Jeanne321

Hi Mike – I have been on his board for 20+ years but very Seldom post. I have had stage 4 melanoma since 1996 and have been on many treatments. The big immunotherapy drugs didn't work for me. I "failed" both Yervoy and Pembro. After that I did IL2 which also did not work but was worth a try because they say if it does work, it's a cure. I have now been on a chemo trial for 3+ years. The side effects are tolerable and I pretty much lead a normal ( whatever that is) life. My point is, don't rule anything out. 

As as a side note, I always read your posts and appreciate how supportive and helpful you are to everyone. Best of luck with your choice of treatment. I have been in situations where I didn't think I could ever bounce back and yet I did!

Hi – I have been on this trial for a year and a half. Each scan has shown shrinkage and side effects, after decreasing the initial strength, are very tolerable. I'm in the same age range as your Dad. Good luck to him. 

Hi – I have been on this trial for a year and a half. Each scan has shown shrinkage and side effects, after decreasing the initial strength, are very tolerable. I'm in the same age range as your Dad. Good luck to him. 

Hi – I have been on this trial for a year and a half. Each scan has shown shrinkage and side effects, after decreasing the initial strength, are very tolerable. I'm in the same age range as your Dad. Good luck to him. 

Sorry you are dealing with this on Christmas. This obviously is level 4 not stage 4. Enjoy your holiday!

Sorry you are dealing with this on Christmas. This obviously is level 4 not stage 4. Enjoy your holiday!

Sorry you are dealing with this on Christmas. This obviously is level 4 not stage 4. Enjoy your holiday!

Hi – I have been on Keytruda for 6 months. After each infusion I have a period of about 7 days of joint pain, sometimes severe. As quickly as it starts, it goes away. One day I can hardly walk and the next I'm perfectly fine. It is really frustrating. The last two infusions I tried acupuncture before the infusion and it seemed to help. It is worth a try. Good luck. 

Hi – I have been on Keytruda for 6 months. After each infusion I have a period of about 7 days of joint pain, sometimes severe. As quickly as it starts, it goes away. One day I can hardly walk and the next I'm perfectly fine. It is really frustrating. The last two infusions I tried acupuncture before the infusion and it seemed to help. It is worth a try. Good luck. 

Hi – I have been on Keytruda for 6 months. After each infusion I have a period of about 7 days of joint pain, sometimes severe. As quickly as it starts, it goes away. One day I can hardly walk and the next I'm perfectly fine. It is really frustrating. The last two infusions I tried acupuncture before the infusion and it seemed to help. It is worth a try. Good luck. 

Yes, rash was severe initially which was one reason that the dose was lowered. Since then I get the rash on day 3 after infusion, it only lasts about 5 days and is managed with Sarna lotion or steroid cream. 

Yes, rash was severe initially which was one reason that the dose was lowered. Since then I get the rash on day 3 after infusion, it only lasts about 5 days and is managed with Sarna lotion or steroid cream. 

Yes, rash was severe initially which was one reason that the dose was lowered. Since then I get the rash on day 3 after infusion, it only lasts about 5 days and is managed with Sarna lotion or steroid cream.