Elizabeth123
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Elizabeth123

Forum Replies Created

Viewing 6 reply threads
1 2
  • Replies
      • December 18, 2018 at 12:18 am
      Elizabeth123
      Participant

      Prayers for you Mike.  You will do well ,I know it.  Hope you have a speedy recovery.  

       

      Elizabeth. 

      • November 1, 2018 at 10:03 pm
      Elizabeth123
      Participant

      Hello Mike,

      it it with great sadness that I right this post.  Ezio passed away last Monday.  He had lost the fight.  We had tried everything and in the end. The tumours in the lung shrank and the brain kept growing.    We just ran out of time.

      elizabeth

      • October 1, 2018 at 8:19 pm
      Elizabeth123
      Participant

      Hey Mike 

      lets us know. Your options.  Something will give. Stay strong.

       

      liz

      • September 29, 2018 at 6:16 pm
      Elizabeth123
      Participant

      Mike

      hang in there and stay positive,  my husband to the last month seems to really going down. Simple things are hard to do.  He is really depressed now.  But we must stay positive.   See your new doc and see what he says.  You may be pleasantly surprise.  Have courage, faith and hope in these dark days.  There will be light.

       

      lots of positive prayers and good thoughts 

       

      elizabeth 

      • September 27, 2018 at 12:18 am
      Elizabeth123
      Participant

      Mike 

      great news for your upcoming appointment.  Stay strong , have courage and faith.   Sending you lots of prayers and luck.  

       

      You will beat this. 

       

      Liz

      • September 26, 2018 at 11:05 pm
      Elizabeth123
      Participant

      Mike you are such a inspiration,  thank you.  I'm sending prayers for you also.   Stay strong. In your own fight. I truly believe with hope faith and strength. We can kick this melanoma to the curb.  We will stay strong together.

       

      Liz

      • September 26, 2018 at 11:52 am
      Elizabeth123
      Participant

      Thanks Ed and Ann,    We are taking pembro and ipi.  After the second dose of ipi we started seeing way more issues.  We have a MRI this Friday to see what's going on.  Not even the high dose dexamethasone is helping with mobility issues.

       

      Liz

      • October 14, 2018 at 1:09 am
      Elizabeth123
      Participant

      thank you for all your good thoughts.  Unfortunately Ezio is not waking up.  We were going to try and rechallenge with the target therapy,  but he has to be awake to take the pills.   The doctor says to prepare for end of life.   They have done everything possible.   There just making him comfortable.   

      I write this with such a heavy heart

      elizabeth

      • October 6, 2018 at 7:38 pm
      Elizabeth123
      Participant

      Hi Mike

      Ezio is still the same.  Fades in and out of sleep. He is very restless at night. They say it’s the steroids.  He had another  siezure last night ,  the doctor says there’s still must be pressure on the brain.  We really need this to kick in and work.  Problem is he has over 50 brain mets.  

       

      But miracles and long shots do happen

      praying every moment 

       

      elizabeth

      • October 6, 2018 at 6:55 pm
      Elizabeth123
      Participant

      Hi Mike 

      Ezio is 52 year old,  and boy are we having a ruff week. ,  he is in the hospital, semi  awake. , fade in and out.      We definitely have side effects.  Rash , and sweating like crazy.   We just need the yervoy to do its magic on those brain mets.   

       

      Elizabeth

      • October 5, 2018 at 11:09 am
      Elizabeth123
      Participant

      There holding the immunothearpy treatments right now,   They said it could be life threatening with so much brain swelling,   The other thing is we started seeing a full body rash and diarrhea now too. So side effects are now showing up.  It's a wait and see right now.  

      • October 4, 2018 at 2:27 am
      Elizabeth123
      Participant

      Needing a miracle right now

      • October 4, 2018 at 2:27 am
      Elizabeth123
      Participant

      Thank you Mike,   It doesn't look good right now. The MRI showed new mets and a bunch of the others gotten bigger.  There stopping all treatments and a wait and see if the ipi kicks in. 

       

       

      • September 26, 2018 at 11:12 pm
      Elizabeth123
      Participant

      We are in canada and receiving treatments at princess Margaret hospital in Toronto.  They are a top research hospital. Unfortunately there doesn't seem to be any clinical trails for brain mets.   We are doing a MRI on Friday to see what's going on.  And at that point we will  see if the radation oncologist can do anything else.  

      hoping and praying

      • September 26, 2018 at 4:53 pm
      Elizabeth123
      Participant

      His name is Ezio.    And I pray the yervoy is working.  In the mean time wow the mobility issues are ruff.  

Viewing 6 reply threads
1 2
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.