kccaddy23
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

kccaddy23

Forum Replies Created

Viewing 1 reply thread
  • Replies
      • April 6, 2014 at 1:36 am
      kccaddy23
      Participant

      Thank you everyone for your responses. I believe the issue is his brain mets have been unstable so that is why he doesn't qualify. Dr. Hodi and his team have tried to help him get access to the drug but looks like Merck will not approve him to receive it under EAP. Now we just have to pray for a miracle or that Merck changes their mind. 

      • April 6, 2014 at 1:36 am
      kccaddy23
      Participant

      Thank you everyone for your responses. I believe the issue is his brain mets have been unstable so that is why he doesn't qualify. Dr. Hodi and his team have tried to help him get access to the drug but looks like Merck will not approve him to receive it under EAP. Now we just have to pray for a miracle or that Merck changes their mind. 

      • April 6, 2014 at 1:36 am
      kccaddy23
      Participant

      Thank you everyone for your responses. I believe the issue is his brain mets have been unstable so that is why he doesn't qualify. Dr. Hodi and his team have tried to help him get access to the drug but looks like Merck will not approve him to receive it under EAP. Now we just have to pray for a miracle or that Merck changes their mind. 

      • April 3, 2014 at 10:01 pm
      kccaddy23
      Participant

      Thanks we called them and they didn't do anything.  They are saying his disease is too far progressed.

      • April 3, 2014 at 10:01 pm
      kccaddy23
      Participant

      Thanks we called them and they didn't do anything.  They are saying his disease is too far progressed.

      • April 3, 2014 at 10:01 pm
      kccaddy23
      Participant

      Thanks we called them and they didn't do anything.  They are saying his disease is too far progressed.

      • April 2, 2014 at 4:49 pm
      kccaddy23
      Participant

      Can I ask how many brain mets did you have?  My brother has multiple brain mets (which they said Zelboraf isn't working anymore).  They said since Zelboraf and WBR didn't work there wasn't anything else they could.  They literally sent us home on 3/20 with no other option.  This combo wasn't even brought up to us.  He had been on Zelboraf for 7 months with regression and little to no new growth and then BAM this.  Any insight you have would be extremely helpful!

      • April 2, 2014 at 4:49 pm
      kccaddy23
      Participant

      Can I ask how many brain mets did you have?  My brother has multiple brain mets (which they said Zelboraf isn't working anymore).  They said since Zelboraf and WBR didn't work there wasn't anything else they could.  They literally sent us home on 3/20 with no other option.  This combo wasn't even brought up to us.  He had been on Zelboraf for 7 months with regression and little to no new growth and then BAM this.  Any insight you have would be extremely helpful!

      • April 2, 2014 at 4:49 pm
      kccaddy23
      Participant

      Can I ask how many brain mets did you have?  My brother has multiple brain mets (which they said Zelboraf isn't working anymore).  They said since Zelboraf and WBR didn't work there wasn't anything else they could.  They literally sent us home on 3/20 with no other option.  This combo wasn't even brought up to us.  He had been on Zelboraf for 7 months with regression and little to no new growth and then BAM this.  Any insight you have would be extremely helpful!

Viewing 1 reply thread
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics