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JL44

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      JL44
      Participant

        Yes, this was done after a shave biopsy was done in the dermatologist's office.  The surgeon said that the margins were 5 mm or greater, but we can't find that anywhere on the actual report, in writing. I'm wondering if I am missing a sheet from the report or whether the doctor is just assuming because the tissue he removed was so large. I'd like to know for sure and I don't he would say what the margins were without really knowing. He also told my husband that the shave biospy done first almost removed all of it, the surgery was aggressive (which my husband wanted) and more than sufficient. Advice?  Thanks for your help.

        JL44
        Participant

          Yes, this was done after a shave biopsy was done in the dermatologist's office.  The surgeon said that the margins were 5 mm or greater, but we can't find that anywhere on the actual report, in writing. I'm wondering if I am missing a sheet from the report or whether the doctor is just assuming because the tissue he removed was so large. I'd like to know for sure and I don't he would say what the margins were without really knowing. He also told my husband that the shave biospy done first almost removed all of it, the surgery was aggressive (which my husband wanted) and more than sufficient. Advice?  Thanks for your help.

          JL44
          Participant

            Yes, this was done after a shave biopsy was done in the dermatologist's office.  The surgeon said that the margins were 5 mm or greater, but we can't find that anywhere on the actual report, in writing. I'm wondering if I am missing a sheet from the report or whether the doctor is just assuming because the tissue he removed was so large. I'd like to know for sure and I don't he would say what the margins were without really knowing. He also told my husband that the shave biospy done first almost removed all of it, the surgery was aggressive (which my husband wanted) and more than sufficient. Advice?  Thanks for your help.

            JL44
            Participant

              I appreciate the reply.  I'm sure I will continue to research and read, which is probably not helpful all the time…thank you for taking the time to discuss this with me, it's a tremendous help.  I guess all things cosidered, I'm in a pretty good place as far as the statistics I've read.  

              JL44
              Participant

                I appreciate the reply.  I'm sure I will continue to research and read, which is probably not helpful all the time…thank you for taking the time to discuss this with me, it's a tremendous help.  I guess all things cosidered, I'm in a pretty good place as far as the statistics I've read.  

                JL44
                Participant

                  I appreciate the reply.  I'm sure I will continue to research and read, which is probably not helpful all the time…thank you for taking the time to discuss this with me, it's a tremendous help.  I guess all things cosidered, I'm in a pretty good place as far as the statistics I've read.  

                  JL44
                  Participant

                    That's where that little bit of doubt came in; reading stories and reading that in situ has an almost 100% cure rate.  Why almost? — misdiagnosed or is there something I'm missing…maybe that was me?  As of now, I plan on continuing my coaching career and outdoor activities with my family.  After 25 years of coaching, I finally get to coach my own son.  I've been looking forward to this for a long time.  I thank you for your insight and I will give the 6 week rule a try (maybe I'll go to 4 weeks). 

                    One more question: is there a time frame when I am more likely to get a 2nd primary or recurrence? Like 1 year or 5 years…

                    Thanks again for sharing you knowledge and experiences

                    JL44
                    Participant

                      That's where that little bit of doubt came in; reading stories and reading that in situ has an almost 100% cure rate.  Why almost? — misdiagnosed or is there something I'm missing…maybe that was me?  As of now, I plan on continuing my coaching career and outdoor activities with my family.  After 25 years of coaching, I finally get to coach my own son.  I've been looking forward to this for a long time.  I thank you for your insight and I will give the 6 week rule a try (maybe I'll go to 4 weeks). 

                      One more question: is there a time frame when I am more likely to get a 2nd primary or recurrence? Like 1 year or 5 years…

                      Thanks again for sharing you knowledge and experiences

                      JL44
                      Participant

                        That's where that little bit of doubt came in; reading stories and reading that in situ has an almost 100% cure rate.  Why almost? — misdiagnosed or is there something I'm missing…maybe that was me?  As of now, I plan on continuing my coaching career and outdoor activities with my family.  After 25 years of coaching, I finally get to coach my own son.  I've been looking forward to this for a long time.  I thank you for your insight and I will give the 6 week rule a try (maybe I'll go to 4 weeks). 

                        One more question: is there a time frame when I am more likely to get a 2nd primary or recurrence? Like 1 year or 5 years…

                        Thanks again for sharing you knowledge and experiences

                        JL44
                        Participant

                          Janner,

                          Thanks so much for the reply. I'm trying to continue with life as normal…or the new normal.  I just wasn't really sure how to move on after surgery.  It was like, "You're cured, now forget it happened and move on" and I needed more answers.  Don't get me wrong, the care I recieved was great, but because of my profession, I had more questions.  I'm seeing my derm as ordered…but everything seems to be a symptom.  I had a sinus infection 2 weeks ago that caused me to have some swollen lymph nodes along my jaw.  I was worried so talked to my general practicioner and got a CT scan of my head/neck.  All came back normal and after my antibiotics, no issues.  It's hard to know when to press the panic button and when I'm just worrying myself (and wife) unneccessarily.  I'm checking and rechecking every spot on my body…I guess in time, the "new" normal will be, just normal.  

                          I've read so many stories and tried to get as much info as possible.  I asked about depth and staging, but they tell me mine was just very early and "in situ".  But there are even stories about those…I appreciate the info and pray for all those dealing with this; along with the researchers and scientists working for better treatments.  

                          Thanks again, my best to you.

                          JL44
                          Participant

                            Janner,

                            Thanks so much for the reply. I'm trying to continue with life as normal…or the new normal.  I just wasn't really sure how to move on after surgery.  It was like, "You're cured, now forget it happened and move on" and I needed more answers.  Don't get me wrong, the care I recieved was great, but because of my profession, I had more questions.  I'm seeing my derm as ordered…but everything seems to be a symptom.  I had a sinus infection 2 weeks ago that caused me to have some swollen lymph nodes along my jaw.  I was worried so talked to my general practicioner and got a CT scan of my head/neck.  All came back normal and after my antibiotics, no issues.  It's hard to know when to press the panic button and when I'm just worrying myself (and wife) unneccessarily.  I'm checking and rechecking every spot on my body…I guess in time, the "new" normal will be, just normal.  

                            I've read so many stories and tried to get as much info as possible.  I asked about depth and staging, but they tell me mine was just very early and "in situ".  But there are even stories about those…I appreciate the info and pray for all those dealing with this; along with the researchers and scientists working for better treatments.  

                            Thanks again, my best to you.

                            JL44
                            Participant

                              Janner,

                              Thanks so much for the reply. I'm trying to continue with life as normal…or the new normal.  I just wasn't really sure how to move on after surgery.  It was like, "You're cured, now forget it happened and move on" and I needed more answers.  Don't get me wrong, the care I recieved was great, but because of my profession, I had more questions.  I'm seeing my derm as ordered…but everything seems to be a symptom.  I had a sinus infection 2 weeks ago that caused me to have some swollen lymph nodes along my jaw.  I was worried so talked to my general practicioner and got a CT scan of my head/neck.  All came back normal and after my antibiotics, no issues.  It's hard to know when to press the panic button and when I'm just worrying myself (and wife) unneccessarily.  I'm checking and rechecking every spot on my body…I guess in time, the "new" normal will be, just normal.  

                              I've read so many stories and tried to get as much info as possible.  I asked about depth and staging, but they tell me mine was just very early and "in situ".  But there are even stories about those…I appreciate the info and pray for all those dealing with this; along with the researchers and scientists working for better treatments.  

                              Thanks again, my best to you.

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