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Lori Ann
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Lori Ann

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      • May 12, 2017 at 11:48 pm
      Lori Ann
      Participant

        I have mucosal melanoma and have been treating with Dr. Nick Pfanzelter at Rush in Chicago.  I had radiation treatments at Community Hospital in Munster, Indiana.  Other than that, my treatments have been at Rush.  I've had several surgeries to remove tumors as well as a round of Yervoy which didn't do much as I'm now doing Keytruda.  I didn't have many side effects and was able to continue with my daily activites…as long as I got a nap in!  I did consult with Dr. Luke at U of C but, at the time, I didn't have lymph node involvement so I wasn't a candidate for his studies.  I went on the Amerian Cancer Societies web site and they had a lot of good questions that I asked my doctors. Be your own advocate and don't hesitate to ask anything!

        • June 20, 2016 at 2:26 pm
        Lori Ann
        Participant

          You've been on my mind.  How are you doing?

          • June 20, 2016 at 2:26 pm
          Lori Ann
          Participant

            You've been on my mind.  How are you doing?

            • June 20, 2016 at 2:26 pm
            Lori Ann
            Participant

              You've been on my mind.  How are you doing?

              • November 24, 2017 at 10:07 pm
              Lori Ann
              Participant

                Thank you.  I met with Dr Luke about a year ago.  We weren't able to go to him because of insurance.

                • November 23, 2017 at 3:59 am
                Lori Ann
                Participant

                  Congrats on your 3 year remission!!!!

                  • November 23, 2017 at 3:58 am
                  Lori Ann
                  Participant

                    This must not be the same thing as this is a phase 1 study?  I'll look at it when you post.  Thanks.

                    • November 23, 2017 at 3:57 am
                    Lori Ann
                    Participant

                      Thank you.

                      • June 3, 2016 at 5:42 pm
                      Lori Ann
                      Participant

                        Thanks CHD.  I have asked my doctor what other immunotherapies are available and am waiting for a response.  Are you saying Yervoy along with something is a better option or no Yervoy at all?  Sorry.  Does your opinion change if this is adjuvant treatment?  Thanks for your input.

                        • June 3, 2016 at 5:42 pm
                        Lori Ann
                        Participant

                          Thanks CHD.  I have asked my doctor what other immunotherapies are available and am waiting for a response.  Are you saying Yervoy along with something is a better option or no Yervoy at all?  Sorry.  Does your opinion change if this is adjuvant treatment?  Thanks for your input.

                          • June 3, 2016 at 5:42 pm
                          Lori Ann
                          Participant

                            Thanks CHD.  I have asked my doctor what other immunotherapies are available and am waiting for a response.  Are you saying Yervoy along with something is a better option or no Yervoy at all?  Sorry.  Does your opinion change if this is adjuvant treatment?  Thanks for your input.

                            • June 3, 2016 at 5:37 pm
                            Lori Ann
                            Participant

                              Thank you for your input!  This is adjuvant for me; however, it is a recurrence.  Last year there wasn't much offered so I did radiation.  Now, we're looking at ways to treat this system-wide.  Best wishes to your and your wife!

                               

                              • June 3, 2016 at 5:37 pm
                              Lori Ann
                              Participant

                                Thank you for your input!  This is adjuvant for me; however, it is a recurrence.  Last year there wasn't much offered so I did radiation.  Now, we're looking at ways to treat this system-wide.  Best wishes to your and your wife!

                                 

                                • June 3, 2016 at 5:37 pm
                                Lori Ann
                                Participant

                                  Thank you for your input!  This is adjuvant for me; however, it is a recurrence.  Last year there wasn't much offered so I did radiation.  Now, we're looking at ways to treat this system-wide.  Best wishes to your and your wife!

                                   

                                  • June 3, 2016 at 5:32 pm
                                  Lori Ann
                                  Participant

                                    Thank you Celeste!  I did see it and read the link a couple of days ago.  I have asked my doctor several more questions! 

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