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Elaine Block
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Elaine Block

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      • July 13, 2017 at 1:03 am
      Elaine Block
      Participant

        We are in a similar quandry, complicated by the fact that my husband is probably allergic to prednisone — and steroids are used to deal with Yervoy side effects.  One additional factor that weighs in favor of the open, 50/50 trial, is that if there are intolerable side effects, we'll know which therapy triggered the side effects.  If we wind up in the combo arm of the other trial, we won't be able to be sure which triggered the side effects.  

         

        • July 22, 2017 at 2:31 am
        Elaine Block
        Participant

          We're also new to this process, but my husband just had surgery to remove a metastatic melanoma from his back. They took a fair amount of tissue – 7×4.5 cm, depth of 2.6cm — under deep sedation (propofol).  We were back home within 2 hours of the surgery.

           

          • July 21, 2017 at 6:53 pm
          Elaine Block
          Participant

            Thanks, Barb – I'm hoping we can work out the steriod issue — maybe in consultation with a pharmacologist.

            I've had a lot of experience with cancer jargon, unfortunately — I'm an 4-time cancer survivor (no melanomas, though I've had 2 basal cells in addition to the 4 other cancers — NED with respect to all 4). Internet groups have been my lifeline since my first diagnosis in 1996 when these types of support groups were really just beginning. So it's been pretty natural for my husband to turn over most of the management of his diagnosis, etc. to me.  Nevertheless, I'm still not sure what questions we need to ask — we're just taking it more or less day by day.

            Elaine

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