hopeagain
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

hopeagain

Forum Replies Created

Viewing 2 reply threads
  • Replies
      • November 12, 2013 at 3:38 pm
      hopeagain
      Participant

      Dear Denise,

      I am not often on this board, but if you are up to it, and still have the strnegth or hope, then you may try to find another excelling oncologist in one of the leading melanoma centers, and check if they can put you on some good trial fast.

      I wish you all the luck

      • November 12, 2013 at 3:38 pm
      hopeagain
      Participant

      Dear Denise,

      I am not often on this board, but if you are up to it, and still have the strnegth or hope, then you may try to find another excelling oncologist in one of the leading melanoma centers, and check if they can put you on some good trial fast.

      I wish you all the luck

      • November 12, 2013 at 3:38 pm
      hopeagain
      Participant

      Dear Denise,

      I am not often on this board, but if you are up to it, and still have the strnegth or hope, then you may try to find another excelling oncologist in one of the leading melanoma centers, and check if they can put you on some good trial fast.

      I wish you all the luck

      • July 8, 2015 at 8:47 pm
      hopeagain
      Participant

      Thank you very much! I am so glad he did not disappear. Your response was very helpful, as one of his long term patients. 

      • July 8, 2015 at 8:47 pm
      hopeagain
      Participant

      Thank you very much! I am so glad he did not disappear. Your response was very helpful, as one of his long term patients. 

      • July 8, 2015 at 8:47 pm
      hopeagain
      Participant

      Thank you very much! I am so glad he did not disappear. Your response was very helpful, as one of his long term patients. 

      • November 12, 2013 at 4:34 pm
      hopeagain
      Participant

      Have you received PD-1? I did not see in your bio that you did. How come? We are seriously considering PD-1. Are there any other treatments? I know of the anti-Braf drugs. Are they hleping for long term? Yervoy helped for many years, but stopped due to side effects, and looking for alternatives since there is a recurrence. IL-2 high dose is irrelevant and biochemo was already done prior to Yervoy.

       

      • November 12, 2013 at 4:34 pm
      hopeagain
      Participant

      Have you received PD-1? I did not see in your bio that you did. How come? We are seriously considering PD-1. Are there any other treatments? I know of the anti-Braf drugs. Are they hleping for long term? Yervoy helped for many years, but stopped due to side effects, and looking for alternatives since there is a recurrence. IL-2 high dose is irrelevant and biochemo was already done prior to Yervoy.

       

      • November 12, 2013 at 4:34 pm
      hopeagain
      Participant

      Have you received PD-1? I did not see in your bio that you did. How come? We are seriously considering PD-1. Are there any other treatments? I know of the anti-Braf drugs. Are they hleping for long term? Yervoy helped for many years, but stopped due to side effects, and looking for alternatives since there is a recurrence. IL-2 high dose is irrelevant and biochemo was already done prior to Yervoy.

       

Viewing 2 reply threads
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.