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KrossCanada
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KrossCanada

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      • March 23, 2021 at 2:35 pm
      KrossCanada
      Participant
        Thanks so much for sharing
        • March 8, 2021 at 2:47 pm
        KrossCanada
        Participant
          This is so interesting. I’m on ipi/nivo combo and my oncologist did not recommend getting a vaccine since they do not know effects. I’m in Canada, maybe that matters. It’s very frustrating since I feel more at risk while on treatment and prednisone.

           

          • January 8, 2021 at 8:40 pm
          KrossCanada
          Participant
            Thank you so much for the replies. It got worse today and nothing helped. I’m in emergency now but I’m going up to oncology for mri. Knowing other people’s experience is helpful and that the pain will (hopefully!) end!
            • January 4, 2021 at 7:26 pm
            KrossCanada
            Participant
              Thank you for the responses. It’s two weeks today since my first combo treatment and I’ve been feeling okay. I had a rash, extreme fatigue and just feeling extra crappy today. It’s definitely day by day. ???? Thank you
              • March 22, 2021 at 1:08 pm
              KrossCanada
              Participant
                Thank you so much for your reply. Can I ask what size were your two lung Mets?
                This is helping keep me hopeful! ❤️
                • March 21, 2021 at 8:25 am
                KrossCanada
                Participant
                  Thank you so much for your response. I’m trying to remain hopeful that treatment will work but I was shocked with the growth. Waiting for next steps is hard. I’m thinking stereotactic ablative radiotherapy (SABR) might be an option now as well.
                  • March 10, 2021 at 10:39 am
                  KrossCanada
                  Participant
                    Thank you for this link. That is so helpful. I’m staying on 10mg prednisone for the time being and I’m hoping to restart treatment. I will bring this up with my oncologist again.
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