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itsmitzi

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      itsmitzi
      Participant

        I don't think the radiation is all that bad, I believe the insurance companies just don't want to pay for pet scans so they use radiation as an excuse.

        Anyhow, what do I tell my doctor? He is the one who wants me to have the test. He also pushed for me to have the node removed about a year ago. I had two removed with the WLE and that was enough for me to know I don't want any others removed!

        As for the needle biopsy… a friend had one and she said it was terribly painful.

        For my part I'd like to just go on acting as if the melanoma never happened.

         

        mitzi

        itsmitzi
        Participant

          I don't think the radiation is all that bad, I believe the insurance companies just don't want to pay for pet scans so they use radiation as an excuse.

          Anyhow, what do I tell my doctor? He is the one who wants me to have the test. He also pushed for me to have the node removed about a year ago. I had two removed with the WLE and that was enough for me to know I don't want any others removed!

          As for the needle biopsy… a friend had one and she said it was terribly painful.

          For my part I'd like to just go on acting as if the melanoma never happened.

           

          mitzi

          itsmitzi
          Participant

            No sorry, I haven't heard of Norman Brooks, but he has a lot of good reviews on the 'net. I've found that folks are quick to post bad reviews on people and things but slow to say nice things ;o)

            Good luck to you!

            itsmitzi
            Participant

              No sorry, I haven't heard of Norman Brooks, but he has a lot of good reviews on the 'net. I've found that folks are quick to post bad reviews on people and things but slow to say nice things ;o)

              Good luck to you!

              itsmitzi
              Participant

                This would only be my second in over two years. I don't think that would be overkill.

                I've been seeing my GP for over 19 years now, it would be hard to just start over with someone else.

                But anyhow, I don't think I will get the PET scan for the simple reason that only PET/CTs are done around my neck of the woods, and my GP insists on the PET scan which no one does anymore.

                itsmitzi
                Participant

                  This would only be my second in over two years. I don't think that would be overkill.

                  I've been seeing my GP for over 19 years now, it would be hard to just start over with someone else.

                  But anyhow, I don't think I will get the PET scan for the simple reason that only PET/CTs are done around my neck of the woods, and my GP insists on the PET scan which no one does anymore.

                  itsmitzi
                  Participant

                    No, I haven't had "this enlarged node for TWO YEARS without any growth?"

                    What I wrote was that I had a PET/CT 2 years ago. At that time an oncologist sent me for that one several months after the WLE and SNB. He considered me high risk because the tumor was ulcerated, Clark's level 4 and had a high mitosis.

                    My gp feels that the node has gotten bigger since I had an ultrasound last year. I don't know because I can never seem to find it so I don't bother looking.

                    itsmitzi
                    Participant

                      No, I haven't had "this enlarged node for TWO YEARS without any growth?"

                      What I wrote was that I had a PET/CT 2 years ago. At that time an oncologist sent me for that one several months after the WLE and SNB. He considered me high risk because the tumor was ulcerated, Clark's level 4 and had a high mitosis.

                      My gp feels that the node has gotten bigger since I had an ultrasound last year. I don't know because I can never seem to find it so I don't bother looking.

                      itsmitzi
                      Participant

                        I highly recommend the Angeles Clinic and Dr. Steven O'Day.

                        itsmitzi
                        Participant

                          I highly recommend the Angeles Clinic and Dr. Steven O'Day.

                          itsmitzi
                          Participant

                            No, no injury either.

                            I lost confidence with my oncologist in April and since then I feel it sort of  has spread to/ applies to all doctors.

                            itsmitzi
                            Participant

                              No, no injury either.

                              I lost confidence with my oncologist in April and since then I feel it sort of  has spread to/ applies to all doctors.

                              itsmitzi
                              Participant

                                No, no prior lymphadema. It just started mid October 20 months after the snb surgery. It seems to swell as I sleep then go down a bit during the day as I use it.

                                itsmitzi
                                Participant

                                  No, no prior lymphadema. It just started mid October 20 months after the snb surgery. It seems to swell as I sleep then go down a bit during the day as I use it.

                                  itsmitzi
                                  Participant

                                    Yes, I had a Sentinel Node biopsy with 2 nodes removed, but would lymphedema start a year and 8 months after the snb?

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