Forum Replies Created
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- June 13, 2013 at 3:32 am
Thank you very much for the information. It is good to know that we are not the only one who request this. It is a little more complicated for us as we live in a foreign country but at least now I know it's possible.
I wish all the best for you and your family!
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- June 13, 2013 at 3:32 am
Thank you very much for the information. It is good to know that we are not the only one who request this. It is a little more complicated for us as we live in a foreign country but at least now I know it's possible.
I wish all the best for you and your family!
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- June 13, 2013 at 3:32 am
Thank you very much for the information. It is good to know that we are not the only one who request this. It is a little more complicated for us as we live in a foreign country but at least now I know it's possible.
I wish all the best for you and your family!
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- June 13, 2013 at 3:25 am
Thank you so much. I always get lots of help from your comments. You seem to know a lot more than most doctors, certainly the ones who are not melanoma specialists. Thank you for helping people you don't even know and you haven't even met.
I do have the full copies of the reports and we got the slides, too – initial biopsy, post surgery (one stained, one not stained whatever this means.)
Now that I know it's possible, I should just proceed with it. Any institution that has expertise and experience who is willing to read slides of people from long-distance is what we are looking for. You put all these into perspective. Thank you so much.
I wish all the best for you and your family, too!
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- June 13, 2013 at 3:25 am
Thank you so much. I always get lots of help from your comments. You seem to know a lot more than most doctors, certainly the ones who are not melanoma specialists. Thank you for helping people you don't even know and you haven't even met.
I do have the full copies of the reports and we got the slides, too – initial biopsy, post surgery (one stained, one not stained whatever this means.)
Now that I know it's possible, I should just proceed with it. Any institution that has expertise and experience who is willing to read slides of people from long-distance is what we are looking for. You put all these into perspective. Thank you so much.
I wish all the best for you and your family, too!
-
- June 13, 2013 at 3:25 am
Thank you so much. I always get lots of help from your comments. You seem to know a lot more than most doctors, certainly the ones who are not melanoma specialists. Thank you for helping people you don't even know and you haven't even met.
I do have the full copies of the reports and we got the slides, too – initial biopsy, post surgery (one stained, one not stained whatever this means.)
Now that I know it's possible, I should just proceed with it. Any institution that has expertise and experience who is willing to read slides of people from long-distance is what we are looking for. You put all these into perspective. Thank you so much.
I wish all the best for you and your family, too!
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- May 29, 2013 at 6:24 am
Thank you very much for your kind, prompt, well-organized and very helpful reply. We live in South Korea and being so far away, it would have been very complicated to deal with this in Australia anyway, although we wouldn’t have had to experience all this confusion. Dermatologists not wanting to be involved in the decision-making, surgeons contradicting the dermatologist and even themselves, and time passing waiting for all the tests and the results thereof, it was a very stressful chaos.
The wide excision surgery was already done with >1cm margins followed by a PET- CT scan(our second surgeon also prescribed this) and a neck-sonogram to check if tumor spread to the parotid gland, which turned out to be clear. I wouldn’t mind getting another opinion on this, though, if there is long-distance consult available, as I don’t see there is any melanoma specialist who is willing to be involved where we are. Is there any recommendation?
So, my understanding is, if it is Clark level 1, it is called "lentigo maligna", not “lentigo maligna melanoma” or "lentigo malinant melanoma"?
Thank you again for your help.
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- May 29, 2013 at 6:24 am
Thank you very much for your kind, prompt, well-organized and very helpful reply. We live in South Korea and being so far away, it would have been very complicated to deal with this in Australia anyway, although we wouldn’t have had to experience all this confusion. Dermatologists not wanting to be involved in the decision-making, surgeons contradicting the dermatologist and even themselves, and time passing waiting for all the tests and the results thereof, it was a very stressful chaos.
The wide excision surgery was already done with >1cm margins followed by a PET- CT scan(our second surgeon also prescribed this) and a neck-sonogram to check if tumor spread to the parotid gland, which turned out to be clear. I wouldn’t mind getting another opinion on this, though, if there is long-distance consult available, as I don’t see there is any melanoma specialist who is willing to be involved where we are. Is there any recommendation?
So, my understanding is, if it is Clark level 1, it is called "lentigo maligna", not “lentigo maligna melanoma” or "lentigo malinant melanoma"?
Thank you again for your help.
-
- May 29, 2013 at 6:24 am
Thank you very much for your kind, prompt, well-organized and very helpful reply. We live in South Korea and being so far away, it would have been very complicated to deal with this in Australia anyway, although we wouldn’t have had to experience all this confusion. Dermatologists not wanting to be involved in the decision-making, surgeons contradicting the dermatologist and even themselves, and time passing waiting for all the tests and the results thereof, it was a very stressful chaos.
The wide excision surgery was already done with >1cm margins followed by a PET- CT scan(our second surgeon also prescribed this) and a neck-sonogram to check if tumor spread to the parotid gland, which turned out to be clear. I wouldn’t mind getting another opinion on this, though, if there is long-distance consult available, as I don’t see there is any melanoma specialist who is willing to be involved where we are. Is there any recommendation?
So, my understanding is, if it is Clark level 1, it is called "lentigo maligna", not “lentigo maligna melanoma” or "lentigo malinant melanoma"?
Thank you again for your help.
-