kalisama

thank you again for the feedback. i have chosen not to take this path right now and go directly to the keytruda in a few weeks after i continue to strengthen from hospital stay. i've waited so long for this med why would i taint it with another med? my theory is that i can always add the temador later if it seems like a practical combo therapy. perhaps there will even be studies by then.

once again, thank you and bless,
kali

thank you again for the feedback. i have chosen not to take this path right now and go directly to the keytruda in a few weeks after i continue to strengthen from hospital stay. i've waited so long for this med why would i taint it with another med? my theory is that i can always add the temador later if it seems like a practical combo therapy. perhaps there will even be studies by then.

once again, thank you and bless,
kali

thank you again for the feedback. i have chosen not to take this path right now and go directly to the keytruda in a few weeks after i continue to strengthen from hospital stay. i've waited so long for this med why would i taint it with another med? my theory is that i can always add the temador later if it seems like a practical combo therapy. perhaps there will even be studies by then.

once again, thank you and bless,
kali

http://www.melanoma.org/search/mpip/temodar

for reference

http://www.melanoma.org/search/mpip/temodar

for reference

http://www.melanoma.org/search/mpip/temodar

for reference

thank you for the perspectives everyone. very validating to see that i may not be accessing the best care that is available to me. i'm a medicaid patient which does limit me to some degree.

i will certainly take the advice of asking my radiation onc who he would see, that's simply brilliant. he does work closely with my primary oncologist, but does not make this any less valid of a question.

they are both in private practice. i've even had my primary onc say he has to double book my appointments because i'm a medicaid patient so he does not have the luxury of slicing out time for me. probably should have walked out in that moment. it is my understanding that i have met the keytruda requirements, but until monday's imaging i do not believe we have anything empirical to go on other than my side effects which onc does not see as severe enough. until i develop colitis, the skin irritations in his eyes aren't considered severe enough.

again thank you as always for your wisdom.

bless,
kali

thank you for the perspectives everyone. very validating to see that i may not be accessing the best care that is available to me. i'm a medicaid patient which does limit me to some degree.

i will certainly take the advice of asking my radiation onc who he would see, that's simply brilliant. he does work closely with my primary oncologist, but does not make this any less valid of a question.

they are both in private practice. i've even had my primary onc say he has to double book my appointments because i'm a medicaid patient so he does not have the luxury of slicing out time for me. probably should have walked out in that moment. it is my understanding that i have met the keytruda requirements, but until monday's imaging i do not believe we have anything empirical to go on other than my side effects which onc does not see as severe enough. until i develop colitis, the skin irritations in his eyes aren't considered severe enough.

again thank you as always for your wisdom.

bless,
kali

thank you for the perspectives everyone. very validating to see that i may not be accessing the best care that is available to me. i'm a medicaid patient which does limit me to some degree.

i will certainly take the advice of asking my radiation onc who he would see, that's simply brilliant. he does work closely with my primary oncologist, but does not make this any less valid of a question.

they are both in private practice. i've even had my primary onc say he has to double book my appointments because i'm a medicaid patient so he does not have the luxury of slicing out time for me. probably should have walked out in that moment. it is my understanding that i have met the keytruda requirements, but until monday's imaging i do not believe we have anything empirical to go on other than my side effects which onc does not see as severe enough. until i develop colitis, the skin irritations in his eyes aren't considered severe enough.

again thank you as always for your wisdom.

bless,
kali

I'm sorry to hear about your wife's battle. I am reluctant to introduce this traditional chemo in to my treatment, with all of these immonotherapies available now and so little data to support the effectiveness of this med. thank you for sharing your story.

bless,
kali

I'm sorry to hear about your wife's battle. I am reluctant to introduce this traditional chemo in to my treatment, with all of these immonotherapies available now and so little data to support the effectiveness of this med. thank you for sharing your story.

bless,
kali

I'm sorry to hear about your wife's battle. I am reluctant to introduce this traditional chemo in to my treatment, with all of these immonotherapies available now and so little data to support the effectiveness of this med. thank you for sharing your story.

bless,
kali