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jeanjean

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      jeanjean
      Participant

        Hello there,

        I am newly diagnosed and getting up to speed here. This webinar would have been interesting, and would loved to have seen it. Do they ever record them or have such things available for playback anywhere on this site? Are videos made and put onto YouTube or anywhere else?

        Please let me know when you can. I'm 48 and otherwise very healthy. Had my enucealtion just 6 weeks ago, and now with pathology in, finally know what I am faceing. So far it has not spread, so looking for mind/body preventatives would be right up my alley.

        Thanks for any help you can give me.

        Jean

        jeanjean
        Participant

          Hello there,

          I am newly diagnosed and getting up to speed here. This webinar would have been interesting, and would loved to have seen it. Do they ever record them or have such things available for playback anywhere on this site? Are videos made and put onto YouTube or anywhere else?

          Please let me know when you can. I'm 48 and otherwise very healthy. Had my enucealtion just 6 weeks ago, and now with pathology in, finally know what I am faceing. So far it has not spread, so looking for mind/body preventatives would be right up my alley.

          Thanks for any help you can give me.

          Jean

          jeanjean
          Participant

            Hello there,

            I am newly diagnosed and getting up to speed here. This webinar would have been interesting, and would loved to have seen it. Do they ever record them or have such things available for playback anywhere on this site? Are videos made and put onto YouTube or anywhere else?

            Please let me know when you can. I'm 48 and otherwise very healthy. Had my enucealtion just 6 weeks ago, and now with pathology in, finally know what I am faceing. So far it has not spread, so looking for mind/body preventatives would be right up my alley.

            Thanks for any help you can give me.

            Jean

            jeanjean
            Participant

              Dear Rachel,

              You won't believe this- but Hello from Boulder City! Not sure if you have left the Vegas area for Japan yet, but it was nice to "meet" a follow OM person so close by on this Forum.

              I"m glad that Nan had someone for you to reach out to. I'm writting to you to let you know that I also went through an OM that was immediately diagnosed as being one where they needed to remove the eye. The tumour was very large, and too close to the tear duct glands to make me a candidate for the other treatments. I know you are struggling right now, but let me tell you- do not be so aftraid.

              The loss, the grieving what I'd lost- that was all real. It sounds like you are already going through that. But first off – know you are not alone. There is a great support site here: http://www.losteye.com

              These are all folks who have lost vision completely in one eye or another, and the founder/creator of the Forum himself had OM. I was certainly scared of the surgery and diagnosis in general. I too was treated at UCLA and they were beyond the best possible care experience one could ask for.

              Your journey will have to be your own, but I urge you to consider that there is life after loosing an eye- a very good one. I hope things go well for you. Let me know if you have not left yet and wish to meet since we actually live so close.

              Be Well,

              Jean

               

              jeanjean
              Participant

                Dear Rachel,

                You won't believe this- but Hello from Boulder City! Not sure if you have left the Vegas area for Japan yet, but it was nice to "meet" a follow OM person so close by on this Forum.

                I"m glad that Nan had someone for you to reach out to. I'm writting to you to let you know that I also went through an OM that was immediately diagnosed as being one where they needed to remove the eye. The tumour was very large, and too close to the tear duct glands to make me a candidate for the other treatments. I know you are struggling right now, but let me tell you- do not be so aftraid.

                The loss, the grieving what I'd lost- that was all real. It sounds like you are already going through that. But first off – know you are not alone. There is a great support site here: http://www.losteye.com

                These are all folks who have lost vision completely in one eye or another, and the founder/creator of the Forum himself had OM. I was certainly scared of the surgery and diagnosis in general. I too was treated at UCLA and they were beyond the best possible care experience one could ask for.

                Your journey will have to be your own, but I urge you to consider that there is life after loosing an eye- a very good one. I hope things go well for you. Let me know if you have not left yet and wish to meet since we actually live so close.

                Be Well,

                Jean

                 

                jeanjean
                Participant

                  Dear Rachel,

                  You won't believe this- but Hello from Boulder City! Not sure if you have left the Vegas area for Japan yet, but it was nice to "meet" a follow OM person so close by on this Forum.

                  I"m glad that Nan had someone for you to reach out to. I'm writting to you to let you know that I also went through an OM that was immediately diagnosed as being one where they needed to remove the eye. The tumour was very large, and too close to the tear duct glands to make me a candidate for the other treatments. I know you are struggling right now, but let me tell you- do not be so aftraid.

                  The loss, the grieving what I'd lost- that was all real. It sounds like you are already going through that. But first off – know you are not alone. There is a great support site here: http://www.losteye.com

                  These are all folks who have lost vision completely in one eye or another, and the founder/creator of the Forum himself had OM. I was certainly scared of the surgery and diagnosis in general. I too was treated at UCLA and they were beyond the best possible care experience one could ask for.

                  Your journey will have to be your own, but I urge you to consider that there is life after loosing an eye- a very good one. I hope things go well for you. Let me know if you have not left yet and wish to meet since we actually live so close.

                  Be Well,

                  Jean

                   

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