Melanoma Research Foundation | jennunicorn | Activity https://forum.melanoma.org/user/jennunicorn/activity/ Activity feed for jennunicorn. Tue, 21 Apr 2026 21:30:29 -0400 https://buddypress.org/?v= en-US 30 hourly 2 cb0f0d952b5792e9cb29a0244d2d0347 jennunicorn started the topic AYA Retreat - anyone here going? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/aya-retreat-anyone-here-going/ Sat, 12 Aug 2023 18:03:45 -0400 Hi all, it’s been a long time since I’ve posted here, mostly because I’ve continued to be NED for the past 5.5 years which I’m so grateful for.

I wanted to see if any other young adult friends here were joining the first MRF AYA retreat next month in Michigan? I’ll be going and I am really looking forward to connecting with others from this…Read more

]]> 26fa4b0c44f7909a62c018909e8a08a3 jennunicorn's profile was updated https://forum.melanoma.org/activity/p/73866/ Sat, 12 Aug 2023 17:45:52 -0400 0 1e0e4c42a1707b9dfc09a16498965f6f jennunicorn changed their profile picture https://forum.melanoma.org/activity/p/68075/ Sun, 09 Jul 2023 03:12:57 -0400 0 65957031313704ef8d345b9378209ee1 jennunicorn replied to the topic Still NED - Almost 5 Years in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/still-ned-almost-5-years/#post-276296 Mon, 07 Feb 2022 04:49:25 -0500 Thank you Cindy!

]]> 90db848459157db5263d5f025c8df9b5 jennunicorn replied to the topic Still NED - Almost 5 Years in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/still-ned-almost-5-years/#post-276295 Mon, 07 Feb 2022 04:48:51 -0500 Thank you Celeste!

]]> 9801d354838193c92509b7ea8f526713 jennunicorn replied to the topic Still NED - Almost 5 Years in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/still-ned-almost-5-years/#post-276294 Mon, 07 Feb 2022 04:47:54 -0500 Thank you!

]]> b93ba73914787df5f7c7173f54dbdc12 jennunicorn replied to the topic Still NED - Almost 5 Years in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/still-ned-almost-5-years/#post-276293 Mon, 07 Feb 2022 04:47:37 -0500 So good to hear you’re still livin the NED life Mark!

]]> 67f61445725d0b86b849fb408aea78c3 jennunicorn started the topic Still NED - Almost 5 Years in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/still-ned-almost-5-years/ Sun, 06 Feb 2022 05:26:53 -0500 Hi all! I seem to naturally want to update on here once a year for old friends and new faces. I know how much it warms my heart to see posts from those who’ve been in this world for a long time and are doing well.

I just had my bi-annual scans and I am still NED!

November will mark 5 years since my last infusion & surgery. The scan I have after…Read more

]]> 9177962b15e9e78f077054b9e5162052 jennunicorn replied to the topic Mom of Jake - for the old friends here in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/mom-of-jake-for-the-old-friends-here/#post-274759 Sun, 23 May 2021 16:16:06 -0400 Kerri, I just want to send the biggest internet hugs and all the warmth and peace to you, Jake, and the family. I have read Jake updates for years as I went through my own journey in treatments and surgeries. I hate that melanoma has to be so brutal, I wanted Jake to get to the other side of this beast so badly. Thank you for sharing his journey…Read more

]]> 12a664cac81877b8138f3be93d10a644 jennunicorn replied to the topic Iplimumab/Nivolumb after unsuccessful Nivolumab in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/iplimumab-nivolumb-after-unsuccessful-nivolumab/#post-274359 Sun, 14 Mar 2021 00:47:41 -0500 I originally had stage 3 as well and went on adjuvant Yervoy. After almost a  year on that the melanoma was back, so my onc put me on Yervoy/Opdivo combo and after completing the 4 combo infusions and the many months of Opdivo only infusions, the last tumor shrunk and had surgery to remove the stubborn bit. That was over 3 years ago, I have been…Read more

]]> 44f3ad89688f0b8e8b7e6d2265e2c140 jennunicorn replied to the topic Still NED + Covid vaccinated in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/still-ned-covid-vaccinated/#post-274108 Tue, 02 Feb 2021 05:23:21 -0500 Sending positive vibes your way as you await your results!

