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kccaddy23
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kccaddy23

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      • April 6, 2014 at 1:36 am
      kccaddy23
      Participant

        Thank you everyone for your responses. I believe the issue is his brain mets have been unstable so that is why he doesn't qualify. Dr. Hodi and his team have tried to help him get access to the drug but looks like Merck will not approve him to receive it under EAP. Now we just have to pray for a miracle or that Merck changes their mind. 

        • April 6, 2014 at 1:36 am
        kccaddy23
        Participant

          Thank you everyone for your responses. I believe the issue is his brain mets have been unstable so that is why he doesn't qualify. Dr. Hodi and his team have tried to help him get access to the drug but looks like Merck will not approve him to receive it under EAP. Now we just have to pray for a miracle or that Merck changes their mind. 

          • April 6, 2014 at 1:36 am
          kccaddy23
          Participant

            Thank you everyone for your responses. I believe the issue is his brain mets have been unstable so that is why he doesn't qualify. Dr. Hodi and his team have tried to help him get access to the drug but looks like Merck will not approve him to receive it under EAP. Now we just have to pray for a miracle or that Merck changes their mind. 

            • April 3, 2014 at 10:01 pm
            kccaddy23
            Participant

              Thanks we called them and they didn't do anything.  They are saying his disease is too far progressed.

              • April 3, 2014 at 10:01 pm
              kccaddy23
              Participant

                Thanks we called them and they didn't do anything.  They are saying his disease is too far progressed.

                • April 3, 2014 at 10:01 pm
                kccaddy23
                Participant

                  Thanks we called them and they didn't do anything.  They are saying his disease is too far progressed.

                  • April 2, 2014 at 4:49 pm
                  kccaddy23
                  Participant

                    Can I ask how many brain mets did you have?  My brother has multiple brain mets (which they said Zelboraf isn't working anymore).  They said since Zelboraf and WBR didn't work there wasn't anything else they could.  They literally sent us home on 3/20 with no other option.  This combo wasn't even brought up to us.  He had been on Zelboraf for 7 months with regression and little to no new growth and then BAM this.  Any insight you have would be extremely helpful!

                    • April 2, 2014 at 4:49 pm
                    kccaddy23
                    Participant

                      Can I ask how many brain mets did you have?  My brother has multiple brain mets (which they said Zelboraf isn't working anymore).  They said since Zelboraf and WBR didn't work there wasn't anything else they could.  They literally sent us home on 3/20 with no other option.  This combo wasn't even brought up to us.  He had been on Zelboraf for 7 months with regression and little to no new growth and then BAM this.  Any insight you have would be extremely helpful!

                      • April 2, 2014 at 4:49 pm
                      kccaddy23
                      Participant

                        Can I ask how many brain mets did you have?  My brother has multiple brain mets (which they said Zelboraf isn't working anymore).  They said since Zelboraf and WBR didn't work there wasn't anything else they could.  They literally sent us home on 3/20 with no other option.  This combo wasn't even brought up to us.  He had been on Zelboraf for 7 months with regression and little to no new growth and then BAM this.  Any insight you have would be extremely helpful!

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