Juan Arias
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Juan Arias

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      • April 16, 2021 at 1:49 pm
      Juan Arias
      Participant
      https://www.clinicaltrials.gov/ct2/show/study/NCT04793737?cond=Melanoma+Stage+IV&cntry=SE&dist=300&draw=3&rank=2

      Check this out.
      Talk also with radiologist, their opinion is sometimes too much important because they have previous experience.

      • April 14, 2021 at 9:39 pm
      Juan Arias
      Participant
      This reply has been marked as private.
      • April 14, 2021 at 9:17 pm
      Juan Arias
      Participant
      Jenny, SRS is only available for tumors greater than 2mm (maybe less depending on machine). Radiologist is the indicated to evaluate the procedure, they will have the last word. Keep strong and with faith.
      • April 11, 2021 at 12:30 pm
      Juan Arias
      Participant
      This reply has been marked as private.
      • March 3, 2021 at 2:35 pm
      Juan Arias
      Participant
      Finally the problem was Lenvatinib (As ED said!). Out Lenva one week and colitis solved. I started again a couple of days ago with an small dose and things are going well. Thanks for your comments, so useful for talk with medical staff.
      • March 3, 2021 at 2:29 pm
      Juan Arias
      Participant
      Inmunotherapy since September, I took the 1st dose of Sinovac Vaccine (China Lab), no problems at all. My Onc recommend Sinovac cause he said “It was developed according to traditional way”. I can choose between Pfizer and Sinovac, and chose the Chinesse. I know many Americans cannot choise Chinese Vaccine ’cause political issues, but I hope who has create the problem help us to finish it. https://forum.melanoma.org/wp-content/plugins/wp-monalisa/icons/wpml_good.gif
      • February 7, 2021 at 8:02 pm
      Juan Arias
      Participant
      Thanks Ed and Trent
      I have grade 1 to 2 diarrhea. Also with medicines for hyperthyroidism and high cholesterol levels. I’m not sure I’m on Lenva or Placebo, but i have a some signals that could suggest I’m receiving th Lenva (nails with lines) and when stopped Lenva (5 days off) as security for an radiosurgery I felt better and digestion was regulated for a couple of days. I will talk about this with my Onc.
      Thank you very much.
      • September 22, 2020 at 12:39 am
      Juan Arias
      Participant
      Hello MaryB, check this out. Could be interesting for discuss with your onco team.
      https://www.esmo.org/guidelines/cancer-patient-management-during-the-covid-19-pandemic
      • September 17, 2020 at 6:28 pm
      Juan Arias
      Participant
      I have been on TAF/MEK Therapy for the last 9 months. Very good results, but now due to some Mets in cerebellum I need to change to Pembro. I just can say TAF/MEK side effects sucks….but in other hand the drug works very well in some people. I just tried with Paracetamol and Naproxen during the first months, but after the 5th month the fever and fatigue become more often….Then started to use Prendisone and this was the only way to avoid extreme fever and chills during what I call “side effect crisis” (about 5 days of nightmare twice per month). Discuss this posiblilities with your medical team and PLEASE do not self medicate!!
      • June 28, 2020 at 1:29 am
      Juan Arias
      Participant
      Thank you very much to all for your support. I hope to make a SRS as soon as possible. Thanks again for help me with this hard decision.
      • January 20, 2020 at 3:26 pm
      Juan Arias
      Participant
      Hello Donna,
      Check my post, hope it can be useful,
      https://melanoma.org/legacy/find-support/patient-community/mpip-melanoma-patients-information-page/tafinlar-and-mekinist-side
      In my opinión the key factor is hydratation, and of course re-hydratation after diahrea.
      Gatorades or Water + salt + lemon juice drops helps a lot.
      Be stronger than ever. Greetings.
      • September 19, 2020 at 12:28 pm
      Juan Arias
      Participant
      Thank you Linda and Mark.
      • January 16, 2020 at 11:15 pm
      Juan Arias
      Participant
      Thanks to all for support.
      I talked with my doctor yesterday and he told me “I prefer to continue with the treatment all days, especially during the first months. No way to stop!”
      Last 3 days were so quiet about side effects, even I was driven about 20 miles into traffic. I have a special diet, low fat foods and small rations every 4 hours. (Chicken, Turkey, Low fat Cheese, Rice, Bread, Soup with vegetables, Jelly, Apples and Bananas) but the MOST IMPORTANT, I drink 3/4 gallon (3 liters) of water every day!
      • January 15, 2020 at 11:41 am
      Juan Arias
      Participant
      Thanks Steve, today I will talk with my onco about your suggestion. B.R.
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