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Kong-Gee

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      Kong-Gee
      Participant

        Thank you very much for the information. It is good to know that we are not the only one who request this. It is a little more complicated for us as we live in a foreign country but at least now I know it's possible.

        I wish all the best for you and your family!

        Kong-Gee
        Participant

          Thank you very much for the information. It is good to know that we are not the only one who request this. It is a little more complicated for us as we live in a foreign country but at least now I know it's possible.

          I wish all the best for you and your family!

          Kong-Gee
          Participant

            Thank you very much for the information. It is good to know that we are not the only one who request this. It is a little more complicated for us as we live in a foreign country but at least now I know it's possible.

            I wish all the best for you and your family!

            Kong-Gee
            Participant

              Thank you so much. I will study the website and see if there is a contact number. It takes courage but it is something we need to get done. Thank you.

              I wish all the best for you and your family!

              Kong-Gee
              Participant

                Thank you so much. I will study the website and see if there is a contact number. It takes courage but it is something we need to get done. Thank you.

                I wish all the best for you and your family!

                Kong-Gee
                Participant

                  Thank you so much. I will study the website and see if there is a contact number. It takes courage but it is something we need to get done. Thank you.

                  I wish all the best for you and your family!

                  Kong-Gee
                  Participant

                    Thank you so much. I always get lots of help from your comments. You seem to know a lot more than most doctors, certainly the ones who are not melanoma specialists. Thank you for helping people you don't even know and you haven't even met.

                    I do have the full copies of the reports and we got the slides, too – initial biopsy, post surgery (one stained, one not stained whatever this means.) 

                    Now that I know it's possible, I should just proceed with it. Any institution that has expertise and experience who is willing to read slides of people from long-distance is what we are looking for. You put all these into perspective. Thank you so much.

                    I wish all the best for you and your family, too!

                    Kong-Gee
                    Participant

                      Thank you so much. I always get lots of help from your comments. You seem to know a lot more than most doctors, certainly the ones who are not melanoma specialists. Thank you for helping people you don't even know and you haven't even met.

                      I do have the full copies of the reports and we got the slides, too – initial biopsy, post surgery (one stained, one not stained whatever this means.) 

                      Now that I know it's possible, I should just proceed with it. Any institution that has expertise and experience who is willing to read slides of people from long-distance is what we are looking for. You put all these into perspective. Thank you so much.

                      I wish all the best for you and your family, too!

                      Kong-Gee
                      Participant

                        Thank you so much. I always get lots of help from your comments. You seem to know a lot more than most doctors, certainly the ones who are not melanoma specialists. Thank you for helping people you don't even know and you haven't even met.

                        I do have the full copies of the reports and we got the slides, too – initial biopsy, post surgery (one stained, one not stained whatever this means.) 

                        Now that I know it's possible, I should just proceed with it. Any institution that has expertise and experience who is willing to read slides of people from long-distance is what we are looking for. You put all these into perspective. Thank you so much.

                        I wish all the best for you and your family, too!

                        Kong-Gee
                        Participant

                          Thank you very much for your kind, prompt, well-organized and very helpful reply. We live in South Korea and being so far away, it would have been very complicated to deal with this in Australia anyway, although we wouldn’t have had to experience all this confusion. Dermatologists not wanting to be involved in the decision-making, surgeons contradicting the dermatologist and even themselves, and time passing waiting for all the tests and the results thereof, it was a very stressful chaos.

                          The wide excision surgery was already done with >1cm margins followed by a PET- CT scan(our second surgeon also prescribed this) and a neck-sonogram to check if tumor spread to the parotid gland, which turned out to be clear. I wouldn’t mind getting another opinion on this, though, if there is long-distance consult available, as I don’t see there is any melanoma specialist who is willing to be involved where we are. Is there any recommendation?

                          So, my understanding is, if it is Clark level 1, it is called "lentigo maligna", not “lentigo maligna melanoma” or "lentigo malinant melanoma"?

                          Thank you again for your help.

                          Kong-Gee
                          Participant

                            Thank you very much for your kind, prompt, well-organized and very helpful reply. We live in South Korea and being so far away, it would have been very complicated to deal with this in Australia anyway, although we wouldn’t have had to experience all this confusion. Dermatologists not wanting to be involved in the decision-making, surgeons contradicting the dermatologist and even themselves, and time passing waiting for all the tests and the results thereof, it was a very stressful chaos.

                            The wide excision surgery was already done with >1cm margins followed by a PET- CT scan(our second surgeon also prescribed this) and a neck-sonogram to check if tumor spread to the parotid gland, which turned out to be clear. I wouldn’t mind getting another opinion on this, though, if there is long-distance consult available, as I don’t see there is any melanoma specialist who is willing to be involved where we are. Is there any recommendation?

                            So, my understanding is, if it is Clark level 1, it is called "lentigo maligna", not “lentigo maligna melanoma” or "lentigo malinant melanoma"?

                            Thank you again for your help.

                            Kong-Gee
                            Participant

                              Thank you very much for your kind, prompt, well-organized and very helpful reply. We live in South Korea and being so far away, it would have been very complicated to deal with this in Australia anyway, although we wouldn’t have had to experience all this confusion. Dermatologists not wanting to be involved in the decision-making, surgeons contradicting the dermatologist and even themselves, and time passing waiting for all the tests and the results thereof, it was a very stressful chaos.

                              The wide excision surgery was already done with >1cm margins followed by a PET- CT scan(our second surgeon also prescribed this) and a neck-sonogram to check if tumor spread to the parotid gland, which turned out to be clear. I wouldn’t mind getting another opinion on this, though, if there is long-distance consult available, as I don’t see there is any melanoma specialist who is willing to be involved where we are. Is there any recommendation?

                              So, my understanding is, if it is Clark level 1, it is called "lentigo maligna", not “lentigo maligna melanoma” or "lentigo malinant melanoma"?

                              Thank you again for your help.

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