]]> fb117ae721e5f7e7d34fc41e12be6a29 jennunicorn replied to the topic Still NED + Covid vaccinated in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/still-ned-covid-vaccinated/#post-274099 Mon, 01 Feb 2021 05:36:07 -0500 Hey Mark! Good to hear from you and so glad to hear there was a treatment that worked for you too!

]]> 9cfd740de69dba2cca1ae9b5a39fcbc1 jennunicorn replied to the topic Still NED + Covid vaccinated in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/still-ned-covid-vaccinated/#post-274098 Mon, 01 Feb 2021 05:33:40 -0500 That is awesome Celeste, so good to hear from you, and hopefully we will continue to ramp up and get more vaccines in arms day by day!!

]]> a244e0d0828f93aa21410e28ae0c2b93 jennunicorn started the topic Still NED + Covid vaccinated in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/still-ned-covid-vaccinated/ Sat, 30 Jan 2021 18:31:19 -0500 Hello hello!

It has been a long time since I’ve come to the forum. I just wanted to give an update to anyone still around from back in the day when I frequented this forum often… I am 3 years NED! (first diagnosed at age 28 stage 3, then progressed to stage 4 within a year… I just turned 34 last week)

I had issues with fatigue and joint pain…Read more

]]> 798a5625dbf6ed7712d3e9de59f20c6b jennunicorn changed their profile picture https://forum.melanoma.org/activity/p/1466/ Sat, 30 Jan 2021 18:16:10 -0500 0 af13b596e2425a7cb6d713d0cb58818e jennunicorn changed their profile picture https://forum.melanoma.org/activity/p/1465/ Sat, 30 Jan 2021 18:15:27 -0500 0 1967d45fa7d1fccdaea79c74b980f8fe jennunicorn's profile was updated https://forum.melanoma.org/activity/p/1464/ Sat, 30 Jan 2021 18:10:18 -0500 0 7e4727280569f2e7ad33031f71f7d646 jennunicorn started the topic Yervoy (ipi) 10mg/kg dose update 2nd infusion in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/yervoy-ipi-10mg-kg-dose-update-2nd-infusion/ Wed, 20 Jan 2016 21:20:57 -0500 It has been over two weeks since my second infusion. My next one is on Monday, the 25th.
Not a lot different from the first infusion. Mostly just fatigue. Not that fatigue is easy, it's made it very difficult to work as much as I'd like to, since my job is very demanding. But, it's better than a lot of the other side effects. 
I noticed for…Read more

]]> 07a480e914502ba7756facf5d2711ca1 jennunicorn started the topic Melanoma Awareness Bracelet - Donates $1 to MRF in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-awareness-bracelet-donates-1-to-mrf/ Fri, 08 Jan 2016 05:34:08 -0500 http://www.puravidabracelets.com/products/melanoma-awareness
Just found this site with a lot of different awareness bracelets. The Melanoma awareness bracelet is $5 and $1 of every bracelet gets donated to Melanoma Research Foundation. Thought I'd share. 
-Jenn

]]> 40b22c7f8c26da9298ec26f8f6c609ab jennunicorn started the topic Yervoy (ipi) 10mg/kg dose Update 1st infusion in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/yervoy-ipi-10mg-kg-dose-update-1st-infusion/ Sun, 27 Dec 2015 22:23:03 -0500 I just wanted to write a short update for anyone else who is on or will be on the Yervoy 10mg/kg dose and might be anxious about side effects. 
I had my first infusion on December 15, so it has been almost 2 weeks now. The only side effects I have delt with are fatigue, dry eyes, and eczema flare ups. I have had eczema for a long time and I get…Read more

]]> 5fb9d67b249e26c100496583896b1fd5 jennunicorn started the topic Yervoy (Ipi) in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/yervoy-ipi/ Tue, 08 Dec 2015 05:10:20 -0500 Hey all,
I am 28 years old with stage 3b Melanoma. I have just talked with my oncologist today about treatment options, and since there are no open clinical trials for my stage at the moment, the 2 options were watch and wait or Yervoy. I opted to do Yervoy because the anxiety of the watch and wait would drive me nuts. 
I know everyone has…Read more

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