The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

frosbac

Forum Replies Created

Viewing 8 reply threads
  • Replies
      frosbac
      Participant

      Hi 

      My name is Tim and I have been dealing with melanoma for the last 20 years.

      The last 16 have been stage four. I consider myself a lab rat as every new trial that comes out I seem to recieve. I was on Zelboraf from 2012 to 2013. Aside from severe sun burn I to experienced joint pain. Be careful. Although I am 60Yrs old I have no family history of joint promblems, but I am now looking at hip replacement as the drug has eaten away my joints. wether it was just teh Zelboraf or the follow up of chemo

      I wish I had followed the treatment more carefully. My best to your son and please keep a close eye. The drug company is still learning about the side effects

      Best wishes

      Tim

      frosbac
      Participant

      Hi 

      My name is Tim and I have been dealing with melanoma for the last 20 years.

      The last 16 have been stage four. I consider myself a lab rat as every new trial that comes out I seem to recieve. I was on Zelboraf from 2012 to 2013. Aside from severe sun burn I to experienced joint pain. Be careful. Although I am 60Yrs old I have no family history of joint promblems, but I am now looking at hip replacement as the drug has eaten away my joints. wether it was just teh Zelboraf or the follow up of chemo

      I wish I had followed the treatment more carefully. My best to your son and please keep a close eye. The drug company is still learning about the side effects

      Best wishes

      Tim

      frosbac
      Participant

      Hi 

      My name is Tim and I have been dealing with melanoma for the last 20 years.

      The last 16 have been stage four. I consider myself a lab rat as every new trial that comes out I seem to recieve. I was on Zelboraf from 2012 to 2013. Aside from severe sun burn I to experienced joint pain. Be careful. Although I am 60Yrs old I have no family history of joint promblems, but I am now looking at hip replacement as the drug has eaten away my joints. wether it was just teh Zelboraf or the follow up of chemo

      I wish I had followed the treatment more carefully. My best to your son and please keep a close eye. The drug company is still learning about the side effects

      Best wishes

      Tim

      frosbac
      Participant

      I have been on Zelboraf since Sept 2011

      I have had severe sun reaction, 2nd degree burns, loss of all body hair, joint pain mainly in my knees,failing eyesight and

      loss, of hearing, fatigue. Other than that every thin is fine. I am now only taking half dose. If I quit the tumors quickly return. I have been battling this for 17 years and am very fortunate

      Tim

      frosbac
      Participant

      I have been on Zelboraf since Sept 2011

      I have had severe sun reaction, 2nd degree burns, loss of all body hair, joint pain mainly in my knees,failing eyesight and

      loss, of hearing, fatigue. Other than that every thin is fine. I am now only taking half dose. If I quit the tumors quickly return. I have been battling this for 17 years and am very fortunate

      Tim

      frosbac
      Participant

      I have been on Zelboraf since Sept 2011

      I have had severe sun reaction, 2nd degree burns, loss of all body hair, joint pain mainly in my knees,failing eyesight and

      loss, of hearing, fatigue. Other than that every thin is fine. I am now only taking half dose. If I quit the tumors quickly return. I have been battling this for 17 years and am very fortunate

      Tim

      frosbac
      Participant

      This disease is so frustrating. I have been playing tug and war with it for sixteen years.

      Have been on B-Raf since Sept. Had to reduce dosage due to side effects but it is helping. Before every appt write down your concerns and ask your md. It can be so very frustrating, but hang in there.

      frosbac
      Participant

      This disease is so frustrating. I have been playing tug and war with it for sixteen years.

      Have been on B-Raf since Sept. Had to reduce dosage due to side effects but it is helping. Before every appt write down your concerns and ask your md. It can be so very frustrating, but hang in there.

      frosbac
      Participant

      This disease is so frustrating. I have been playing tug and war with it for sixteen years.

      Have been on B-Raf since Sept. Had to reduce dosage due to side effects but it is helping. Before every appt write down your concerns and ask your md. It can be so very frustrating, but hang in there.

Viewing 8 reply threads
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.