Forum Replies Created
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- September 11, 2012 at 4:08 pm
Karin, as others have already indicated, my experience with side effects from Z have been of the waxing and waning variety. After about one week on the drug I had a terrible rash, sounds very similar to yours. Then I had fever/chills, sores in my mouth, aching joints, fatigue, etc. You name it, I was hit with it all in a weeks period. Then they dissipated over a weeks time, and since those first episodes I have had periods of rash, chills, joint pain, etc. intermittently. Never quite as bad as the first time. I am also on a MEK inhibitor since I am doing a clinical trial, so that may be helping with keeping the severity of some of the reaction down. The one side effect that is always with me is the sun sensitivity, both skin (last week I had a very bad allergic type reaction to the sun despite being covered in either sun protecting clothing or sun screen over every inch of my body) and eyes. Turning the lights on in a room is sometimes irritiating to my eyes!
I was able to tolerate the skin rash and mouth sores until they subsided without having my drug dose decrease. One of the reasons it came down that way for me is that I happened to be visiting friends in Portland when the side effects were at their worse. Now I have a corticosteroid ointment and antibiotics that I am suppose to start if the skin rash becomes problematic!
Hang in there. Hope by now you are having some relief from the side effects. I also took oatmeal baths, you can get packets of very finely ground oatmeal at the drug store to put into your bath water. They were very soothing and helped with the itchiness, at least temporarily. Now I take them because they leave my skin so smooth!
Eileen L
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- September 11, 2012 at 4:08 pm
Karin, as others have already indicated, my experience with side effects from Z have been of the waxing and waning variety. After about one week on the drug I had a terrible rash, sounds very similar to yours. Then I had fever/chills, sores in my mouth, aching joints, fatigue, etc. You name it, I was hit with it all in a weeks period. Then they dissipated over a weeks time, and since those first episodes I have had periods of rash, chills, joint pain, etc. intermittently. Never quite as bad as the first time. I am also on a MEK inhibitor since I am doing a clinical trial, so that may be helping with keeping the severity of some of the reaction down. The one side effect that is always with me is the sun sensitivity, both skin (last week I had a very bad allergic type reaction to the sun despite being covered in either sun protecting clothing or sun screen over every inch of my body) and eyes. Turning the lights on in a room is sometimes irritiating to my eyes!
I was able to tolerate the skin rash and mouth sores until they subsided without having my drug dose decrease. One of the reasons it came down that way for me is that I happened to be visiting friends in Portland when the side effects were at their worse. Now I have a corticosteroid ointment and antibiotics that I am suppose to start if the skin rash becomes problematic!
Hang in there. Hope by now you are having some relief from the side effects. I also took oatmeal baths, you can get packets of very finely ground oatmeal at the drug store to put into your bath water. They were very soothing and helped with the itchiness, at least temporarily. Now I take them because they leave my skin so smooth!
Eileen L
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- September 11, 2012 at 4:08 pm
Karin, as others have already indicated, my experience with side effects from Z have been of the waxing and waning variety. After about one week on the drug I had a terrible rash, sounds very similar to yours. Then I had fever/chills, sores in my mouth, aching joints, fatigue, etc. You name it, I was hit with it all in a weeks period. Then they dissipated over a weeks time, and since those first episodes I have had periods of rash, chills, joint pain, etc. intermittently. Never quite as bad as the first time. I am also on a MEK inhibitor since I am doing a clinical trial, so that may be helping with keeping the severity of some of the reaction down. The one side effect that is always with me is the sun sensitivity, both skin (last week I had a very bad allergic type reaction to the sun despite being covered in either sun protecting clothing or sun screen over every inch of my body) and eyes. Turning the lights on in a room is sometimes irritiating to my eyes!
I was able to tolerate the skin rash and mouth sores until they subsided without having my drug dose decrease. One of the reasons it came down that way for me is that I happened to be visiting friends in Portland when the side effects were at their worse. Now I have a corticosteroid ointment and antibiotics that I am suppose to start if the skin rash becomes problematic!
Hang in there. Hope by now you are having some relief from the side effects. I also took oatmeal baths, you can get packets of very finely ground oatmeal at the drug store to put into your bath water. They were very soothing and helped with the itchiness, at least temporarily. Now I take them because they leave my skin so smooth!
Eileen L