MRF-Logo2019-Horizontal-RGB
elefk
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

elefk

Forum Replies Created

Viewing 3 reply threads
  • Replies
      • March 27, 2011 at 12:34 am
      elefk
      Participant

        My husband, Earl, died 3 weeks ago. Stage 4 melanoma which led to liver failure. He was too sick to qualify for the ipi trial, but died before the approval. How I wish he couId be here, starting this medication, while I would struggle to figure out how to pay the cost.

        Rachel

        • March 27, 2011 at 12:34 am
        elefk
        Participant

          My husband, Earl, died 3 weeks ago. Stage 4 melanoma which led to liver failure. He was too sick to qualify for the ipi trial, but died before the approval. How I wish he couId be here, starting this medication, while I would struggle to figure out how to pay the cost.

          Rachel

          • February 2, 2011 at 2:19 pm
          elefk
          Participant

            What treatments worked for you, Charlie? I'm in desperate need to start something, but I hear that standard chemo (including interluken) has a bad track record.

            Earl

            • February 2, 2011 at 2:19 pm
            elefk
            Participant

              What treatments worked for you, Charlie? I'm in desperate need to start something, but I hear that standard chemo (including interluken) has a bad track record.

              Earl

              • February 2, 2011 at 2:23 pm
              elefk
              Participant

                I am also stage 4 and new to this. I am also interested in hearing about treatments.

                Earl

                • February 2, 2011 at 2:23 pm
                elefk
                Participant

                  I am also stage 4 and new to this. I am also interested in hearing about treatments.

                  Earl

                  • January 25, 2011 at 1:32 am
                  elefk
                  Participant

                    anonymous- thanks very much for communicating with me. You are obviously well informed. I was taking Gleevec for 2 weeks and it did evidence some necrosis in the tumor which they observed when they did the surgery to remove the tumor. Yes- it did test positive for c-kit, so we'll see on Thursday, when I have an appoinment with the melanoma oncologist, what he suggests.

                    • January 25, 2011 at 1:32 am
                    elefk
                    Participant

                      anonymous- thanks very much for communicating with me. You are obviously well informed. I was taking Gleevec for 2 weeks and it did evidence some necrosis in the tumor which they observed when they did the surgery to remove the tumor. Yes- it did test positive for c-kit, so we'll see on Thursday, when I have an appoinment with the melanoma oncologist, what he suggests.

                      • January 24, 2011 at 12:30 am
                      elefk
                      Participant

                        Dear Fen, I am so grateful to you for responding. I feel so lonely. They have done PET/CT scans when they thought this was a gist tumor and saw activity in the liver and the sternum, in addition to the primary tumor in the stomach. I am seeing a melanoma specialist at the Cleveland Clinic this Thursday and will share with you his treatment program. In the meantime, if you have any more thoughts, it would be a tremendous source of treament.  Sincerely, Earl

                        • January 24, 2011 at 12:30 am
                        elefk
                        Participant

                          Dear Fen, I am so grateful to you for responding. I feel so lonely. They have done PET/CT scans when they thought this was a gist tumor and saw activity in the liver and the sternum, in addition to the primary tumor in the stomach. I am seeing a melanoma specialist at the Cleveland Clinic this Thursday and will share with you his treatment program. In the meantime, if you have any more thoughts, it would be a tremendous source of treament.  Sincerely, Earl

                          • January 23, 2011 at 11:02 pm
                          elefk
                          Participant

                            The main tumor was in the stomach. It was thought to be a GIST tumor, so I was put on Gleevec. Due to excessive bleeding, the tumor was surgically removed, along with part of my stomach.  Newest pathology report indicates melanoma. Waiting to see new oncologist.

                            • January 23, 2011 at 11:02 pm
                            elefk
                            Participant

                              The main tumor was in the stomach. It was thought to be a GIST tumor, so I was put on Gleevec. Due to excessive bleeding, the tumor was surgically removed, along with part of my stomach.  Newest pathology report indicates melanoma. Waiting to see new oncologist.

                          Viewing 3 reply threads