Forum Replies Created
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- June 22, 2014 at 5:08 pm
Hi
My name is Tim and I have been dealing with melanoma for the last 20 years.
The last 16 have been stage four. I consider myself a lab rat as every new trial that comes out I seem to recieve. I was on Zelboraf from 2012 to 2013. Aside from severe sun burn I to experienced joint pain. Be careful. Although I am 60Yrs old I have no family history of joint promblems, but I am now looking at hip replacement as the drug has eaten away my joints. wether it was just teh Zelboraf or the follow up of chemo
I wish I had followed the treatment more carefully. My best to your son and please keep a close eye. The drug company is still learning about the side effects
Best wishes
Tim
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- June 22, 2014 at 5:08 pm
Hi
My name is Tim and I have been dealing with melanoma for the last 20 years.
The last 16 have been stage four. I consider myself a lab rat as every new trial that comes out I seem to recieve. I was on Zelboraf from 2012 to 2013. Aside from severe sun burn I to experienced joint pain. Be careful. Although I am 60Yrs old I have no family history of joint promblems, but I am now looking at hip replacement as the drug has eaten away my joints. wether it was just teh Zelboraf or the follow up of chemo
I wish I had followed the treatment more carefully. My best to your son and please keep a close eye. The drug company is still learning about the side effects
Best wishes
Tim
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- June 22, 2014 at 5:08 pm
Hi
My name is Tim and I have been dealing with melanoma for the last 20 years.
The last 16 have been stage four. I consider myself a lab rat as every new trial that comes out I seem to recieve. I was on Zelboraf from 2012 to 2013. Aside from severe sun burn I to experienced joint pain. Be careful. Although I am 60Yrs old I have no family history of joint promblems, but I am now looking at hip replacement as the drug has eaten away my joints. wether it was just teh Zelboraf or the follow up of chemo
I wish I had followed the treatment more carefully. My best to your son and please keep a close eye. The drug company is still learning about the side effects
Best wishes
Tim
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- August 5, 2012 at 6:47 pm
I have been on Zelboraf since Sept 2011
I have had severe sun reaction, 2nd degree burns, loss of all body hair, joint pain mainly in my knees,failing eyesight and
loss, of hearing, fatigue. Other than that every thin is fine. I am now only taking half dose. If I quit the tumors quickly return. I have been battling this for 17 years and am very fortunate
Tim
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- August 5, 2012 at 6:47 pm
I have been on Zelboraf since Sept 2011
I have had severe sun reaction, 2nd degree burns, loss of all body hair, joint pain mainly in my knees,failing eyesight and
loss, of hearing, fatigue. Other than that every thin is fine. I am now only taking half dose. If I quit the tumors quickly return. I have been battling this for 17 years and am very fortunate
Tim
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- August 5, 2012 at 6:47 pm
I have been on Zelboraf since Sept 2011
I have had severe sun reaction, 2nd degree burns, loss of all body hair, joint pain mainly in my knees,failing eyesight and
loss, of hearing, fatigue. Other than that every thin is fine. I am now only taking half dose. If I quit the tumors quickly return. I have been battling this for 17 years and am very fortunate
Tim
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- February 23, 2012 at 8:25 pm
This disease is so frustrating. I have been playing tug and war with it for sixteen years.
Have been on B-Raf since Sept. Had to reduce dosage due to side effects but it is helping. Before every appt write down your concerns and ask your md. It can be so very frustrating, but hang in there.
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- February 23, 2012 at 8:25 pm
This disease is so frustrating. I have been playing tug and war with it for sixteen years.
Have been on B-Raf since Sept. Had to reduce dosage due to side effects but it is helping. Before every appt write down your concerns and ask your md. It can be so very frustrating, but hang in there.
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- February 23, 2012 at 8:25 pm
This disease is so frustrating. I have been playing tug and war with it for sixteen years.
Have been on B-Raf since Sept. Had to reduce dosage due to side effects but it is helping. Before every appt write down your concerns and ask your md. It can be so very frustrating, but hang in there.
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