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kammariel

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      kammariel
      Participant

        Congratualtions on your improving health! There are only a few of you on this board with a history of brain mets who are beating it, and you're the only people giving me real hope at this point. My husband is going in for his 7th crani this Thursday. Any chance I could contact you by email for some support/advice?

        kammariel
        Participant

          Congratualtions on your improving health! There are only a few of you on this board with a history of brain mets who are beating it, and you're the only people giving me real hope at this point. My husband is going in for his 7th crani this Thursday. Any chance I could contact you by email for some support/advice?

          kammariel
          Participant

            Congratualtions on your improving health! There are only a few of you on this board with a history of brain mets who are beating it, and you're the only people giving me real hope at this point. My husband is going in for his 7th crani this Thursday. Any chance I could contact you by email for some support/advice?

            kammariel
            Participant

              I hope you can find some relief from the pain and can afford to treat yourself to acupuncture. I also hope that you get a nice long break from health issues! John and I are home from the hospital and John feels good. So thankful to have my husband back to his old self. I'm hoping we get a break from hospitals too! Take care!

              Kam

              kammariel
              Participant

                I hope you can find some relief from the pain and can afford to treat yourself to acupuncture. I also hope that you get a nice long break from health issues! John and I are home from the hospital and John feels good. So thankful to have my husband back to his old self. I'm hoping we get a break from hospitals too! Take care!

                Kam

                kammariel
                Participant

                  I hope you can find some relief from the pain and can afford to treat yourself to acupuncture. I also hope that you get a nice long break from health issues! John and I are home from the hospital and John feels good. So thankful to have my husband back to his old self. I'm hoping we get a break from hospitals too! Take care!

                  Kam

                  kammariel
                  Participant

                    Thanks, I will read their posts. My husband, John, is not B-raf positive. He was due for a scan after his WBR, and that's when they found the necrosis and edema, but he was also symptomatic – memory loss, fatique, loss of appetite, unclear speech, flat affect and some confusion. This is the 4th time with these symptoms, so I'm getting pretty good at predicting when it's time to see the neurosurgeon. I try so hard to stay positive and not jump to conclusions when he's not feeling well. There are always other things to blame the symptoms on like radiaiton or Yervoy.

                    HOw long has it been since your crani? Are you B-raf positive?

                    Positive vibes right back at you,

                    Kam

                    kammariel
                    Participant

                      Thanks, I will read their posts. My husband, John, is not B-raf positive. He was due for a scan after his WBR, and that's when they found the necrosis and edema, but he was also symptomatic – memory loss, fatique, loss of appetite, unclear speech, flat affect and some confusion. This is the 4th time with these symptoms, so I'm getting pretty good at predicting when it's time to see the neurosurgeon. I try so hard to stay positive and not jump to conclusions when he's not feeling well. There are always other things to blame the symptoms on like radiaiton or Yervoy.

                      HOw long has it been since your crani? Are you B-raf positive?

                      Positive vibes right back at you,

                      Kam

                      kammariel
                      Participant

                        Thanks, I will read their posts. My husband, John, is not B-raf positive. He was due for a scan after his WBR, and that's when they found the necrosis and edema, but he was also symptomatic – memory loss, fatique, loss of appetite, unclear speech, flat affect and some confusion. This is the 4th time with these symptoms, so I'm getting pretty good at predicting when it's time to see the neurosurgeon. I try so hard to stay positive and not jump to conclusions when he's not feeling well. There are always other things to blame the symptoms on like radiaiton or Yervoy.

                        HOw long has it been since your crani? Are you B-raf positive?

                        Positive vibes right back at you,

                        Kam

                        kammariel
                        Participant

                          Thank you so much for your prompt reply. I re-read her story, and maybe super positive wasn't the most accurate description, but I still loved her attitude and am inspired by what she endured. Looks like she survived a few years after her first crani, which is actually comforting to me right now. It's so hard not to dwell in the dark side when you watch your loved one go through this.

                          kammariel
                          Participant

                            Thank you so much for your prompt reply. I re-read her story, and maybe super positive wasn't the most accurate description, but I still loved her attitude and am inspired by what she endured. Looks like she survived a few years after her first crani, which is actually comforting to me right now. It's so hard not to dwell in the dark side when you watch your loved one go through this.

                            kammariel
                            Participant

                              Thank you so much for your prompt reply. I re-read her story, and maybe super positive wasn't the most accurate description, but I still loved her attitude and am inspired by what she endured. Looks like she survived a few years after her first crani, which is actually comforting to me right now. It's so hard not to dwell in the dark side when you watch your loved one go through this.

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