Love_Monkey
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Love_Monkey

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  • Replies
      • September 22, 2010 at 9:55 pm
      Love_Monkey
      Participant

      I think it's funny that I misspelled my own daughter's name!  Stupid small netbook keyboard!

      • September 22, 2010 at 9:55 pm
      Love_Monkey
      Participant

      I think it's funny that I misspelled my own daughter's name!  Stupid small netbook keyboard!

      • September 20, 2010 at 5:37 am
      Love_Monkey
      Participant

      Sharon,

      We do not know each other but from this post and the responses, I know that was my loss.

      Godspeed on your journey you beautiful soul.

      Danielle

      • September 20, 2010 at 5:37 am
      Love_Monkey
      Participant

      Sharon,

      We do not know each other but from this post and the responses, I know that was my loss.

      Godspeed on your journey you beautiful soul.

      Danielle

      • September 3, 2010 at 12:55 pm
      Love_Monkey
      Participant
      • September 3, 2010 at 12:55 pm
      Love_Monkey
      Participant
      • August 30, 2010 at 5:56 pm
      Love_Monkey
      Participant
      • November 16, 2010 at 4:45 am
      Love_Monkey
      Participant

      Thanks Emily for pointing Elizabeth to my blog.

      Elizabeth, Rachael's oncologist is at M.D. Anderson and he works with a lot of pediatric melanoma patients.  I know you'll find great advice and support here but like Jim says, the information can be VERY scary.

      I created my site so that parents could go and have a place to look around, learn and not have the daylights scared out of them.  I have gently nudged Dr. Hughes with regards to the FAQ section tonight and he said he would get on it.  If you have any questions you would like answered, please let me know and I will pass them to him.

      I'm available anytime if you want to talk.

      • November 16, 2010 at 4:45 am
      Love_Monkey
      Participant

      Thanks Emily for pointing Elizabeth to my blog.

      Elizabeth, Rachael's oncologist is at M.D. Anderson and he works with a lot of pediatric melanoma patients.  I know you'll find great advice and support here but like Jim says, the information can be VERY scary.

      I created my site so that parents could go and have a place to look around, learn and not have the daylights scared out of them.  I have gently nudged Dr. Hughes with regards to the FAQ section tonight and he said he would get on it.  If you have any questions you would like answered, please let me know and I will pass them to him.

      I'm available anytime if you want to talk.

      • September 28, 2010 at 12:47 pm
      Love_Monkey
      Participant

      Thank you so much.  We sure love her!

      • September 28, 2010 at 12:47 pm
      Love_Monkey
      Participant

      Thank you so much.  We sure love her!

      • September 22, 2010 at 9:53 pm
      Love_Monkey
      Participant

      Tim,

      It was one of the most confusing things to me in the beginning and I certainly do not pretend to understand it still.  Rahchael's first pathology report said it was a benign spitzoid but forwarded the primary mole to Baylor.  Three different hospitals (Mayo, Texas Children's/Baylor and M.D. Anderson) looked at the initial biopsy and could not agree.  It wasn't until the SNL found macro-mets in the node that we knew for sure what we were looking at.

      One of my "pet peeves" now is when I hear the term "Spitzoid melanoma".  As far as I can determine, there is no such thing and in fact, the difference can be life or death.

      I still have a LOT to learn though and this project is in its infancy.  I want to partner with as many smart people as I can… as they find me and take pity on me!

      Danielle

      • September 22, 2010 at 9:53 pm
      Love_Monkey
      Participant

      Tim,

      It was one of the most confusing things to me in the beginning and I certainly do not pretend to understand it still.  Rahchael's first pathology report said it was a benign spitzoid but forwarded the primary mole to Baylor.  Three different hospitals (Mayo, Texas Children's/Baylor and M.D. Anderson) looked at the initial biopsy and could not agree.  It wasn't until the SNL found macro-mets in the node that we knew for sure what we were looking at.

      One of my "pet peeves" now is when I hear the term "Spitzoid melanoma".  As far as I can determine, there is no such thing and in fact, the difference can be life or death.

      I still have a LOT to learn though and this project is in its infancy.  I want to partner with as many smart people as I can… as they find me and take pity on me!

      Danielle

      • September 20, 2010 at 12:07 pm
      Love_Monkey
      Participant

      I would LOVE to include her story on "Other Little Warriors"!  I do not know any child 7 yrs. NED (thought I know they are out there of course) and that would provide great hope for new families!

      Would you PLEASE pass along the infomation to your friends and ask if they would consider contacting me for inclusion?

      Thank you so much!

      Danielle (dkadams73@hotmail.com)

      • September 20, 2010 at 12:07 pm
      Love_Monkey
      Participant

      I would LOVE to include her story on "Other Little Warriors"!  I do not know any child 7 yrs. NED (thought I know they are out there of course) and that would provide great hope for new families!

      Would you PLEASE pass along the infomation to your friends and ask if they would consider contacting me for inclusion?

      Thank you so much!

      Danielle (dkadams73@hotmail.com)

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