoloration to skin but nothing, NOTHING to be concerned with or even complain as a side effect. My hair has thinned but that could be due to stress and drugs received in Anesthesia.
I am GRATEFUL to CPMC, BMS and all the health professionals that have taken care of me. It's been a journey of 2 1/2 years. I would encourage any patient to incorporate in their treatment the care of the mind and spirit. Just went to a free conference in Campbell, CA through "Healing Journeys.com" and the speakers, music, meeting with other cancer patients and survivors….CHANGE MY LIFE. "Cancer as a turning point".
I met another stage 4 survivor, 23 years out from her initial diagnosis. Talking with her at lunch gave me such hope.
-
- September 8, 2014 at 7:40 pm
I am participating in a clinical trial III of PD1, Nivolumab. First treatment was in 8/2013. I had scans done and received news the day before Thanksgiving of 2013 that most tumors were gone or had shrunk. As subsequent scans have revealed the same, no active growth. The MD's say I'm in complete remission.
I discovered an enlarged lymph node in my neck. I worked in an Operating Room at the time and was quite familiar with the procedures I would later undergo. Creepy being on the other side of the knife. Went through 3 major operations, 4 bronch procedures one of which resulted in pneumothorax, radiation, IL2; Ippi and now PD1. Side effects? Well, hard to say if they are related to PD1. I've had spontaneous fractures of the ribs (resulting in a blood clot to the lung) and some discoloration to skin but nothing, NOTHING to be concerned with or even complain as a side effect. My hair has thinned but that could be due to stress and drugs received in Anesthesia.
I am GRATEFUL to CPMC, BMS and all the health professionals that have taken care of me. It's been a journey of 2 1/2 years. I would encourage any patient to incorporate in their treatment the care of the mind and spirit. Just went to a free conference in Campbell, CA through "Healing Journeys.com" and the speakers, music, meeting with other cancer patients and survivors….CHANGE MY LIFE. "Cancer as a turning point".
I met another stage 4 survivor, 23 years out from her initial diagnosis. Talking with her at lunch gave me such hope.
-